12 December 2006
GENERAL AUTISM NEWS
many people have autistic spectrum disorders?
"How many people have
autism?" is one of the most frequently asked
questions and unfortunately it is also one of the most difficult to
answer. There is no central register of everyone who has autism,
means that any information about the possible number of people with
autism in the community must be based on epidemiological surveys (ie
studies of distinct and identifiable populations). This nice essay on the website of The
National Autistic Society (UK) concludes that , for the UK, a
prevalence rate of around 1 in 100 is a best estimate, which means
133,500 children under 18 and 454,400 adults.
fear center, autism may be linked
A smaller amygdala, or fear center, in the brain may be linked to
autism in male teens and
social impairment in young men, two US studies say. In the first study, University of
Wisconsin researchers examined participants' brains,
specifically the amygdala, located deep in the brain. They found
autistic teens had smaller amygdalas, HealthDay News said. They also
found smaller amygdalas in young men who had difficulty differentiating
between emotional and neutral facial expressions and were unable to
make eye contact with another person, which indicate social impairment. In the related study, another
University of Wisconsin research team
found autism-free siblings of autistic children exhibited some of the
same differences in amygdala size and in the way they look at faces and
process that facial information.
Ped Med: The hunt for autism genes
"Having uncovered what they
deem to be convincing
evidence of genes' involvement in autism, scientific sleuths are now
trying to hunt them down. Thus
far, they have been unable to catch up to any predisposing
gene, never mind the intricate genetic networks they think are likely
responsible for the range of problems -- including language delays,
learning disabilities and other developmental irregularities -- that
often affect children with autism." Several autism genetics projects in
the US are mentioned.
Oxytocin May Curb Repetitive Behaviours
In Autism Disorders
Repetitive behaviour in
autism spectrum disorders may be linked to
oxytocin system abnormalities and may, in part, be reduced by synthetic
oxytocin infusion. This is the suggestion of researchers in the United
States following a
study of oxytocin infusion in adults with autistic and Asperger's
disorders at the Mount Sinai School of Medicine, New York. "Studies
with animals have found that oxytocin plays a role in a variety of
behaviors, including parent-child and adult-to-adult pair bonding,
social memory, social cognition, anxiety reduction and repetitive
behaviors," one of the team said in a statement. Click
for a CBC story about oxytocin.
becomes a part of daily life in families
A good story about siblings of brothers with various degrees of autism.
Some Scientific abstracts in
- Hyperbaric Oxygen Therapy Might Improve Certain Patho-physiological
Findings In Autism
- Observations from a Specific Carbohydrate Dietary
Intervention In Two Children With Autism
- Effect of Language and Task Demands on the Diagnostic
Effectiveness of the Autism Diagnostic Observation Schedule:
The Impact of Module Choice.
- Postnatal Development of The Primate Hippocampal Formation.
- Use of Autism-Related Services by Families and Children.
- Social and Communication Abilities and Disabilities in
Higher Functioning Individuals with Autism Spectrum Disorders:
The Vineland and the ADOS
- A Longitudinal Study of Pretend Play in Autism.
- Follow-up of Children Diagnosed w/ Pervasive Developmental
Disorders: Stability and Change During the Preschool Years
- Beyond Perception: Musical Representation and On-line
Processing in Autism.
- Effects of Circumscribed Interests on the Social Behaviors
of Children with Autism Spectrum Disorders
- The Broad Autism Phenotype Questionnaire.
- Change in Autism Symptoms and Maladaptive Behaviors in
Adolescents and Adults with an Autism Spectrum Disorder.
- Amygdala Volume And Nonverbal Social Impairment In
Adolescent And Adult Males With Autism.
CANADIAN AUTISM NEWS
Health Minister Tony Clement Announces
new Initiatives on Autism Spectrum Disorders
A new federal research chair
will look at effective treatments
interventions for autism, the federal government announced on Tuesday.
Health Minister Tony Clement
announced four other projects to
bolster information and monitoring, and to share best practices on
autism or autism spectrum disorder – a neuropsychiatric disorder that
affects aptitude for communication and personal interaction.
"Thousands of Canadians and
their families are suffering, and
result our society needs to act now to help fill the knowledge gaps,"
Clement said. The programs are expected to cost about $800,000.
The other measures are:
- An autism surveillance
program to shape research.
- A stakeholder symposium in
- A new web page on autism on
Health Canada's website.
the health policy branch of Health Canada
as the lead agency for actions related to autism.
National Autism Strategy? Advocates note that while "the Motion is
not binding and not law, but it is a critical first step in getting our
children diagnosed with Autism Spectrum Disorder what they need."
An important vote will be held next week in Canada's Parliament.
Motion M-172 as
amended November 27,
2006--to be voted on December 5, 2006 by Parliament:
That, in the opinion of the House, the government should create a
strategy for autism spectrum disorder that would include:
(a) the development, in cooperation with provincial/territorial
evidence based standards for the diagnosis and treatment of autism
(b) development, in cooperation with provincial governments, of
funding methods for the care of those with autism spectrum disorder;
(c) consulting with provincial/territorial governments and other
on the requirements of implementing a national surveillance program for
spectrum disorders; and
(d) the provision of additional federal funding for health research
For those of us with long experience and long
memories, it is momentous
that the Canadian Senate should be discussing what might be done by the
federal government to help people and families who live with autism.
Most of the focus of these hearings is on autism in children, but
at the third of the meetings do refer to issues that concern autistic
adults and their families.
Meanwhile, the Standing
on Social Affairs, Science and Technology has been holding
hearings described as an "inquiry on the issues of funding for the
treatment of autism and discussions around a national autism
transcripts of the evidence onNovember
See also Brief to the Senate Inquiry on Funding
for Autism Treatment by Dr Peter Szatmari Director of the Offord
Centre for Child Studies and Founding Member of the Canadian Autism
Intervention Research Network
(CAIRN), November 22, 2006. Dr Szatmari stresses children and calls
for increased rresearch funding, concluding "It’s all a function of
trusting what science can do for us, and applying that science to the
everyday lives of these children."
Society Canada Supports a National Autism Strategy
Important New Releases from the Individualized Funding Coalition
IFCO is pressing purposefully to persuade the Ontario
Government to move ahead in implementing the new directions announced in Opportunities and Action – Transforming
Supports In Ontario for People who have a Developmental Disability IFCO members are meeting
with Ontario Ministers, members of Treasury Board and MPPs this month.
Rationale for Independent Planning and
Facilitation: Why MCSS Should Move Quickly
document presents nine rationales for independent planning and
facilitation which will help build a sustainable, innovative, cost
effective direct individualized funding program. With this
document, IFCO calls on MCSS to move ahead with independent planning
and facilitation as a vital infrastructure to ensure the success of
Common Vision EXTRA!!!
A news summary including
excerpts from interviews with leaders in the social change movement.
That Will Make a Difference
document is a must read! It clearly explains the important
considerations for investing tax payer dollars in Direct
Individualized Funding and Independent Planning and
Facilitation. This document is an excellent resource for
people to take with them when they meet with MPP's as they try to help
move Individualized Funding and Independent Planning and Facilitation
issues are vital for Ontario. Look up the many current resources on the
LONG-TERM CARE HOME ACCESS
From Family Alliance Ontario…No to ALL
FOR ADULTS WITH A DEVELOPMENTAL DISABILITY
Disability advocates are very
upset to learn that the Ontario Government (through the Ministries of
Community and Social Services and Health and Long-Term Care) has made
plans for adults with a developmental disability and relatively high
needs to be admitted to long-term care facilities instead of opening
community living opportunities for them. Advocates of inclusion and
community living see a discrepancy between this new "access protocol"
and the values and strategies discussed in the MCSS "transformation
process" for developmental services since mid-2004.
the Ministries' Access Protocol (July 2006)
letter of serious concerns by Shelley Martel MPP
Doublespeak, a critique by Dr Patricia Spindel
(we have permission to share
submissions for this news bulletin or for the OAARSN Calendar and
Board in plain text format by email to firstname.lastname@example.org with "announcement" at the
beginning of the subject line.
details of the following as BRIEFLY as possible:
Speakers and Topics of Event
and Location of Event
information to learn more about event
URL Link for more information/registration
Do Not Send Files Or Brochure Attachments
Children, Youth and Adults with Asperger Syndrome:
A lecture series
presented by the Aspergers Society of Ontario
17, February 14, and March 14 2007
Centre for Addiction and Mental Health,
250 College Street, Toronto, Ontario
the dates on your calendar and plan on attending
all three days! Those that participate can expect to take away valuable
information on Asperger Syndrome, how to recognize it in children,
adults and the role of the multi-disciplinary team in supporting the
with Asperger Syndrome and their family.
January 17, 2007
and Youth with Asperger Syndrome
February 14, 2007
March 14, 2007
Speaker and registration information to
follow shortly. Or monitor the website at
One Radio Schedule
A Worldwide, Web-Based Radio
Station for the Care, Treatment, and Recovery
of Children with Autism
25 - 27, 2007, in San Diego
Learning to Listen: Personalizing
Supports Across the Life-Span
Conference topics include
- The role of movement
differences/disturbances in communication and behavior challenges
- Pitfalls of literal interpretation of behavior: Successful
interactions with individuals whose unconventional ways of
communicating make you think they are not listening and wouldn’t
- Sensory-movement issues and stress
- Personalizing accommodations and life options for
- Panels of parents and of self-advocates who address the
processes and supports that make a real difference in their lives
Anne M. Donnellan, Ph.D.
Martha R. Leary, M.A.,
Jeff Strully, Ph.D.
Jodi A. Robledo, Ph.D.
Panel of Parents and
Click for Winter Autism Conference details
8-10 February 2007, in Herning,
Welcome to Meeting
of Minds 2 - A conference on autism and related
Social Cognition and Emotion in Autism and
Disorders - A Multidimensional Approach - Research and Practice
Keynote speakers include
Uta Frith, Simon
Peter Hobson, Paul
Hans-Christoph Steinhausen, Anthony
For more details, visit: http://www.meetingofminds2.dk/
March 1-4, 2007
Biennial Congress 2007
Spectrum Disorders Across the Lifespan
experts on autism spectrum disorders, from England, Canada, and the United States, will focus
on ways to
improve the quality of life for the affected individuals and their
families/caregivers by conducting presentations in the areas of
biomedical interventions, research, adjunct therapies, diet and
Speakers include Dr.
Temple Grandin, Dr. Andrew Wakefield,
Dr. Jeff Bradstreet, Dr. Simon Baron-Cohen, Dr. Doreen Granpeesheh, Dr.
DeMio, Dr. Stephen Shore, Shannon Kenitz, Dr. Lauren Underwood, Dr.
Prizant, Stan Kurtz, Dr. Diane Twachtman-Cullen, Dr. Teresa Bolick, Dr.
Shaw, and plus more experts in the field of autism.
theme reflects the reality that autism spectrum disorders present an
set of personal, familial, societal, and therapeutic issues as affected
individuals pass from infancy, childhood through adolescence,
finally old age.
Adopting a life-span perspective is a fundamental requirement for
set of comprehensive services to individuals and families who are
Autism Spectrum Disorder.
May 23 – 27, 2007, Sheraton Centre Toronto
Your Senses Conference
Opening the Sensory World to
& Adults with Complex Disabilities
By MukiBaum Treatment
Call for Papers NOW
caregivers, persons with disabilities, researchers and consumers to
a wide array of topics within the realm of Sensory-Motor Therapy and
with disabilities. The goal is to share and disseminate knowledge
experience from around the world so that we can better understand the
Reality of people with disabilities and the many forms of treatment
If you are interested
presenting at our conference, visit the website at www.mukibaum.com
and click on the link for Submit Paper. The complete details and
for submission are outlined on the website.
is now at http://www.sensoryconference.ca/
you can take advantage of Early Bird rates. There will be
opportunities for you and your organization to exhibit, become a
sponsor of the
event and participate in a number of activities throughout the
June 15 & 16, 2007
Acceptance and Opportunities: See the Potential
will explore best practices and approaches for increasing quality of
opportunities and independence. Save the
Date! Friday, June 15 & Saturday,
June 16, 2007 Toronto, Ontario
and Early Bird Registration discounts are available.
Keep an eye
on www.autismontario.com for
more information to be released in the coming months.
August, 1 & 2 September 2007, in Oslo, Norway
‘A WORLD OF
Congress Autism Europe
submission, registration and further
FOR ABSTRACT SUBMISSIONS : 30
are invited to share their knowledge, skills and expertise on a range
intended to promote the practical outcomes, values and implications of
in terms of its contribution to the quality of life and development of
- keynote symposia and discussion
- poster presentations linked to main
- opportunities for new generation
and operators in the field of autism to present their work
For further information and details
regarding submissions, please visit the Congress website: http://www.autismcongressoslo.org/comweb.asp?ID=1&segment=1&session=
Do not miss
this opportunity to contribute to
opening up ‘a World of Possibilities’ for people with autism and their
families, view the 4th International Art Exhibition of Persons with
to visit Oslo and its charming surroundings.
RESOURCES, BOOKS, WEBSITES, COURSES
Become a Member of AutismConnects
If you have not already,
please become a member of AutismConnects! (click on the following link:
Dr Jeannette Holden invites
everybody to show how useful our Virtual Community for Autism Spectrum
Stakeholders is and will be. Please pass the word to everybody
you know. Let's make this as large of a community as
possible. We need families, friends, researchers, trainees,
students, support workers, service providers, organizations.
After you become a member,
please login and contribute to "Celebrate" by sharing photos and
artwork. Please help us to populate our discussion forum.
AutismConnects will continue to evolve so please check back often.
The membership form only
takes about a minute to complete!
If you have any questions,
please do not hesitate to contact:
Melissa Hudson, BSc
ASD-CARC Research Assistant
The Asperger Syndrome Quarterly
Welcome to the second edition of Aspergers
Society of Ontario, 293 Wychwood Avenue, Toronto, Ontario. M6C
Phone: (416) 651-4037 | Email:
Geneva Centre for
Autism's International Symposium
It's not too
late to purchase the full compilation
CD-ROM for 2006. Listen once
again to a motivating informative
address or hear for the first time a compelling session you may have
Order the full CD-ROM compilation, which contains the audio recorded
all sessions synchronized to PowerPoint (as released for inclusion).
additional information please call the toll free number below.
CDs or MP3 files today for your
education and enrichment:
1-888-711-1138 ext. 222 (Toll Free)
mention conference code 061025 when calling
Canadian Horticultural Therapy
has a new website address:http://www.chta.ca/
CALLING FOR HELP AND
PERCEPTIONS AND EXPERIENCES
adults with autism is usually negative. We receive many appeals for
on where to turn for help--with diagnosis and assessment, advocacy,
for the future, alternatives to approaches that are not working. There
are virtually no obvious sources of help for isolated adults with
and their caregivers.
some adults and their families and caregivers are heroically using what
resources they have to achieve some successes with their challenges.
can report remarkable progress. We invite you, as an adult or caregiver
living with autism, to share your perceptions, problems and success
you think others might help or benefit.
you wish, we will not print your name or email address. You may send a
to email@example.com for
Or you might use the OAARSN Discussion Board, reached by pressing the
bar on our main page
In the following letter,
Shawn explains why he needs Passports funding to continue his
education. If you
can suggest any way to get help, please reply to OAARSN and we’ll pass along
We have heard from a good many people
and families with autism, who applied for but were not granted Passport
On June 16, 1998, I graduated from the
W. Ross Macdonald School, Brantford, Ontario. This is a
school for the
blind, visually impaired and deaf-blind. I had gone there for
years. Grades Kindergarten through Grade twelve. I was
having Autism Spectrum Disorder In 1996.
In the fall of 1999, I went into the college kickstart my college
After an educational assessment, I was turned away. I then
help of Action Read Community Literacy Centre. I
there now, but in a limited capacity. I sat on the board two
I started there, first from October 2000 until September 2003, second,
October 2004 until September 2005.
In September 2000, I began at Conestoga College. I was there for
years. For the first year (September 2000-July 2001), I was
progress. In September 2001, I could not attend college unless I
tutor with me. Until then, I was going to the college for 2
½ hours on
Mondays and Thursdays. Time was then cut to only Thursdays.
lasted until January 2002.
In the summer of 2002, I was given another shot at continuing my
Jeff McLellan, who is an employee in the Supported Employment Program,
division of Community Living Guelph Wellington, informed me of a
program at the
Wellington Centre for Continuing Education. I started there on August 12th,
2002 and ended on August 20th.,
months later, on October 24th,
2002, he told me it was a
trap. After that date, no other attempt was made.
In December 2005, I once again met with the people at Conestoga College in Guelph and they agreed to
assessments in the new year (2006). These assessments were
February 14th through March 2nd.
Finally, on August 1st,
2006, I formally registered
first-ever college program. I was able to afford the fees and
through a bursary from the Victoria Bloomfield Award, which was
the Board of Directors of Waterloo-Wellington Autism Services.
In September 2006, I started my first course in the WebMaster
Program called Web Page Creation/Authoring using Microsoft FrontPage
later. I have submitted the exam online on December 2nd,
2006. The result was
I really want to continue my studies. In August 2006, I made an
application to the newly-created Passports Initiative of the Ontario
of Community and Social Services, but on November 30, 2006, my request for funds
down. Since it is December 2006, and classes are about to start
January, can anyone give me helpful suggestions on what I should do
2006 Shawn Turner