ONTARIO ADULT AUTISM 
RESEARCH AND SUPPORT NETWORK 
NEWS BULLETIN

OAARSN offers a rich and expanding collection of up-to-date information and communication tools that can put you in touch with others. We can all benefit from the opportunities for mutual support, encouragement and information sharing. We hope that OAARSN's efforts to promote positive approaches and best practices in supporting adults with autism can help all who live and work on the front lines. Click on OAARSN's main page

This bulletin is best read in Mozilla Firefox or Netscape. You may download Mozilla free from www.mozilla.org

See our archive of past OAARSN news bulletins.

Send news, announcements and comments to gbloomfi@uoguelph.ca We welcome news items, announcements of autism events, new information, discussion questions and comments, and accounts of experience.

Please note that this service is for information and awareness. We cannot endorse or be held responsible for the validity of any information or the value of any therapy or service. Nor do we necessarily agree with opinions that may be expressed.

 

OAARSN NEWS BULLETIN
 
8 October 2005

____________________________________________________________________

GENERAL AUTISM NEWS

The Age of Autism: a whole-body illness
Dam Olmsted's column  continues with reports from parents of the wide range of symptoms of ASD, and concludes:
"Autism is a term used to describe a condition which affects the immune, gastrointestinal and central nervous system."
Read other recent columns in this series:
The Age of Autism: Critics have their say

The Age of Autism: Research reversal

The Age of Autism: Case Number 88924

The Age of Autism: Regression


Could Thimerosal Be Worse Than We Thought?
Red Flags Columnist, F. Edward Yazbak, explains the evidence for the idea that thimerosal in vaccines may have been more toxic than previously estimated.


Difficult Choices Needing Assistance, Parents of Disabled Resort to Extremes:

This is the Looming Crisis...who will take care of our children? and how will we pay for it?
by Clare Ansberry for The Wall Street Journal (by subscription)
Faced with the difficulty of getting scarce help for their mentally or physically frail children, some parents are resorting to measures they once considered unthinkable. Requests are increasing as the nation's 4.6 million developmentally disabled, like the rest of the population, are living longer.  Meanwhile, their parents are aging too, making it harder to keep up with caretaking. Read the article


Caring for Autistic Children When They Grow Up
New York Times review of A Place in the World, episode of ABC's "Nightline" on October 7, about the difficulties of adults with autism. "The show's strength is its demonstration of what autism means in day-to-day life: the inability to read another person's facial expression or body language, the lack of judgment to know when to use a potholder, the inability to take a shower without help. The report also stresses that just keeping autistic adults safe and out of trouble isn't enough. Surely they can have satisfying lives, feeling valued and productive. As Peter Gerhardt, a psychologist who teaches autistic adults, says, 'Why would we want to do less?'


_______________________________________________________________________________________________________________________

SPECIAL ANNOUNCEMENTS

Geneva Centre for Autism Toronto Calendar of Training Events
Click on title for Fall and Winter 2005-2006.
Click to register online
For questions, contact Event Coordinator Claire Shave at Ext. 235
Tel: (416) 322-7877
Toll Free: 1-866-Geneva-9
Fax: (416) 322-5894 or cshave@autism.net


Creative Supports for Vulnerable Citizens
A conference on this theme was organized by Guelph Services for the Autistic on April 29, 2005.
More than 180 people joined in a full and rich program that opened with a keynote address by John Lord on “Creative Supports that Work: Values, Principles and Processes.”
Then there were four parallel workshops:

Judith Snow on “Building Supports with Individuals”
Barbara Leavitt on “From Housing to Creating My Home”
Peggy Hutchison on “Building Meaningful Supports for Work and Recreation Experiences”
Marlyn Shervill, Alice Quinlan and Michelle Friesen on “How Families and Communities
Can Make Creative Options Work: The Windsor-Essex Experience”
Throughout the day there were many displays by organizations from all over southern Ontario. Several creative initiatives were featured in the early afternoon session. John Lord gathered up the day’s ideas and strategies in a final plenary session, so that we could all “go home with awareness.”

We believe it is vital to build on what was learned at the Guelph conference. Many people noted that the scope of the conference was exactly what they needed. There was a heavy demand for places at the conference:  if there had been space, we could have registered twice as many participants. Many were interested in more than one workshop topic, and wished there could have been time to take part in two or more instead of just one. We've heard from people all over Ontario who were unable to attend on April 29, but want to be kept informed of resources coming out of the conference.

Audio and video recordings of the conference sessionsm have been edited into:
-summary videotape of the essence and highlights of the conference

-a print publication of edited text transcripts of the presentations and of the displays
Thanks to Kerry's Place Autism Services and the Community Mental Health Clinic in Guelph for grants to help us make these resources available at modest cost.
Click for more details and order form

________________________________________________________________________________________________________________________


ANNOUNCEMENTS OF EVENTS

Please send submissions for this news bulletin or for the OAARSN Calendar and Bulletin Board in plain text format by email to ebloomfi@uoguelph.ca with "announcement" at the beginning of the subject line.
Please provide details of the following as BRIEFLY as possible: 
 Name of Event
 Main Speakers and Topics of Event 
 Date of Event 
 City and Location of Event
 Contact information to learn more about event
 URL Link for more information/registration 

 Please Do Not Send Files Or Brochure Attachments


Friday, October 15, 2005, 9:30-12noon, in Guelph

IRPC and IEP workshop with Lindsay Moir
Sponsored by Kerry's Place Autism Services. Click on title for more and to register.


October 15, in Pickering, all day
Families for a Secure Future and Durham Family Network offer
Creating a Home of One's Own
Morning of story telling, afternoon of small group discussions.
Click for more information and to register


October 16, in Erin, all day
Families for a Secure Future offers
Creating a Home of One's Own
Morning of story telling, afternoon of small group discussions.
Link for more information and how to register



October 18 and 19, 2005, at Orillia

Passports to Community Living
Foundations Conference hosted by Community Living Campbellford/Brighton
Click for full information
Pre-registration before Sept 23 saves $50
Donna Winters
Foundations Outcomes Support Facilitator
Community Living Campbellford/Brighton
99 Centre Street, P.O. Box 414
Campbellford, Ontario
P - (705) 653-5161
Voicemail: (705) 653-1821 ext. 45
F - (705) 632-0756


October 21 and 22, 2005, in Belleville
Kerry's Place Autism Services Spectrum Conference
Speakers include Carol Martin, Dr. McCreary, Leslie Yeates and PJ McKenty
Eastminster United Church, 432 Bridge St. East, Belleville, Ontario
Registration begins at 8:30 am
Click on the links below for more detailed information, or phone (613) 384-7800
Registration Form
Conference Brochure


October 20-23, 2005, in Toronto

Come to Your Senses....
From Theory & Research To Practice: Sensory Therapy & Disabilities
An International Conference for professionals, parents, caregivers & consumers
Presented by Muki Baum Association.

Program includes 37 presenters from 8 countries and a special presentation by Dr Oliver Sacks.


Friday October 21, 2005, 9:30am-4pm
Regional Support Associates present
Adults with Autism Spectrum Disorders, Mental Health & Behavioural Issues
Best Western Lamplighter Inn, London, Ontario
Presenters: J. Dale Munro, MSW, RSW, FAAMR and Liliian Burke, PhD., C.Psych.
Click for more information about RSA
including its Video Conferencing service to the Southwest Region


Wednesday, October 26, 2005, 6:00pm, in Toronto
Great buys on artwork at ASO's Art Auction!
St Lawrence Hall, 157 King Street East (at Jarvis), Toronto.
Support the work of Autism Society Ontario's province-wide efforts to support
families of children with autism spectrum disorders.  



November 2, in Guelph, from 7pm

Capacity Assessments under Ontario's Substitute Decisions Act
presentation by Elaine Atchison, Senior Program Co-ordinator for the Capacity Assessment Office (CAO), Ontario Ministry of Attorney General.
How families and friends need to plan for how decisions will be made by/for vulnerable persons regarding their property and personal care.
"Capacity Assessments are legal assessments of a person’s capacity to understand information that is relevant to making a decision or to appreciate the reasonably foreseeable consequences of a decision or a lack of decision regarding their property (finances) and/or any of the six domains of personal care (health care, nutrition, shelter, clothing, hygiene or safety)....
"A basic tenet of Ontario's SDA is that guardianship should be a last resort when nothing short of guardianship will meet the decisional needs of an incapable person."
Likely to interest people in Guelph-Wellington, Waterloo Region and surrounding places.
Guelph Services for the Autistic sponsors this workshop, free to anyone who is interested, but space is limited. Please pre-register now, requesting an invitation and more information, from

ebloomfi@uoguelph.ca


November 1-2, in Duluth, MN

A
DHD, Medication and Behavioral Strategies in Autism Spectrum Disorder
For information and registration, see the Conferences page at Spectrum Training website
November 1
Dr. Luke Tsai - ADHD and Medications: Gain crucial knowledge about standard medication treatment for autism spectrum disorder (ASD) and related disorders in layman's" terminology. Learn the definition and diagnostic criteria of ADHD, and how to access the disorder. Dr. Tsai will give up-to-date reviews of medication and ADHD research in autism, and talk about the prevalence of ADHD, both in neurotypical and ASD populations. Medical/non-medical interventions for ADHD will be discussed in detail. Dr. Tsai is a professor of Psychiatry and Pediatrics at the University of Michigan, the Director of the UM Developmental Disorders Clinic and one of our favorite speakers! 
 
November 2
Maria Bird-West Wheeler - Behavior Strategies: Increase your understanding of the characteristics of autism spectrum disorder (ASD) that impact behavior and can foster communication breakdowns and feelings of being overwhelmed. A must attend course for parents, teachers and therapists! Learn how to address both the social and sensory needs of an individual with practical use-now solutions. Topics include: Effective Behavior Interventions, Visual Supports for Maximizing Communication and Minimizing Confusion, and Preventing and Dealing with Shutdowns and Meltdowns.
 

November 3-4, in London
DEVELOPING SOLUTIONS TO CHALLENGES IN DUAL DIAGNOSIS
Click on title for details of major conference offered by Regional Support Associates for 2005


November 8, 2005, 5-9pm, in Ottawa

Kitchen Table Talks about Special Services at Home (SSAHPC)
SSAHPC hosts an evening of dinner and discussion about Special Services at Home
Real CDN Loblaws Superstore Community Room,
190 Richmond Road (at Kirkwood), Ottawa
To register or for additional information
Visit the SSAHPC website


November 24, 2005, 5-9pm, in Toronto
Kitchen Table Talks about Special Services at Home (SSAHPC)
SSAHPC hosts an evening of dinner and discussion about Special Services at Home
Location: North Toronto Memorial Community Centre: 200 Eglinton Avenue West (west of Yonge), Toronto
To register or for additional information
Visit the SSAHPC website


December 7, 2005, 5-9pm, in London
Kitchen Table Talks about Special Services at Home (SSAHPC)
SSAHPC hosts an evening of dinner and discussion about Special Services at Home
Location: Siskinds Office, 680 Waterloo Street, London
To register or for additional information
Visit the SSAHPC website

 
______________________________________________________________________________________________________________-

ISSUES AND INITIATIVES

See also: Funding Issues--new OAARSN Discussion Boards and Topics. Press the Communications bar on OAARSN’s main page then choose Discussion Area


In the Name of Treatment
A Parent's Guide to Protecting Your Child From the Use of Restraint, Aversive Interventions, and Seclusion

A report with photos that are harrowing to see--but it's an important issue.
Dis-IT: Study of accessibility of elearning in colleges & universities
The eLearning research team of the Disability and Information Technologies (Dis-IT) Research Alliance is seeking research participants to complete an online survey about the the accessibility of eLearning to Canadian college and university students with disabilities. The researchers are interested in hearing from:

1. college and university students with disabilities who have taken courses using some form of eLearning

2. staff who provide disability-related services at Canadian postsecondary institutions

3. professors who have had students with disabilities in courses using eLearning

4. individuals who support/implement eLearning at Canadian universities and colleges

Gary Annable | Community Co-Director
Dis-IT: Disability and Information Technologies Research Alliance
Tel. (204) 947-0303 ext. 230
Website: http://www.dis-it.ca

For more information or to participate in this study send an email to

eLearning@Adaptech.org and indicate whether you are a student with a

disability, an individual who provides disability-related services, a

professor, or an individual who supports/implements eLearning on campus.

 


ODSP: Ontario Disability Support Plan
A Yahoo! Group that allows members to chat about ODSP issues:
http://groups.yahoo.com/group/firesidechat

The Google Group that has more detailed discussions about ODSP
topics:  http://groups.google.ca/group/odspfireside

________________________________________________________________________________________


BOOKS, WEBSITES AND OTHER RESOURCES

The Autism Awareness Centre
The Centre believes that education is the key to success in assisting individuals who have autism, Pervasive Developmental Disorder (PDD), Asperger Syndrome and other disorders such as Tourette Syndrome, Attention Deficit Hyperactivity Disorder (ADHD) and Attention Deficit Disorder (ADD). With numerous social, communication, and behavioral intervention methods and the more recent field of biomedical interventions, it is important to keep parents and professionals on the leading edge of new information. By hosting workshops across Canada and providing resource support both in Canada and abroad, the Autism Awareness Centre is committed to ensuring information reaches all communities. At the Autism Awareness Centre, we “believe in change”.
RESOURCE INFORMATION
The Autism Awareness Centre carries over 200 books and items that will enhance and support Autism Spectrum Disorder programs and therapies. The selection of resources is updated monthly with new titles on topics such as sensory integration, behavioural methods, biomedical interventions, communication, social skills, personal stories, adult issues and classroom inclusion. We also have information on Down Syndrome, Obsessive Compulsive Disorder (OCD), dyslexia, Nonverbal Learning Disability, Tourette Syndrome, and learning disabilities (LD). Books are available on-line.
Read reviews by Maureen Bennie of AAC:
A Thorn in My Pocket by Eustacia Cutler
How To Understand Autism the Easy Way by Alex Durig


Recent Books by Donna Williams
Everyday Heaven
Not Just Anything
The Jumbled Jigsaw: An Insider's Approach to the Treatment of Autistic Spectrum `Fruit Salads'

Visit Donna's whole website
including Donna Williams' Conversational Lectures on DVD

Autism Data
Autism Data is a database of references for over 17,000 published articles, books and videos on autism, including Asperger syndrome. The contents include bibliographic records of all the items in The National Autistic Society Information Centre Library in the UK, together with the details of research articles on autism published in journals which are not part of our holdings.
Autism Data is a database of references for over 17,000 published articles, books and videos on autism, including Asperger syndrome. The contents include bibliographic records of all the items in The National Autistic Society Information Centre Library, together with the details of research articles on autism published in journals which are not part of our holdings.
__________________________________________________________________________


FROM THE FRONT LINES: 

CALLING FOR HELP AND SHARING EXPERIENCES

News about adults with autism is usually negative. We receive many appeals for advice on where to turn for help--with diagnosis and assessment, advocacy, planning for the future, alternatives to approaches that are not working. There are virtually no obvious sources of help for isolated adults with autism and their caregivers.

We know that some adults and their families and caregivers are heroically using what resources they have to achieve some successes with their challenges. Some can report remarkable progress. We invite you, as an adult or caregiver living with autism, to share your perceptions, problems and success stories, if you think others might help or benefit.

If you wish, we will not print your name or email address. You may send a message to ebloomfi@uoguelph.ca for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing the Communication bar on our main page





{return to the OAARSN Bulletin Board}