ONTARIO ADULT AUTISM 
RESEARCH AND SUPPORT NETWORK 
NEWS BULLETIN
OAARSN offers a rich and expanding collection of up-to-date information and communication tools that can put you in touch with others. We can all benefit from the opportunities for mutual support, encouragement and information sharing. We hope that OAARSN's efforts to promote positive approaches and best practices in supporting adults with autism can help all who live and work on the front lines. Click on OAARSN's main page

See our archive of past OAARSN news bulletins.

Send news, announcements and comments to gbloomfi@uoguelph.ca We welcome news items, announcements of autism events, new information, discussion questions and comments, and accounts of experience. 

Please note that this service is for information and awareness. We cannot endorse or be held responsible for the validity of any information or the value of any therapy or service. 
 

 

NEWS BULLETIN

  23 August 2004


SPECIAL PROJECTS

Two ways to help Autism Society Ontario's initiatives to promote better supports for adults with ASD:

AUTISM SOCIETY ONTARIO’S ADULT YEARS RESOURCE MANUAL

Autism Society Ontario, in partnership with Surrey Place and The Geneva Centre, received a Trillium Foundation grant in 2002 to produce various resource manuals, among other objectives. Anne Wittich of Nepean, Ottawa is responsible for the Adult Years Resource Manual. This is a last call for contributions to make this manual as helpful as it can be. It is due to be printed in fall 2004.

1. Written pieces are invited from families and persons with autism for the sections called “Let’s Talk” that are intended to encourage and support others. These may be between five sentences and 200 words in length, and include strategies and tips that have helped you/your family. You could present the issue or challenges first (such as “Our daughter reached 21 and her options decreased…”). Then outline the ways that you coped, solved the problem or overcame the challenge. These are topics and examples on which contributions are still needed:

  • Employment Options: Success stories and strategies that helped
  • Sexuality: Helping a person with ASD to cope with changes during puberty; decreasing public masturbation; teaching about sexuality and relationships
  • Mental Health and ASD: Where do we get help when our child suffers from Obsessive Compulsive Disorder?
  • Safety in the Community: Positive experiences and initiatives in your community to increase collaboration with Emergency Services

Please respond to Anne Wittich anneasoo@magma.ca or 12 Remy Drive, Nepean, ON, K2J 1A3.  Please attach your name and contact information with your submission. However, these will be kept confidential unless you give specific permission to use your name.

2. Photographs of persons with ASD in various settings:

- recreational, group or individual
- vocational, place of work
- volunteer activity
- interacting with family
- interacting with a communication system
- interacting with friends
- involved in education, secondary or postsecondary

Photographs will be placed throughout the manual to illustrate the text. Names will not be attached to maintain confidentiality, but permission to use them is needed. Please post or email photos (noting if they need to be returned), to:
Anne Wittich anneasoo@magma.ca or 12 Remy Drive, Nepean, ON, K2J 1A3.


AUTISM SOCIETY ONTARIO’S ADULT SERVICES LISTING

Patricia Gallin of London has been contracted by the ASO to compile a listing of services for adults with ASD. Please email her at pgallin.aso@sympatico.ca with as much of the following information as possible:

  1. Adult service providers in your geographic region—with titles, addresses, phone numbers and emails of essential contacts
  2. Process for accessing these services
  3. How long the waiting list is for these services
  4. Number of people served by the program each year
  5. Nature of service provided, such as residential support, day programs, service co-ordination.

___________________________________________________________________________________________________


ISSUES AND ADVOCACY

We applaud the brief written by families of
Windsor-Essex Family Network this summer
"Best Practices: Windsor-Essex Adult System for Developmental Services" is a result of local restructuring efforts that began in 1996. Today it includes the principles of choice, person-directedness, respect, flexibility, accountability, portability, unencumbered planning, deep listening and citizenship. These principles are valued by many individuals and their families. Whenever we go beyond our county borders, we are told that our system is the envy of individuals and families throughout the province . We are very proud of what has been accomplished.
This brief has been sent to our local MPPs, Sandra Pupatello, Bruce Crozier and Dwight Duncan, as well as, the Deputy Minister, Kevin Costante of MCSS and our local Community MCSS Manager.
Best Wishes from the Resource Families of WEFN, Marleen Crawford, Michelle Friesen and Alison Ouellette
Click for full text

Windsor-Essex Family Network
is hosting a workshop on
September 28 and 29, in Windsor
MAKING CITIZENSHIP REAL: GAINING CONFIDENCE FOR THE JOURNEY
facilitated by Judith Snow and Martha Leary
See full details in flyer: Inside page
Outside page

____________________________________________________________________

ANNOUNCEMENTS OF EVENTS 

For previously announced events, opportunities and projects that are still current, please click on this link

Please send submissions for this news bulletin or for the OAARSN Calendar and Bulletin Board in plain text format by email to ebloomfi@uoguelph.ca with "announcement" at the beginning of the subject line.
Please provide details of the following as BRIEFLY as possible: 
 Name of Event
 Main Speakers and Topics of Event 
 Date of Event 
 City and Location of Event
 Contact information to learn more about event
 URL Link for more information/registration 

 Please Do Not Send Files Or Brochure Attachments

Only new announcements are listed here.


Kerry’s Place Autism Services
invites you to a

Half Day Workshop for Saturday, September 18, 2004, 10:00 a.m. to 1:15 p.m.

Nurturing Support Circles – The Key to Lifelong Safety, Security and Quality of Life

In the Columbus Room, The Columbus Centre, 901 Lawrence Avenue West, in Toronto (at Lawrence Ave. W. and Dufferin St). Lunch will follow.

Most people are con
vinced about the need to carry out Person Centred Planning but many are having problems in moving from planning to doing. We need to create ways of helping people do this. People need tools to help them plan, but even more, they need help to seek out or develop creative options, making choices and getting on with implementation.

The workshop will begin with a panel discussion of people who have a good knowledge of options, as well as sound experience of making things work. In this initial discussion panel members may touch on such issues as:
- developing and maintaining support circles
- use of trust relationships
- accommodation/living options
- microboards, home ownership, etc.
- keeping the planning/implementation/review process dynamic
- how to ensure that the relationship between the individual and others continues in the realm of support rather than care giving, irrespective of the challenges faced by him or her.

These issues will be discussed in relation to various scenarios by participants in smaller groups; and findings will be shared in a  plenary session at the end.

The workshop is planned to:
  • raise consciousness about the issues
  • give confidence that the challenges faced by many individuals  and their support circles can be dealt with successfully
  • leave people positively motivated to continue with the process of actualizing PCPs.
______________________________________________________________________________

November 18, 2004, 7-9pm, in Toronto

How to Complain Effectively 
Presented by Ombudsman Ontario. 
This interactive session will include:
  • learning skills to complain more effectively,
  • how Ombudsman Ontario can help solve problems with provincial services & learning how to make changes so others are treated fairly
When: Thursday November 18th 2004, 7:00 - 9:00 p.m.
Where: Bloorview MacMillan Children's Centre
  (MacMillan site @ 150 Kilgour Road)
Parking: regular parking rates apply at meters (there is heavy construction in area)
Cost: parents $5.00 and professionals $10.00
Childcare: NOT available
How to register: by phone (Pamela Kearns @ 416-425-6220, ext. 3310) or
e-mail (info@bloorviewmacmillan.ca)

___________________________________________________________________________________

AUTISM BOOKS AND OTHER RESOURCES

We welcome recommendations, reviews and notes.

_________________________________________________________________________________________________


FROM THE FRONT LINES: 

CALLING FOR HELP AND SHARING EXPERIENCES

News about adults with autism is usually negative. OAARSN receives many appeals for advice on where to turn for help--with diagnosis and assessment, advocacy, planning for the future, alternatives to approaches that are not working. There are virtually no obvious sources of help for isolated adults with autism and their caregivers.
We know that some adults and their families and caregivers are heroically using what resources they have to achieve some successes with their challenges. Some can report remarkable progress. We invite you, as an adult or caregiver living with autism, to share your problems and your success stories, if you think others might help or benefit.If you wish, we will not publish your name or email address. You may send a message to ebloomfi@uoguelph.ca for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing the Communication bar on our main page



 
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