ONTARIO ADULT AUTISM 
RESEARCH AND SUPPORT NETWORK 
NEWS BULLETIN
OAARSN offers a rich and expanding collection of up-to-date information and communication tools that can put you in touch with others. We can all benefit from the opportunities for mutual support, encouragement and information sharing. We hope that OAARSN's efforts to promote positive approaches and best practices in supporting adults with autism can help all who live and work on the front lines. Click on OAARSN's main page

See our archive of past OAARSN news bulletins.

Send news, announcements and comments to gbloomfi@uoguelph.ca We welcome news items, announcements of autism events, new information, discussion questions and comments, and accounts of experience. 

Please note that this service is for information and awareness. We cannot endorse or be held responsible for the validity of any information or the value of any therapy or service. 
 

 
NEWS BULLETIN
  25 June 2004


HOW WE COULD IMPROVE SUPPORTS FOR ADULTS NOW

The end of another school year…
Students with ASD are leaving school to enter the adult world.
Some may have good supports.
Many may not.

OAARSN is particularly dedicated to increasing awareness of the needs and abilities of adults with autism spectrum disorders. These are some ideas sparked by the workshop, sponsored by Autism Society Ontario in Guelph on May 5, that focused on effective ways of supporting adults. Led by Dr John Lord, participants in the 2004 workshop agreed on four assumptions about autism spectrum disorder and ten major needs of adults with ASD.

When asked how the lives of adults with autism could be better, people are inclined to say “more funding.” Of course, people who are vulnerable because of their autism need more resources. But, even more, they need the best ideas and attitudes--a willingness by their families, friends and supporters to think creatively. Without these, all the money in the world still might not be effective.

Adult Priorities 2004 has a note about what's happening now, some suggestions of creative approaches, and a table of strategies  that relate the four assumptions to the ten major categories of need.

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General Autism News

ASA Leaders Brief Congressmen about Need for Transition Supports
The briefing, hosted by the Congressional Coalition on Autism Research and Education (CARE), is entitled "Adults with Autism: The Looming Challenges" There will be presentations by experts who assist adults with autism in accessing postsecondary education, vocational training, integrated employment, healthcare, independent living and community integration.

More adult caregivers needed
Stories illustrating the estimated 707,000 in the United States in which parents 60 and older are caring for children with developmental disabilities. Right behind them doing the same are another 977,000 households in which parents are between the ages of 41 and 59.

12 Autism Task Force Reports For Review in Pennsylvania

Investigating Links Between Autism And the Environment
This article is one of 12 about autism research connected to the University of Medicine and Dentistry of New Jersey in their publication UMDNJ Research.

Success of Medical Treatment for Autism
A network, headed by Harvard Medical School's Massachusetts General Hospital for Children, will gather information from thousands of autistic children to develop ways of treating their physical ills. The network includes Columbia University Medical School, Baylor College of Medicine,Oregon Health & Science University and the University of Washington.

Jamie is a challenge, but so is every child
A personal experience story from Scotland.

Being autistic is like moving house every day of your life
How a family with two autistic children decided to move from Clacton, Eseex, to Shetland in the far north of Scotland. The story behnd a BBC program Safe as Houses. [Need to register--free].

"Lizzi is such a great help to me"
A great sibling story from Lincolnshire, England.


Canadian News

Ombudsman Ontario's Report of Investigation into Waiting Lists and Service Delays in the Ministry of Children and Youth Services, Intensive Early Intervention Program for Children with Autism (2004)


ARCH ALERT, 18 June 2004
ARCH is a legal resource centre for persons with disabilities

See page 7: Autism Litigation for IBI, and page 8: Autism Parenting Means Litigating?


Linking Research with Practice: Charting a Canadian Strategy
for Early Intervention in Autism:
Review of 2004 Conference of the Canadian Autism Intervention Research Network (CAIRN).
Click for a compilation of all the information presented at this conference, from the
At-a-glance Summary to the full Conference Report and including presentations by keynote speaker Dr. Carol Crill Russell and province-by-province overviews of what’s happening on the research and policy front.


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ANNOUNCEMENTS OF EVENTS
See details of more events on OAARSN Bulletin Board and Calendar, and our archive of past OAARSN news bulletins.

Please send submissions for this news bulletin or for the OAARSN Calendar and Bulletin Board in plain text format by email to ebloomfi@uoguelph.ca with "announcement" at the beginning of the subject line.
Please provide details of the following as BRIEFLY as possible: 
 Name of Event
 Main Speakers and Topics of Event 
 Date of Event 
 City and Location of Event /
 Contact information to learn more about event 
 Please Do Not Send Files Or Brochure Attachments


Monday, June 28th, 2004, 7:00-9:00 p.m. in Guelph
Regular meeting of Wellington Chapter of Autism Society Ontario in the Community Room upstairs at Zehrs Imperial/Paisley. A chance to meet the New Executive for 2004/2005.and to discuss the ASO - Annual General Meeting that was held in Windsor June 18th & 19th.



July 24, 2004, in
Toronto
Autism Canada Foundation presents:
Biomedical Interventions for Autism
The most advanced information for Physicians and Parents on Autism Biomedical Treatments

Morning - 9:30 a.m to 12:00 p.m.
The Gut/Brain/Diet Connection and The Specific Carbohydrate Diet
by Canadian Researcher and
Author Elaine Gottschall, B.A., MSc.
Afternoon - 1:00p.m.  – 4:30 p.m.
“State of the Art” Biological Recovery Strategies for Autism
by autism specialist Jeff Bradstreet, M.D. FAAFP
Alumni Hall Room 100, 121 St. Joseph Street, St. Michael’s College, University of Toronto  
$85.00 per person Payment by PAYPAL, Cheque (prior to July 4th), or Faxed Visa Form
Registration form available at www.autismcanada.org
$100.00 Cash at door (space permitting)
$3.00 surcharge will apply to creditcard and PAYPAL payments.
For info call:  Cynthia @ 905-331-4480  Fax: 905-331-4662


July 26, 2004
,
in Collingwood Public Library
Shirley Sutton presents on
Make ‘n Take Fine Motor Fun, Cognitive Tasks

Contact:  Martha Sutton  705-445-8069 sutt1850@wlu.ca



Sunday, August 22, 2004

Cambridge Chapter of Autism Society Ontario announces
its first annual golf tournament in support of individuals with autism and their families.
This dedicated group of volunteers supplies information, provides parent support, and advocates for programs and services to benefit the local autism community.

Grand Valley Golf & Country Club
1910 Roseville Rd, RR#2,
Cambridge ON N1R 5S3 
(519) 623-8811
Shotgun start at 7:30 am, registration begins at 7am. Best ball format.

Fee of $75 per person includes 18 holes of golf, a power cart, buffet luncheon and a $20 charitable tax receipt.
Please make cheque payable to “Autism Society Ontario –
Cambridge Chapter” and mail to 160 Hespeler Road,
Cambridge, ON N1R 6V7 no later than Friday July 30, 2004.  We are limited to 144 golfers so please register early.

For more information: Barry at (519) 621-5501 all5ames@globalserve.net



Sept 13  2004
, in Barrie
Shirley Sutton presents on
Visual-Kinesthetic Printing  Skills: Preparing for Kindergarten and Primary level

Contact : Achimota Centre for Children with Autism (ACCA) Barrie 705-735-2336. achimota@vianet.on.ca

 


*Oct 1/ 2, 2004, in Ottawa
Shirley Sutton presents on
Sensory Strategies,  Oral and Fine Motor Fun Make & Take.

Contact: Children at Risk Ottawa On  carsup@magma.ca



Oct 15, 2004, in Waterloo

Shirley Sutton presents on
Sensory Strategies Make’n Take

Contact : Sue Wahl. Waterloo  sue@toy.com

 

Oct 17-18, in Hamilton
Canadian National Committee for Police/Mental Health Liaison

3rd Annual Police/Mental Health Conference to be held in Hamilton in October 2004
COAST (Crisis Outreach and Support Team) and the Hamilton Police Service will be hosting the 3rd Annual Psychiatrists in Blue conference this year. The dates are set for October 17-18, at the Hamilton Convention Centre … and the line-up is exciting.This year’s theme is “Things that Work,” and thus it seems only fitting to feature the Memphis (Tenn) Police Department’s Crisis Intervention Team (CIT)- generally known simply as “the Memphis Model.”   The Crisis Intervention Team is a specialized program that unites law enforcement officers, family members, providers and consumers for common goals within community partnerships.  Its multi-disciplinary approach to mental illness issues emphasizes specific objectives including: Safety (Immediate Response)Pre-jail Diversion, Understanding, Education. For more information and details about the both the 2004 Hamilton Conference as well as about the National Committee, check website at http://www.pmhl.ca



Oct. 22, in
Victoria BC.

Shirley Sutton presents on
Making Sense of Sensory Integration

Contact: Autism Awareness Centre Inc. wendy.casdc@shaw.ca

 


Nov. 6, 2004
, in York Region

Shirley Sutton presents on
Sensory Oral and Fine Motor Fun Make’n Take

Contact:  Autism Society Ontario- York Region. Lynda asoyork@axxent.ca


Geneva Centre International Symposium
is scheduled for November 10, 11, 12, 2004 at the Metro Toronto Convention Centre.

The Symposium 2004 brochure has been mailed out and is also available on our website.
This year you have the option to register on-line at www.autism.net

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HELPFUL RESOURCES

Support Group started for Users of Facilitated Communicating in Southern Ontario
Six men who have used FC for up to 13 years have begun meeting, with their FC supporters and friends. Their conversations together are very powerful and moving. Before this meeting, three of the men had not known that anyone else in the world used FC. One man is just graduating from high school; he has been permitted to use FC through his high school years. If you or someone you care about uses FC, or could benefit from this form of augmentative/alternative communication, please contact OAARSN and we'll put you in touch.


NLD Parent Networking Group of Ontario, Kitchener-Waterloo, Ontario
Supportive forum in which to share experiences, ideas and information surrounding the joys and challenges of parenting an NLD child. We are an enthusiastic, committed group of parents working towards increasing public knowledge about this relatively new diagnosis. Educating the educators is also a priority with our group members.
Contact:  Cheryl Pidgeon at ccpidgeon@sympatico.ca

Special Services at Home Provincial Coalition
Please note the website updated in June 2004 and the
new Bill of Rights for families who use SSAH.


DOOR 2 Adulthood website prototype launched

An interactive site for Disability Ontario Online Resources, with this message: 
"We need feedback from youth, families and service providers about how the website works. We need to know what you like, what you don't like and what you want us to change."

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FROM THE FRONT LINES: 

CALLING FOR HELP AND SHARING EXPERIENCES

News about adults with autism is usually negative. OAARSN receives many appeals for advice on where to turn for help--with diagnosis and assessment, advocacy, planning for the future, alternatives to approaches that are not working. There are virtually no obvious sources of help for isolated adults with autism and their caregivers.
We know that some adults and their families and caregivers are heroically using what resources they have to achieve some successes with their challenges. Some can report remarkable progress. We invite you, as an adult or caregiver living with autism, to share your problems and your success stories, if you think others might help or benefit.If you wish, we will not publish your name or email address. You may send a message to ebloomfi@uoguelph.ca for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing the Communication bar on our main page



 
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