ONTARIO ADULT AUTISM 
RESEARCH AND SUPPORT NETWORK 
NEWS BULLETIN
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Please note that this service is for information and awareness. We cannot endorse or be held responsible for the validity of any information or the value of any therapy or service. 
 

 
NEWS BULLETIN
  17 June 2004

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Canadian News

Ombudsman Ontario's Report of Investigation into Waiting Lists and Service Delays in the Ministry of Children and Youth Services, Intensive Early Intervention Program for Children with Autism (2004)


Auton Case in Supreme Court

Summary of proceedings on 9 June 2004, by Lise Simmermon, president, Autism Society Canada. The first 4 hours of the 5-hour Auton case at the Supreme Court of Canada will be airing on CPAC’s Jurisprudence program on Saturday morning June 19, 8 am – 12 noon ET, and repeated June 20 from 1 am – 5 am ET, and then the fifth hour will be aired the following week on June 26 8 – 9 am ET, and repeated June 27 from 1-2 am.

Michelle Dawson, an autistic adult who has intervener status in the Auton case, reflects on the Supreme Court hearing in "THE MANY VARIETIES OF BEING WRITTEN OFF : An Argument About Autism As Catastrophe."

Autism treatment costs argued at Supreme Court
Allowing judges to order costly treatment for autistic children will destroy the ability of provinces to run their health-care systems, a procession of lawyers from seven provinces and the federal government has warned the Supreme Court of Canada. Here is a sampling of print media stories on the recent Supreme Court of Canada court case on medically necessary autism treatment.

Globe and Mail, Saturday, June 5th- And Coverage For All
http://www.globeandmail.ca/servlet/ArticleNews/TPStory/LAC/20040605/COURT05//?query=autism

Globe and Mail, Thursday, June 10th - Page A10 Fighting autism too costly, top court told
http://www.globeandmail.ca/servlet/ArticleNews/TPStory/LAC/20040610/SUPREME10//?query=autism

Canadian Press Sunday, June 06, 2004- Case before Supreme Court could result in end of single tier health care
http://www.canada.com/health/story.html?id=6EF140D9-6740-42F7-A84E-ABCFFE3B1152

cnews Sunday, June 06, 2004- Medicare case before Supreme Court
http://cnews.canoe.ca/CNEWS/Law/2004/06/06/488676-cp.html

Calgary Sun Mon, June 7, 2004- Medicare courts changes
http://www.canoe.ca/NewsStand/CalgarySun/News/2004/06/07/489057.html

London Free Press Mon, June 7, 2004- Cases might change face of medicare
http://www.canoe.ca/NewsStand/LondonFreePress/News/2004/06/07/488859.html

National Post Saturday, June 12, 2004- Timely access to health care critical
http://www.canada.com/national/nationalpost/news/story.html?id=ff71f3be-3de7-4c6f-af08-caa751b5f81b

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HELPFUL RESOURCES

Support Group started for Users of Facilitated Communicating in Southern Ontario
Six men who have used FC for up to 13 years have begun meeting, with their FC supporters and friends. Their conversations together are very powerful and moving. Before this meeting, three of the men had not known that anyone else in the world used FC. One man is just graduating
from high school; he has been permitted to use FC through his high school years.
If you or someone you care about uses FC, or could benefit from this form of augmentative/alternative communication, please contact OAARSN and we'll put you in touch.

Autism Spectrum by Future Horizons
June 2004 issue online.

Journal of Emergency Medical Services, June 2004, includes:
"Understanding Autism: How to Appropriately & Safely Approach, Assess & Manage Autistic Patients"
Read this article


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ANNOUNCEMENTS OF EVENTS
See details of more events on OAARSN Bulletin Board and Calendar, and our archive of past OAARSN news bulletins.

Please send submissions for this news bulletin or for the OAARSN Calendar and Bulletin Board in plain text format by email to ebloomfi@uoguelph.ca with "announcement" at the beginning of the subject line.
Please provide details of the following as BRIEFLY as possible: 
 Name of Event
 Main Speakers and Topics of Event 
 Date of Event 
 City and Location of Event /
 Contact information to learn more about event 
 Please Do Not Send Files Or Brochure Attachments


Important meetings, at this end of the week, are going on at opposite ends of Ontario, while on Sunday Toronto will see a march to celebrate people with disabilities.

In North Bay, the
Developmental Disabilities Program presents
ACCEPTANCE: DIGNITY, EQUALITY & FREEDOM CONFERENCE
June 17 and 18, at Clarion Resort, Pinewood Park 
Speakers include:
Dr. Bob King -Medical Director and Consultant Psychiatrist to the Developmental Disabilities Program (DDP) of the North Bay Psychiatric Hosipital (NBPH). 
Dr. Paul Eshleman- Consultant Psychiatrist with the DDP of the NBPH.
Garry Fay- Manager of the DDP of the NBPH
Diane Dupuy- Founder of the Famous People Players Theatre
Martina Getz- L'Arche North Bay
Dr. Duncan McKinlay - who has Tourette Syndrome and is committed to improving the quality of life in people with Tourette's and a variety of other disorders
Lunne Marwick and the Project SARAH Working Group
Kevin Donovan - Investigative reporter with the Toronto Star, wrote a series of stories describing numerous cases of abuse suffered by people with developmental disabilities
Steven Tenant- Social Worker and Past chair of the Adult Protective Service Association of Ontario
Minna Mettinen- An educator and advocate who lives with Autism in Northern Ontario


In Windsor:
Friday, June 18, Saturday, June 19, 2004,
Annual Autism Spectrum Disorders Conference and 2003/04 ASO Annual General Meeting,
Speakers include Margaret L. Bauman, MD, Associate Clinical Professor of Neurology, Harvard Medical School and Associate Pediatrician and Assistant Neurologist, Massachusetts General Hospital, and Leslie Broun, ASO Board Member & Consultant - Curriculum, Instruction and Special Education Support Services, Peel District School Board. Registration is required.
Autism Society Ontario will be presenting its first Stacy Lynne McNeice Memorial Lecture Award to Dr Margaret Bauman who is Pediatric Neurologist, at MassGeneral Hospital, the Director of The Autism Research Foundation and LADDERS Clinic, and an Associate Professor of Neurology at Harvard Medical School. Dr Bauman will also be guest speaker for a workshop that day. Check the  ASO website for conference details and registration information.

In Toronto: Sunday, June 20, 2004: 
POST-SECONDARY STUDENTS WITH DISABILITIES ORGANIZE A CELEBRATORY MARCH FOR PEOPLE WITH DISABILITIES
Toronto's first annual "Simply People: Celebrating Our Lives and Our Identities"
The march from Dundas Square to Nathan Phillips Square, followed by speakers and performances. For more information, contact: Julia Munk, VP (Equity), Students' Administrative Council, University of Toronto

July 24, 2004, in
Toronto
Autism Canada Foundation presents:
Biomedical Interventions for Autism
The most advanced information for Physicians and Parents on Autism Biomedical Treatments

Morning - 9:30 a.m to 12:00 p.m.
The Gut/Brain/Diet Connection and The Specific Carbohydrate Diet
by Canadian Researcher and
Author Elaine Gottschall, B.A., MSc.
Afternoon - 1:00p.m.  – 4:30 p.m.
“State of the Art” Biological Recovery Strategies for Autism
by autism specialist Jeff Bradstreet, M.D. FAAFP
Alumni Hall Room 100, 121 St. Joseph Street, St. Michael’s College, University of Toronto  
$85.00 per person Payment by PAYPAL, Cheque (prior to July 4th), or Faxed Visa Form
Registration form available at www.autismcanada.org
$100.00 Cash at door (space permitting)
$3.00 surcharge will apply to creditcard and PAYPAL payments.
For info call:  Cynthia @ 905-331-4480  Fax: 905-331-4662

Canadian National Committee for Police/Mental Health Liaison
3rd Annual Police/Mental Health Conference to be held in Hamilton in October 2004
COAST (Crisis Outreach and Support Team) and the Hamilton Police Service will be hosting the 3rd Annual Psychiatrists in Blue conference this year. The dates are set for October 17-18, at the Hamilton Convention Centre … and the line-up is exciting.This year’s theme is “Things that Work,” and thus it seems only fitting to feature the Memphis (Tenn) Police Department’s Crisis Intervention Team (CIT)- generally known simply as “the Memphis Model.”   The Crisis Intervention Team is a specialized program that unites law enforcement officers, family members, providers and consumers for common goals within community partnerships.  Its multi-disciplinary approach to mental illness issues emphasizes specific objectives including: Safety (Immediate Response)Pre-jail Diversion, Understanding, Education. For more information and details about the both the 2004 Hamilton Conference as well as about the National Committee, check website at http://www.pmhl.ca

Geneva Centre International Symposium
is scheduled for November 10, 11, 12, 2004 at the Metro Toronto Convention Centre.

The Symposium 2004 brochure has been mailed out and is also available on our website.
This year you have the option to register on-line at www.autism.net

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WEBSITES

Special Services at Home Provincial Coalition
Please note the website updated in June 2004 and the
new Bill of Rights for families who use SSAH.

DOOR 2 Adulthood website prototype launched
An interactive site for Disability Ontario Online Resources, with this message: 
"We need feedback from youth, families and service providers about how the website works. We need to know what you like, what you don't like and what you want us to change."

SpecialNeedsEquipmentExchange
A web site devoted to Recycling of used durable medical equipment by either Selling, Trading, or Giving away the items
Selling and or trading of unused disposable medical supplies
Honest and fair treatment of all
The rules are:
"Do to others as you would have them do to you."
"Give, and it will be given to you. A good measure, pressed down, shaken
together and running over, will be poured into your lap. For with the
measure you use, it will be measured to you."
OFFER: if you've got something to give
TAKEN: if the item you offered is gone or no longer available.
WANTED: if you're looking for something
HELP: if you need help with the anything
Then add: describe the item being offered, taken etc.
Location: in the message is helpful too !
Example subject line: OFFER: free diapers , buyer pays shipping , wa state
Recommended by jypsy of
Ooops....Wrong Planet! Syndrome
Autism Spectrum Resources at www.PlanetAutism.com


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FROM THE FRONT LINES: 
CALLING FOR HELP AND SHARING EXPERIENCES

News about adults with autism is usually negative. OAARSN receives many appeals for advice on where to turn for help--with diagnosis and assessment, advocacy, planning for the future, alternatives to approaches that are not working. There are virtually no obvious sources of help for isolated adults with autism and their caregivers.
We know that some adults and their families and caregivers are heroically using what resources they have to achieve some successes with their challenges. Some can report remarkable progress. We invite you, as an adult or caregiver living with autism, to share your problems and your success stories, if you think others might help or benefit.If you wish, we will not publish your name or email address. You may send a message to ebloomfi@uoguelph.ca for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing the Communication bar on our main page



 
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