ONTARIO ADULT AUTISM 
RESEARCH AND SUPPORT NETWORK 
NEWS BULLETIN
OAARSN offers a rich and expanding collection of up-to-date information and communication tools that can put you in touch with others. We can all benefit from the opportunities for mutual support, encouragement and information sharing. We hope that OAARSN's efforts to promote positive approaches and best practices in supporting adults with autism can help all who live and work on the front lines. Click on OAARSN's main page

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Send news, announcements and comments to gbloomfi@uoguelph.ca We welcome news items, announcements of autism events, new information, discussion questions and comments, and accounts of experience. 

Please note that this service is for information and awareness. We cannot endorse or be held responsible for the validity of any information or the value of any therapy or service. 
 

 
NEWS BULLETIN
  12 June 2004

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ISSUES AND ADVOCACY

Canada Votes 2004 --
--and so can all our adults aged 18 and over!

Call Elections Canada at 1 800 463 6868 to find the local number for your region
 
John Toft of Ottawa shares his research on how our adults with autism can be supported to exercise their citizenship rights. He  contacted Elections Canada by phone to ask what the specific procedures are for helping developmentally handicapped adults vote. There is no short answer.
1. If the adult is ill or physically unable to go to the polling station, then the vote may be cast by a special ballot. For this you have to contact the Returning Officer for the particular Riding as soon as possible.
2. For developmentally handicapped residents in group homes, you may contact the Returning Officer and arrange for a mobile ballot to be set up at the group home, a similar process to that at Retirement Residences.
3. For those unable to read or with reading difficulties, the Deputy Returning Officer, in the presence of the Polling Clerk can assist in the voting process.

4. A friend, relative, spouse or common law spouse may accompany the developmentally handicapped adult to the voting compartment after that
friend etc. has sworn an oath about the person and their handicap.
5. If the developmentally handicapped adult is not on the voting register, you can still get that person included by contacting the Returning Officer for the Riding and visiting that officer in person with certain I.D. items. Contact the Returning Officer to see exactly what is needed.
Elections Canada will provide contact phone numbers and addresses of Returning Officers. You can also identify the Polling Station and Riding through that contact.
Find more information on Elections Canada website: http://www.elections.ca

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In this federal election,
VOTE FOR THE CANADA YOU WANT
For a discussion of various important issues, which does not endorse particular parties, check out the website of the Council for Canadians at http://www.canadians.org

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Federal Election 2004:
What the Party Platforms Say on Disability

Thanks to the Canadian Association for this brief summary of what party platforms are saying about disability. Click for a summary of the disability-related policies of the four largest parties

CACL encourages everyone who lives with disability to effectively engage in the 2004 election. CACL is interested in knowing what is happening in your community and what candidates are saying across the country.  Please take the time to fill us in on the interactions you have had with candidates in your ridings. For more information please contact Anna MacQuarrie – amacquarrie@cacl.ca/ 416-661-9611

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Vote Now! Disability Savings Plan

Sign the Petition and make it an election priority

The Disability Savings Plan would provide a flexible savings vehicle with a tax incentive that encourages families to make financial contributions during their lifetimes, without penalty by provincial programs.  The Disability Savings Plan will assist us to utilize our financial resources to secure a good life for ourselves and/or our relatives with a disability – now and in the future.  It will provide recognition for our contributions – a tax deferment – and provide a mechanism to help, without jeopardizing provincial disability benefits.
Click for full announcement

Let’s build on the momentum from the Throne Speech and rally families across Canada

Let’s encourage Prime Minister Martin as well as all other candidates in the federal election to support the Disability Savings Plan.

Let’s secure the endorsement of each federal party now!


Get more information and sign up for updates at http://www.plan.ca or contact Jack Styan at jstyan@plan.ca

PLAN Institute for Citizenship & Disability
Suite 260 - 3665 Kingsway
Vancouver, BC
V5R 5W2
Tel:  604-439-9566
Fax: 604-439-7001
www.plan.ca

BUT NOTE OTHER POINTS OF VIEW
Some caution against pressing this petition in isolation, lest Government and the general public think it's all that's needed:

A parent who is also a lawyer:
"This is a slippery slope that eliminates state responsibility and will undermine efforts to improve support schemes like the ODSP. It appears to be a conservative self-reliant middle class approach in an environment where everyone lacks confidence in all government action and are reduced to self-help strategies."

Stan Woronko of Family Alliance Ontario:
"I think it would be a grave mistake to lobby for this in isolation. We need to lobby for the big picture first, for equality, dignity, citizenship, compassion, and participation. If this petition is interpreted by government as the main solution, then we're in trouble."

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AUTISM IN THE NEWS

Canadian News

Autism treatment costs argued at Supreme Court
Allowing judges to order costly treatment for autistic children will destroy the ability of provinces to run their health-care systems, a procession of lawyers from seven provinces and the federal government has warned the Supreme Court of Canada.
A background story by the Globe and Mail's justice reporter.

Autism Society Canada press release announcing publication of White Paper
Participants in a workshop in October 2003 are reported to have "discussed overarching research priorities" and agreed on a "clear research priority of improving outcomes for people with Autism Spectrum Disorders." The White Paper continues: "Currently, better outcomes are associated with intensive early intervention which requires research in order to improve early screening, diagnostics and assessments. Such research should include refining psycho-social markers and finding additional biomedical (genetic and/or other) markers and their relationship to possible aetiologies (causes). However, this research should be coupled with the development of best treatment practices that make use of psycho-social and biomedical markers in designing treatment, including the development of improved life-span treatment models. Such integrated health services need to be designed to include individual and family support and take into account individual and family differences" (pp.14-15).
Click for text of ASC White Paper on Research Priorities for ASD in Canada
Critique of ASC's process of defining research priorities by
Michelle Dawson

General Autism News

The Autism Puzzle
News of a BBC documentary surveying 40 years of the disorder, since the formation of National Autistic Society (UK) in 1962, and the founding of the first school in the world for autistic children in 1965.


More clues to autism's origin

Story about findings of research led by Dr Martha R. Herbert, a pediatric neurologist at Massachusetts General Hospital and Harvard Medical School in Boston. Her report appears in the April issue of the Annals of Neurology.

Advances in Diagnosis And Treatment Of Autism, Alzheimer's, Epilepsy... 
The world's leading neuroscience and radiology experts today shared new research and technological developments in medical imaging that facilitate diagnosis and breakthrough treatments

Finland's Health Paradox

Did a National Vaccination Campaign Compromise Health?
By Dr. F. Edward Yazbak. Part of the Vaccines: an Online Conference series.

New Columbia study proves IOM wrong on vaccines


Zinc boosts pneumonia recovery
Zinc supplements reduce the duration of illness and length of hospital stay in children with pneumonia, according to the results of a randomized trial published in the May 22 issue of The Lancet.


Beyond Guilt or Innocence
by
Dennis Debbaudt
"Beyond guilt or innocence, when a child or adolescent with an autism spectrum disorder has contact with criminal justice system professionals, measures will need to be taken to avoid misinterpreting behaviors and characteristics typical of those with autism, as evidence of guilt, indifference or lack of remorse."

An article in Leadership Perspectives in Developmental Disability, Vol 4, Issue (Spring 2004)

The truth is, I am exhausting to live with
For The Guardian, Nicholas Barrow reflects on the fury and fixation of living with Asperger's

Teaching autistic teenagers to seek help when lost


Autism Task Force formed in Ohio
To combat the lack of services to families in the region, the Ohio General Assembly has formed an Autism Task Force. Chairman of the committee, Jon Peterson, who has a daughter with autism, says, "I want Ohio to create a national model for the delivery of services to children and adults with autism."

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ANNOUNCEMENTS OF EVENTS
See details of more events on OAARSN Bulletin Board and Calendar, and our archive of past OAARSN news bulletins.

Please send submissions for this news bulletin or for the OAARSN Calendar and Bulletin Board in plain text format by email to ebloomfi@uoguelph.ca with "announcement" at the beginning of the subject line.
Please provide details of the following as BRIEFLY as possible: 
 Name of Event
 Main Speakers and Topics of Event 
 Date of Event 
 City and Location of Event /
 Contact information to learn more about event 
 Please Do Not Send Files Or Brochure Attachments


June 13 from noon-5pm
, in Toronto

Asperger Awareness Day at the Rex on Queen
A great day of fabulous music (Jazz, Blues and Gospel), silent auction and most importantly Asperger awareness and community support. Please pass this notice on to everyone and anyone you can. The more that know the better.  If anyone has questions about the day, feel free to contact me by return email. As well, if anyone would like to donate merchandise or services to the silent auction or knows of businesses that we could contact for the same, please let me know.  Your support as always is greatly appreciated.
Click for publicity  Contact: 
Margot Nelles, President & CEO, Visit Aspergers Society of Ontario website or phone 416.651.4037

Friday, June 18, Saturday, June 19, 2004, in Windsor
Annual Autism Spectrum Disorders Conference and 2003/04 ASO Annual General Meeting,
Speakers include Margaret L. Bauman, MD, Associate Clinical Professor of Neurology, Harvard Medical School and Associate Pediatrician and Assistant Neurologist, Massachusetts General Hospital, and Leslie Broun, ASO Board Member & Consultant - Curriculum, Instruction and Special Education Support Services, Peel District School Board. Registration is required.
Autism Society Ontario will be presenting its first Stacy Lynne McNeice Memorial Lecture Award to Dr Margaret Bauman who is Pediatric Neurologist, at MassGeneral Hospital, the Director of The Autism Research Foundation and LADDERS Clinic, and an Associate Professor of Neurology at Harvard Medical School. Dr Bauman will also be guest speaker for a workshop that day. Check the  ASO website for conference details and registration information.


Sunday, June 20, 2004, in Toronto
POST-SECONDARY STUDENTS WITH DISABILITIES ORGANIZE A CELEBRATORY MARCH FOR PEOPLE WITH DISABILITIES
Toronto's first annual "Simply People: Celebrating Our Lives and Our Identities"
The march from Dundas Square to Nathan Phillips Square, followed by speakers and performances. For more information, contact: Julia Munk, VP (Equity), Students' Administrative Council, University of Toronto

July 24, 2004, in
Toronto
Autism Canada Foundation presents:
Biomedical Interventions for Autism
The most advanced information for Physicians and Parents on Autism Biomedical Treatments

Morning - 9:30 a.m to 12:00 p.m.
The Gut/Brain/Diet Connection and The Specific Carbohydrate Diet
by Canadian Researcher and
Author Elaine Gottschall, B.A., MSc.
Afternoon - 1:00p.m.  – 4:30 p.m.
“State of the Art” Biological Recovery Strategies for Autism
by autism specialist Jeff Bradstreet, M.D. FAAFP
Alumni Hall Room 100, 121 St. Joseph Street, St. Michael’s College, University of Toronto  
$85.00 per person Payment by PAYPAL, Cheque (prior to July 4th), or Faxed Visa Form
Registration form available at www.autismcanada.org
$100.00 Cash at door (space permitting)
$3.00 surcharge will apply to creditcard and PAYPAL payments.
For info call:  Cynthia @ 905-331-4480  Fax: 905-331-4662

Canadian National Committee for Police/Mental Health Liaison
3rd Annual Police/Mental Health Conference to be held in Hamilton in October
COAST (Crisis Outreach and Support Team) and the Hamilton Police Service will be hosting the 3rd Annual Psychiatrists in Blue conference this year. The dates are set for October 17-18, at the Hamilton Convention Centre … and the line-up is exciting.This year’s theme is “Things that Work,” and thus it seems only fitting to feature the Memphis (Tenn) Police Department’s Crisis Intervention Team (CIT)- generally known simply as “the Memphis Model.”   The Crisis Intervention Team is a specialized program that unites law enforcement officers, family members, providers and consumers for common goals within community partnerships.  Its multi-disciplinary approach to mental illness issues emphasizes specific objectives including: Safety (Immediate Response)Pre-jail Diversion, Understanding, Education. For more information and details about the both the 2004 Hamilton Conference as well as about the National Committee, check website at http://www.pmhl.ca

Geneva Centre International Symposium
is scheduled for November 10, 11, 12, 2004 at the Metro Toronto Convention Centre.

The Symposium 2004 brochure has been mailed out and is also available on our website.
This year you have the option to register on-line at www.autism.net

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WEBSITES

Special Services at Home Provincial Coalition
Please note the website updated in June 2004 and the
new Bill of Rights for families who use SSAH.

DOOR 2 Adulthood website prototype launched
An interactive site for Disability Ontario Online Resources, with this message
"We need feedback from youth, families and service providers about how the website works. We need to know what you like, what you don't like and what you want us to change."

 
SpecialNeedsEquipmentExchange
A web site devoted to Recycling of used durable medical equipment by either Selling, Trading, or Giving away the items
Selling and or trading of unused disposable medical supplies
Honest and fair treatment of all
The rules are:
"Do to others as you would have them do to you."
"Give, and it will be given to you. A good measure, pressed down, shaken
together and running over, will be poured into your lap. For with the
measure you use, it will be measured to you."
OFFER: if you've got something to give
TAKEN: if the item you offered is gone or no longer available.
WANTED: if you're looking for something
HELP: if you need help with the anything
Then add: describe the item being offered, taken etc.
Location: in the message is helpful too !
Example subject line: OFFER: free diapers , buyer pays shipping , wa state
Recommended by jypsy of
Ooops....Wrong Planet! Syndrome
Autism Spectrum Resources at www.PlanetAutism.com


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FROM THE FRONT LINES: 
CALLING FOR HELP AND SHARING EXPERIENCES

News about adults with autism is usually negative. OAARSN receives many appeals for advice on where to turn for help--with diagnosis and assessment, advocacy, planning for the future, alternatives to approaches that are not working. There are virtually no obvious sources of help for isolated adults with autism and their caregivers.
We know that some adults and their families and caregivers are heroically using what resources they have to achieve some successes with their challenges. Some can report remarkable progress. We invite you, as an adult or caregiver living with autism, to share your problems and your success stories, if you think others might help or benefit.If you wish, we will not publish your name or email address. You may send a message to ebloomfi@uoguelph.ca for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing the Communication bar on our main page 


 
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