ONTARIO ADULT AUTISM 
RESEARCH AND SUPPORT NETWORK 
NEWS BULLETIN
OAARSN offers a rich and expanding collection of up-to-date information and communication tools that can put you in touch with others. We can all benefit from the opportunities for mutual support, encouragement and information sharing. We hope that OAARSN's efforts to promote positive approaches and best practices in supporting adults with autism can help all who live and work on the front lines. Click on OAARSN's main page

See our archive of past OAARSN news bulletins.

Send news, announcements and comments to gbloomfi@uoguelph.ca We welcome news items, announcements of autism events, new information, discussion questions and comments, and accounts of experience. 

Please note that this service is for information and awareness. We cannot endorse or be held responsible for the validity of any information or the value of any therapy or service. 
 

 
NEWS BULLETIN
30 March 2004

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THIS WEEK IN GUELPH

April 1-3, 2004, at the University of Guelph 
(two evening performances and a matinee)
"The Guelph Project," presented by the Wellness Centre, the Drama Students Federation and Citizenship Education, is a collection of one-act plays and monologues written by students and staff of the University. 
One play depicts the community experience of an adult with autism. 
Tickets are $5 and $3 for high school students with valid I.D. and are available at the Wellness Centre in the Powell Building, the Connection Centre, 3rd floor, U.C. and at the door. Performance starts 8 p.m. on Thursday and Friday evenings, in the George Luscombe Theatre (MacKinnon 101), formerly The Inner Stage. There is also a Saturday matinee at 2 p.m. For further information, contact Kate Hollingsworth at The Wellness Centre, (519) 824-4120 Ext. 53327. 
 

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AUTISM IN THE NEWS

Canadian News

Ontario Government Votes More Funds for Young Childen with Autism
The Official News Release 
One Current Story of Reactions to the Official News
 

Toonie for Autism Day 2004
Information from the Autism Society Ontario.
Also visit the main page of the ASO website for information about various scholarships and awards.
 

General Autism News

 
In a world of her own
A story from Northern Ireland about a 16-year old girl, whose life and outlook have been improved by a diagnosis of Asperger Syndrome. Her parents have just set up The Asperger's Network, to offer support and advice to other parents.
 
"Songs of the Gorilla Nation"
Author Dawn Prince-Hughes writes: "I was not diagnosed with Asperger's Syndrome until I was thirty-six. For me, as for other people diagnosed well past their childhoods, the fact of my continued existence seems no minor miracle. As I look back over the painful years I spent alienated, different, disconnected, and hurting, it's hard to understand how I made it and how it took me so long to find the reason that I lived like this." (To read, free registration is necessary) 

Florida man with autism is inspiring advocate
Kent Schomber (36) has established the kind of life that could be a model for younger autistic people anywhere. He also works extra hard trying to raise money for treatment and research.

Mobile phone company criticized for offensive reference to autism in advertisement 

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ANNOUNCEMENTS OF EVENTS
See details of more events on OAARSN Bulletin Board and Calendar, and our archive of past OAARSN news bulletins.

Please send submissions for this news bulletin or for the OAARSN Calendar and Bulletin Board in plain text format by email to ebloomfi@uoguelph.ca with "announcement" at the beginning of the subject line.
Please provide details of the following as BRIEFLY as possible: 
 Name of Event
 Main Speakers and Topics of Event 
 Date of Event 
 City and Location of Event
 Contact information to learn more about event 
 Please Do Not Send Files Or Brochure Attachments

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Kerry's Place Autism Services - Guelph-Wellington Area 
Social Groups and Family Support Meetings, Winter-Spring 2004

Click for full information on Kerry's Place events in Guelph-Wellington
To register please call J. Timmins @ 519-763-5812. 
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April 1-3, 2004, at the University of Guelph 
(two evening performances and a matinee)
"The Guelph Project," presented by the Wellness Centre, the Drama Students Federation and Citizenship Education, is a collection of one-act plays and monologues written by students and staff of the University. One play depicts the community experience of an adult with autism. 
Tickets are $5 and $3 for high school students with valid I.D. and are available at the Wellness Centre in the Powell Building, the Connection Centre, 3rd floor, U.C. and at the door. Performance starts 8 p.m. on Thursday and Friday evenings, in the George Luscombe Theatre (MacKinnon 101), formerly The Inner Stage. There is a also Saturday matinee at 2 p.m. For further information, contact Kate Hollingsworth at The Wellness Centre, Ext. 53327. 
 

Friday, April 23rd, 2004, in Toronto
The 5th Annual New Haven Learning Centre Conference
Manulife Financial Building, 200 East Bloor St.
Keynote Speaker: Dr. Patricia Krantz, Executive Director, Princeton Child Development Centre
Other presenters will include Dr. Joel Hundert, Dr. Len Levin, and Dr. Bridget Taylor.
Topics include: 
Autism, Science and Politics 
Incorporating Peers in the Treatment of Children with Autism 
Inroduction to Positive Behavioural Support for Children, Adolescents, and Adults with ASD 
Training Supervisors of IBI 
Improving the Social Behaviour of Children with Autism: A Focus on Acquisition and Motivation 
Supported Inclusion: Including Children with Autism in Pre-School and School Board Classrooms 
Toilet Training: Teaching Young Children with Autism to use the Washroom 
Reading Fundamentals: A Fluency-Based, Multi-Component Approach for Success 
ABA-Based Treatment and Education Strategies: So Much More Than Discrete Trial Instruction 
$125 parent or student; $175 professional 
Call 416-259-4445; email newhaven@bellnet.ca 
 

April 30 - May 2, 2004, at Gananoque
The Art of Advocacy: Every Parent is an Advocate
FAO/IAI  Annual Conference
Key Note Speaker:  Judy Finlay on "Why a strong family Voice is Essential to Advocacy
in Ontario."  Click for full details
Read a story in Family Net 
 

May 6-8, 2004, in Perth Ontario
'Music Therapy in the the Spirit of Community'
The Canadian Association for Music Therapy hosts its 30th annual conference
Click for information about the conference and registration materials 
 

May 27 – 30, 2004, in Chicago
Autism One 2004 Conference "the Most Comprehensive Conference on Autism Ever Assembled" 
Click for more information
Click on website
 

May 31, 7 – 9 pm in Fergus by Kerry's Place Autism Services. 
Workshop: Introduction to Autism Spectrum Disorder
For more information, or to register, please call J. Timmins @ 519-763-5812.
Click for full information on Kerry's Place events in Guelph-Wellington
 

Friday, June 18, 2004, in Windsor
Autism Society Ontario will be presenting its first Stacy Lynne McNeice Memorial Lecture Award to Dr Margaret Bauman
Margaret L. Bauman, M.D. is a Pediatric Neurologist, at MassGeneral Hospital, the Director of The Autism Research Foundation and LADDERS Clinic, and an Associate Professor of Neurology at Harvard Medical School.  
Dr Bauman will also be our guest speaker for a workshop on Friday, the 18th. Check the  ASO website in mid-April for conference details and registration information 
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ANNOUNCEMENTS OF SPECIAL PROJECTS

OAARSN's Adult Autism Needs Survey has been revised after a pilot test period. We have also taken the opportunity to adapt the survey to new SNAP software. 

OAARSN is conducting this survey as a free public service. Private information about individuals will not shared with or passed on to any agency or researcher. If you ask to be connected to our ASPIRE project, you may authorize your personal data to be shared with the ASPIRE advocates. 

We offer two versions. It's important for everyone concerned with autism in adulthood to complete at least the short-form survey. 
1. The more detailed "long-form" survey takes about 25 minutes to complete. It has questions about abilities and challenges, treatments and therapies, quality of life, and planning for the future. This is for persons and families who are actively concerned to achieve the best possible quality of life in adulthood. Click for the full "long-form" AANS survey

2. The more basic short-form survey takes only 5 minutes to complete. It's helpful that planners, funders, advocates and agencies can be aware of the broad patterns of need. Click for the short-form survey

We hope you will respond online. However, if you prefer to complete and mail a paper survey, please request this by email: gbloomfi@uoguelph.ca
Click for more information about the surveys

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ISSUES AND ADVOCACY

See also: Funding Issues--in OAARSN Discussion Boards and Topics. Press the Communications bar on OAARSN’s main page then choose Discussion Area

The Future of Adult Services : Managing New Directions in Uncertain Times
a series of teleconferences organized by TASH
* Creating High Energy Organizational Culture -Thursday, May 20th 
* Out-Maneuvering the System - Thursday, May 27th
* Using Self-Determination Tools to Achieve Flexible Supports - Tuesday, June 1st
* CMS's Independence Plus Initiative - Tuesday June 8th
* Recapturing Person Center Plans Thursday, June 10th 
* Building Meaningful Daytimes - Tuesday, June 15th 
* The Real Challenges of Individualized Supports - Wednesday, June 16th
* Paying Customers Are Not Enough - Tuesday, June 22nd 
These exciting sessions take place over the telephone! You can call in from home, work, or on the road! Only one telephone line may dial in per registrant. You can register as an individual or as a site. If you register as a site and have access to a speakerphone, or have the ability to do internal conferencing, you may have as many participants as you would like listening to the session, and you will also receive an audiotape of the session as well! If you are interested in a topic but cannot participate at the scheduled time, just register anyway and dial in to listen to a replay of the session at your convenience!
The topics are listed below. For more complete information, including registration rates, please visit : http://www.tash.org/teleconferences/index.htm
For additional information please contact TASH
29 W. Susquehanna Ave, Suite 210
Baltimore, MD 21204
410-828-8274 x 103
Fax: 410-828-6706
www.tash.org
 

Breaking The Barriers is now officially online!

A declaration with and for people who are often misperceived as being incompetent or less able because they do not speak. The vision: That all people with disability labels, who do not communicate through speech, have means of communication which allows their fullest participation in the world; that people can communicate using their chosen method; and that their communication is respected by others. And that Facilitated Communication will be accepted in practice and policy as a legitimate augmentative communication method. "We need support and help to clear away the barriers that make it hard or impossible for us to communicate and to actively participate in decision-making and public policy that affects our lives. We want to work collaboratively with other advocates to gain support for the right to communicate."
Sign on to the: RESOLUTION ON THE RIGHT TO COMMUNICATE
 

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HELPFUL RESOURCES
 
 

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FROM THE FRONT LINES: 
CALLING FOR HELP AND SHARING EXPERIENCES

News about adults with autism is usually negative. OAARSN receives many appeals for advice on where to turn for help--with diagnosis and assessment, advocacy, planning for the future, alternatives to approaches that are not working. There are virtually no obvious sources of help for isolated adults with autism and their caregivers.
We know that some adults and their families and caregivers are heroically using what resources they have to achieve some successes with their challenges. Some can report remarkable progress. We invite you, as an adult or caregiver living with autism, to share your problems and your success stories, if you think others might help or benefit.If you wish, we will not publish your name or email address. You may send a message to ebloomfi@uoguelph.ca for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing the Communication bar on our main page
 

Autism Spectrum Disorder: the challenges for families and services in Ontario
Susan Day Fragiadakis of the Geneva Centre for Autism and her mother, Peggy Day, provide two related reports concerning ASD. The first, Understanding Autism Spectrum Disorder, provides a comprehensive look at ASD and its impact on families in Ontario today.  The second, Looking back at raising Rick, describes their family’s experience of raising a son affected by ASD over the last forty years. Together, the reports detail the human costs to children and families and emphasize our collective responsibility to support and treat children affected by ASD, first and foremost, as unique persons. Click for link 
 
  
 

 
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