15 March 2004
ON OAARSN'S WEBSITE
of Cambridge attended the Individualized Funding
Coalition's recent conference in Toronto, representing
adults and families who live with autism in the Waterloo-Wellington region
Please note the wealth of news, announcements and
other links in past OAARSN News Bulletins that are archived on our website.
Click for the list
of earlier OAARSN bulletins.
AUTISM IN THE
for Autism Day 2004
Information from the Autism Society Ontario
AND POSSIBLE CAUSES OF AUTISM
to pay for study of causes of autism
The Autism Birth Cohort, led by researchers at
the Mailman School of Public Health at Columbia University, will follow
100,000 babies in Norway and their parents for five years, to identify
biological and environmental factors that could combine to cause autism
and other developmental disorders.
One of Largest Ever
Genetic Studies of Autism Launched
The Translational Genomics Research Institute (TGen),
in collaboration with the Southwest Autism Research and Resource Center,
has launched one of the largest and most comprehensive molecular and genetic
studies ever conducted on children. Click
UK research into the causes and treatment of autism
is seriously behind that of other countries, accorfing to a report by Dr
Tony Charman and Pippa Clare who combined the opinions of 200 scientists
and 130 parents with an autistic child. The first-ever comprehensive overview
of the UK research field outlines a surprising lack of research into the
causes of autism and successful interventions compared with other countries.
It also concludes that research into how families cope and into autism
support services is extremely scant. Read
a related story by the BBC
Are the CDC, the FDA, and other health agencies
covering up evidence that a mercury preservative in children's vaccines
caused an epidemic of autism? A major review of the mercury/vaccine/autism
controversy by Andrea Rock in Mother Jones Magazine.
Simon Baron-Cohen's theory, expressed in
The Essential Difference: The Truth About the Male and Female Brain
(Perseus Publishing, 2003), that autism represents an "extreme version"
of the male brain.
LIVING AND COPING
study suggests brains of autistic children can be trained to recognize
Two University of Washington
researchers suggest that the difficulties autistic persons have recognizing
faces may be due to a lack of practice, rather than to abnormal functioning
of the affected region of the brain.
away when I speak to you
For years, parents and teachers have ordered children
to 'look at me when I'm speaking to you'. Children who dared turn away
were accused of being rude or of failing to pay attention. But now a report
suggests that rather than being rude, children turn away to help them think.
Hyperlexia May Unlock How Brains Read
Children With Rare Disorder Have Heightened Reading,
diary: a jab in the dark
The truth about
MMR must be revealed, says Dr James Le Fanu
for stabilizing autistic behaviors.
Andrew Martin, 17, a student at South Kingstown's
Farm School, which his mother co-founded has seen vast improvements since
he was first diagnosed at the age of three. Read
Dr Cheri Florance has written 'Maverick
Mind: A Mother's Story of Solving the Mystery of Her Unreachable, Unteachable,
Silent Son' with Marin Gazzaniga (Putnam, $23.95).
would serve autistic adults
A story about the Carolina Living and Learning
Center, a residential and vocational training program, pioneered by TEACCH.
Benefits of a drama class for children
of more events on OAARSN Bulletin
Board and Calendar, and our archive
of past OAARSN news bulletins.
submissions for this news bulletin or for the OAARSN Calendar and Bulletin
Board in plain text format by email to email@example.com
with "announcement" at the beginning of the subject line.
details of the following as BRIEFLY as possible:
Speakers and Topics of Event
and Location of Event
information to learn more about event
Do Not Send Files Or Brochure Attachments
Autism Services - Guelph-Wellington Area
and Family Support Meetings, Winter-Spring 2004
for full information on Kerry's Place events in Guelph-Wellington
To register please call J. Timmins @ 519-763-5812.
March 19-21, 2004, in Syracuse NY
Ableism? Classism? Racism? Homophobia? Sexism?
How can we address all of these issues without
add-on programs and disjointed initiatives?
Inclusion and Diversity at the Center
An exploration of how schools and communities
can address social justice issues in integrated ways through curriculum,
pedagogy, school climate, teacher/staff training, advocacy and policy-making.
Keynote speakers: James Banks and Norman Kunc
Also post-Conference sessions on March 21.
March 25, 2004, from7:30 pm, in Toronto
Free presentation on
and tips for applying for Ministry funding
(such as Special Services at Home, Assistance
for Children with Severe Disabilities, and others)
Geneva Centre (112 Merton Street) in Toronto
Sponsored by the Toronto chapter of the ASO.
Presented by ASO Regional Support Leaders Liz
Cohen and Lynda Beedham.
March 26 and 27, in Calgary
Autism and Aspergers Conference
featuring speakers Stephen Shore
and Lisa Lewis
Saturday March 27, 2004, in Toronto
Promoting Functional Speech
in Children with Autism with Emphasis on the Kaufman Assessment and Strategies
... from Brookfield Programs
Saturday March 27, 2004, 9:00 a.m. – 4:00 p.m.,
CHOICES, OPTIONS AND OPPORTUNITIES:
GETTING TO THE PLAN
This is a practical interactive forum with stories
from families of people with disabilities who
are supported in non-traditional ways, to have
lives of their choosing after leaving high
school, and how they do it. You will learn to
put together an individualized personal plan for
your family member, outlining their desires for
the future, along with the individualized
supports required (including funding) to facilitate
their continued success in the community.
Hosted by London Family Network and other local
Community Living London, 190 Adelaide Street South,
For more information contact Realizations Training
& Resources 519-433-2387
Tuesday. March 30, 2004, 6:30 – 9:30 p.m., in London
The Individual Education
Kathy Schaffer – Education Officer, Ministry of
Education will explain the Ministry of Education IEP standards and how
the plan should be written to most effectively support students to be successful
in their learning.
3rd Floor Boardroom, Siskinds, The Law Firm, 680
Waterloo Street, London ON
For More Information and/or to Register
- Call Angie Kehoe 519-672-2251, ext. 363
Friday, April 23rd, 2004, in Toronto
The 5th Annual
New Haven Learning Centre Conference
Manulife Financial Building, 200 East Bloor St.
Keynote Speaker: Dr. Patricia Krantz, Executive
Director, Princeton Child Development Centre
Other presenters will include Dr. Joel Hundert,
Dr. Len Levin, and Dr. Bridget Taylor.
Registration information to follow.
April 30 - May 2, 2004, at Gananoque
The Art of
Advocacy: Every Parent is an Advocate
FAO/IAI Annual Conference
Key Note Speaker: Judy Finlay on "Why a
strong family Voice is Essential to Advocacy
in Ontario." Click
for full details
May 6-8, 2004, in Perth Ontario
in the the Spirit of Community'
The Canadian Association for Music
Therapy hosts its 30th annual conference
for information about the conference and registration materials
May 27 – 30, 2004, in Chicago
2004 Conference "the Most Comprehensive Conference on Autism
for more information
May 31, 7 – 9 pm in Fergus by Kerry's Place Autism
Workshop: Introduction to
Autism Spectrum Disorder
For more information, or to register, please call
J. Timmins @ 519-763-5812.
for full information on Kerry's Place events in Guelph-Wellington
OF SPECIAL PROJECTS
OF ADULTS WITH SPECIAL NEEDS:
We are the co-authors of
"From Struggle to Strength: How Mothering a Child with Special Needs Transforms
Your Life" to be published by Woodbine House in 2005. Recently, we posted
to groups like this one, in order to invite mothers of children with special
needs to contribute to our research. The response from women across North
America to our previous questionnaires was overwhelming. We have been unable
to respond to everyone individually but would like to thank all of you
who completed our questionnaires. Your insights have been very helpful.
We are now researching for a final chapter on how mothering a child with
special needs personally transforms you. In this chapter, we are
looking to mothers of adults with special needs (over age 18) to share
their experiences and advice. If you have an adult child and would like
to contribute, please fill out the questionnaire online at www.amybaskin.com
Thank you for sharing your experiences.
Heather Fawcett firstname.lastname@example.org
Amy Baskin email@example.com
also: Funding Issues--in OAARSN Discussion Boards and Topics. Press the
Communications bar on OAARSN’s
main page then choose Discussion Area
The Barriers is now officially online!
declaration with and for people who are often misperceived as being incompetent
or less able because they do not speak. The vision: That all people with
disability labels, who do not communicate through speech, have means of
communication which allows their fullest participation in the world; that
people can communicate using their chosen method; and that their communication
is respected by others. And that Facilitated Communication will be accepted
in practice and policy as a legitimate augmentative communication method.
"We need support and help to clear away the barriers that make it hard
or impossible for us to communicate and to actively participate in decision-making
and public policy that affects our lives. We want to work collaboratively
with other advocates to gain support for the right to communicate."
Sign on to the: RESOLUTION
ON THE RIGHT TO COMMUNICATE
of the Individualized Funding Coalition
of Ontario carries more material about the February conference
Click to read:
Time is Now!
time for the province to act
report by Andrew Foster
David Bornstein's new book, "How
to Change the World: Social Entrepreneurs and the Power of New Ideas" is
being launched in Vancouver on April 14. Read more about it:
1: a review
Ontario Online Resource) To Adulthood
Ontario” is a large, ongoing project to develop and evaluate an online
resource service for the transition to adulthood, to support young people
aged 16-19 years. The project uses a participatory-action research (PAR)
approach, in which all participants consumers, researchers and professionals
collaborate and join in the development, implementation and evaluation
process. The overall outcome of “Transition Ontario” is a consumer-driven,
community-based and interactive online resource called “DOOR (Disability
Ontario Online Resource) To Adulthood” that meets the needs of people in
Ontario who are interested in the transition to adulthood for youth with
disabilities. The “Transition Ontario” project will improve access to quality
information and will facilitate communication and networking about the
transition to adulthood for youth with disabilities in Ontario.
A verbal reinforcement
door alarm for autistic children who are runners.
"The “DOOR To Adulthood” website
is going to be accessed through Ability Online. We would like to know what
you would like to see on the website. We are holding focus groups to serve
as discussion boards for participants to share ideas in developing the
information for the website. We are also connecting with people via email
and our listserv. We want to hear from people from across Ontario"
to read more
If you want to help with Transition Ontario,
or want more information about the project, please call toll-free (800)
363-2440, or (416) 425-6220, ext. 3207, or e-mail firstname.lastname@example.org
The mother of an 11-yr old son with autism tells
us about a portable door alarm by Stanley that allows you to record a verbal
reinforcement message that plays when the door is opened. Now when her
son opens the door, my recording plays "Alex, Stay In The House," and then
the alarm notifies me that he's attempting to exit. Product information,
including a video clip showing how the TABS door alarm works is available
Where to turn
for gluten-free info
in The Toronto Star by Susan Sampson about the Organic Oven bakery business
in Brampton. Includes tips for shopping in the Greater Toronto Area.
ORDER VHStape or DVD of 2-day
Treatments for Autism
diet and autism linked?
Some articles from the CAIRN
1: Gluten- and Casein-free Diets in Autistic Spectrum Disorders
2: Autism and gastrointestinal disorder
in the CAIRN poll: How important do you think diet is in alleviating the
symptoms of autism?
Association of Ontario (TSAO)
Some people have both autism and
Ten Tax Tips
for the 2003 Taxation Year
by Harry Beatty, Barrister
& Solicitor, Consultant in Disability Law and Policy
Once again, it's tax time! Returns for the 2004
taxation year must be filed by 30 April 2003. See link below for advice
for persons with disabilities and their families as to how to complete
their returns. This is general advice only – it's not meant to cover every
point in detail. If you have questions, you should consult Canada Revenue
Agency officials or publications, or your own tax advisor. ("Canada Revenue
Agency" is the new name for the "Canada Customs and Revenue Agency," which
before that was called "Revenue Canada;" "Canada Revenue Agency" is abbreviated
to "CRA" in this article.) See Mr Beatty's article entitled "Disability-Related
Income Tax Provisions," as well as an in-depth article by ARCH Staff Lawyer
Bill Holder entitled "Introduction to the Disability Tax Credit" available
on the ARCH
FROM THE FRONT
HELP AND SHARING EXPERIENCES
about adults with autism is usually negative. OAARSN receives many appeals
for advice on where to turn for help--with diagnosis and assessment, advocacy,
planning for the future, alternatives to approaches that are not working.
There are virtually no obvious sources of help for isolated adults with
autism and their caregivers.
We know that
some adults and their families and caregivers are heroically using what
resources they have to achieve some successes with their challenges. Some
can report remarkable progress. We invite you, as an adult or caregiver
living with autism, to share your problems and your success stories, if
you think others might help or benefit.If you wish, we will not publish
your name or email address. You may send a message to email@example.com
for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing
the Communication bar on our main
poem expresses his feelings of deep disappointment towards others at their
attempts to encourage him, when there seems to be no guarantee that hope,
alone, will always give a positive answer. Brian also writes a weekly column
for the new AutisticSociety website in England. Click
to read his columns
They told me not to worry;
They said, "Hey, take it easy!"
But inside was a warning
That this would not work out.
How could a person tell them
That things were not that certain;
That there was still, in earnest,
An element of doubt?
They said, "Just trust us!" (ahem);
They said, "For sure, 'twill work out!"
But this, to me, was 'kin to
The tossing of a coin.
I saw it: fifty-fifty,
And confidence was waning
From that bemoaned "gut" feeling
Way down inside the groin.
It suddenly but landed,
The coin against the tile,
And yet, again, they stated:
"You must have faith you'll win!"
But when I saw the verdict,
The coin was not as hoped for;
I felt like I was hell-bound,
For some immortal sin.
The sin of not accepting
The truth that one does not know
The verdict 'till it happens,
Before us, plain and clear.
That's why I don't predict it:
My future in the present,
As one cannot fulfill it
In the moment, now and here.
-Brian Henson ©2004