ON OAARSN'S WEBSITE
Books on the
OAARSN's November book review: Spirituality
and the Autism Spectrum: Of Falling Sparrows, by Abe
Isanon (Jessica Kingsley Publishers, 2001). Read
This is one of the many new books in the special
Autism Collection recently launched at the Kitchener Public Library.
here for more details of how to use this collection. As well as new
books, the Autism Collection seeks earlier classic titles on autism spectrum
disorders that may be out of print. Are there specific titles you would
like to see in the collection? Some of us have given our book collections
on autism to the KPL. We can appeal to others who may own particular titles
that are out of print, to consider giving them to the library collection.
Cash donations, designated for the Autism Collection,
may be made to the Kitchener Public Library Foundation or to Waterloo-Wellington
Autism Services. Tax-creditable receipts are issued for amount of $25 or
Please note the wealth of news, announcements and
other links in past OAARSN News Bulletins that are archived on our website.
Click for the list
of earlier OAARSN bulletins.
"Able autistic individuals can rise to eminent
perform with such outstanding success
that one may even conclude that
only such people are capable of certain achievements
Their unswerving determination and penetrating
part of their spontaneous and original mental
their narrowness and single-mindedness,
as manifested in their special interests,
can be immensely valuable
and can lead to outstanding achievements in their
--Hans Asperger (1944).
AUTISM IN THE
Autism mushrooms in Quebec
Recent surveys of epidemiological studies on autism
spectrum disorders now indicate that the prevalence stands at a staggering
60-70 per 10 000 people
Brunswick announces $2.8 million for autism
Most of the money will be spent on a preschool
ABA program for children aged two to five.
The number of people diagnosed with autism is
rising. Services and programs to help them are stretched thin. A story
from London, Ontario.
boss donates $750,000
David Patchell-Evans's gift to a University of
Western Ontario neuroscience research team set up to search for the causes
funds autism research
A $2.9 million, six-year partnership between the
US-based National Alliance for Autism Research (NAAR) and the Institute
of Neurosciences, Mental Health and Addiction (INMHA) of the Canadian Institutes
of Health Research (CIHR) aims to train the next generation of researchers
and uncover the mysteries of autism - a brain disorder with no known cure.
The partnership includes $300,000 from the Fonds de la recherche en santé
du Québec (FRSQ).
they don't know why
The Toronto Star story of how special education
students are affected by the policy of zero tolerance.
Autism, Diet, And Inflammatory
By Vivian McKelvey for RedFlagsWeekly
the full article
Seizures and the Child With
Seizures are common amongst people on the autism
spectrum. From The Exceptional Parent.
for the article
Characteristics and interventions
A Reference Guide to the World of Tourette Syndrome,
Asperger Syndrome, Attention Deficit Hyperactivity Disorder and Obsessive
Compulsive Disorder for Parents and Professionals.
a hidden danger
A series of investigative reports from Detroit.
the truth about MMR
Paul Vallely evaluates the claims on both sides
- and reveals the new evidence that is yet to come to court.
Debut Of An Odd Couple: Time
Two brilliant but contrasting young pianists make
their Manhattan bows. Each has a story to tell. Read
Key to Genius:
"Autistic savants are born with miswired neurons
- and extraordinary gifts. The breakthrough science behind our new understanding
of the brain." Another story about Matt Savage from Wired Magazine.
A good news story from California.
of a good teacher
A story from Florida.
knew risks in holding Asperger's patients
More about the 60 people being held in British
hospital prisons for the criminally insane despite a recognition
that they have been misdiagnosed as schizophrenic and are now accepted
to have Asperger's syndrome.
doctors turned Julie into a twitching, bloated wreck
A tragic story of misdiagnosis and inappropriate
medications for a woman now diagnosed with Asperger's.
OF EVENTS OR SPECIAL PROJECTS
** ** means that
a new posting--an event being announced here for the first time
of more events on OAARSN Bulletin
Board and Calendar, and our archive
of past OAARSN news bulletins.
submissions for this news bulletin or for the OAARSN Calendar and Bulletin
Board in plain text format by email to email@example.com
with "announcement" at the beginning of the subject line.
details of the following as BRIEFLY as possible:
Speakers and Topics of Event
and Location of Event
information to learn more about event
Do Not Send Files Or Brochure Attachments
**Saturday, November 29th, 2003, 2:00 p.m. to 4:00
Autism Society Ontario Wellington County Chapter
A panel of presentations by four adults with ASD
Guelph Community Health Centre (downstairs in
the Conference Room)
176 Wyndham Street North, Guelph, Ontario
No late entry please.
Registration must be received by Tuesday, November
25, 2003 for this event.
Please call: 822-0279 and leave your name
and numbers of persons attending.
Free Parking in the Baker Street Lot behind the
Support workers for children will be available
upon request. Childcare will be on
the main floor Children’s Centre.
Admission is free; donations to ASO-Wellington
**Thursday November 27, 2003: 9:30 am to 1 pm
in lecture hall of Law Society of Upper Canada,
offers lawyers insight into disability issues
Helen Henderson of The Star reports on "high hopes
for a new plan to raise the profile of disability issues on the radar screens
of Ontario lawyers":
There's no shortage of areas to
tackle, all of them dramatically affecting the quality of life for people
communicate and/or process information
in ways society labels "different."
What obligations do Ontario schools,
businesses and government offices have to meet the needs of people with
disabilities and how can lawyers
defend those rights? What can lawyers do for clients whose applications
for disability support have been denied even though their doctors say they
should be entitled?
What are the key tax considerations
for people with disabilities? And what are the most important issues in
choosing a trustee or making a will in favour of someone with a disability?
Those are the types of issues on
the agenda at a free half-day "continuing education" workshop for lawyers
tat sponsors hope will be an expanding program.
If it's a success, they'll move on
to tackle broader, big-ticket disability issues in the areas of education,
health care and transportation.
In return for the free session, lawyers
attending the workshop will donate some of their time during the following
months to help handle legal matters
for clients with disabilities.
"We've had a lot of interest already,"
says Phyllis Gordon, executive director of ARCH, a legal aid resource centre
people with disabilities. ARCH is
co-sponsoring the project with Pro Bono Law Ontario, a non-profit, province-wide
group that helps people who don't
qualify for legal aid but lack the means to hire a lawyer.
The Law Society of Upper Canada and
the Law Foundation of Ontario are providing funding.
"It's not difficult to get lawyers
involved in pro bono work once they know we can help them organize things,"
says Pro Bono's executive director Lynn Burns. "They don't get a lot of
credit but they already do a lot."
In the area of disability rights,
"interest has grown, partly because of the Charter of Rights and the work
of organizations like the Ontario Human Rights Commission, but also because
there's been an increase in the number of people with disabilities entering
the legal profession," adds Josée Bouchard, equity adviser for the
Law Society of Upper Canada.
ARCH itself goes to court only in
precedent-setting test cases. But it is available for consultation by lawyers
with disability issues. And it offers
the public a telephone advice and referral service.
"The questions being asked relate
to really complex issues," says Gordon, which is one of the reasons the
service can't keep up with demand from the public.
It's currently being reviewed and
a redesign is planned but, ultimately, the answer to making the justice
accessible lies in encouraging all
lawyers across the province to get more involved.
ARCH and Pro Bono Law Ontario plan
to take their free workshop on the road across the province next year.
If nothing else, demographics suggest
that disability issues should be an expanding area of the law.
With each advancing year, more members
of the once-able-bodied population are learning the hard way what it's
like to face barriers to participating in things they've always taken for
The free workshop for lawyers will
run from 9:30 a.m. to 1 p.m. Nov. 27 in the lecture hall of the Law Society
For more information, visit http://www.archlegalclinic.ca
Lawyers who want to
register for the workshop may contact
Theresa Sciberras at 416-482-8255 (voice), 416-482-1254 (TTY) or e-mail
Write: Helen Henderson, Life Section, Toronto Star, One Yonge St., Toronto,
Ont. M5E 1E6. Please include your telephone number. hhenderson
Tuesday, December 2, in London
Regional Support Associates presents workshop:
Dual Diagnosis strategies.Click
for details and registration
Friday, December 5, in Owen Sound
Regional Support Associates presents workshop:
Getting comfortable: Sexuality
more details and register
Safe and Secure Futures Networks,
2003 - 2004
Monthly forums for mutual support and information
sharing among family members of individuals who have a developmental disability--in
three Toronto locations. Sponsored by Extend-A-Family and funded by a City
of Toronto Community Services Grant. Click
for full details
OF SPECIAL PROJECTS AND RESEARCH
Mothers of Special Needs Children
Heather Fawcett and Amy Baskin are the co-authors
of From Struggle to Strength: How Mothering a Child with Special Needs
Transforms Your Life to be published by Woodbine House in 2005. They
"Recently, we invited mothers of children with
special needs to contribute to our research. The response from women
across North America to our Mothers and Work questionnaire was overwhelming.
We have been unable to respond to everyone individually but would like
to thank all of you who completed our questionnaire. Your insights have
been very helpful. We are now researching for two new chapters: "Family
Life" and "Finding Personal and Professional Support." If you would
like to participate in the research for these chapters, please fill out
the questionnaires online at http://www.amybaskin.com
Thank you for sharing your experiences."
Heather Fawcett firstname.lastname@example.org
Amy Baskin email@example.com
WITH AN AUTISTIC BROTHER OR SISTER
Mary Anne Myers is a Masters student at the University
of Guelph in the Sociology department, working under the direction of Dr.
Lynn McDonald. She writes: "As the aunt of a nephew with autism,
I have become intrigued not only with the disorder itself, but with the
impact a person with autism spectrum disorder (ASD) can have on the family
and, in particular, on the other siblings within the family. As so little
is known about sibling relationships in autism, I am making this my topic
of study for my M.A. thesis. Further research in this area could
offer much in terms of a deeper understanding of social development, sibling
interactions and relationships, and the importance of such relationships.
"The focus of my thesis will be on living with
a sibling with ASD, and the roles the non-ASD siblings take on as children,
as well as the roles they take on as adults both within and outside of
the family unit. I am hoping to conduct tape-recorded interviews
with 30 siblings (preferably half female and half male and who are between
the ages of 18 and 25) of people with ASD.
"I would like to ask an hour of your time to conduct
the interview, which would be held at your home or another place where
you feel comfortable in order to discuss your experiences. If you
choose to participate, a summary of the results of the study will be emailed
to you, if you so desire, and a copy of the final paper will be on hand
at the Autism Society Ontario office in Toronto.
"If you are interested or would just like further
information, please feel free to call me at (519) 822-7932 or email me
at firstname.lastname@example.org . You
may also contact Dr. Lynn McDonald, Project Director at email@example.com
at (519) 824-4120, x52198. This research project has been approved by the
University of Guelph Research Ethics Committee. (Reference REB AU0012)."
See also: Funding
Issues--in OAARSN Discussion Boards and Topics. Press the Communications
bar on OAARSN’s main page
then choose Discussion Area
Please support THUNDER BAY’S
SPECIAL SERVICES AT HOME FAMILY NETWORK PROJECT
OAARSN has written in support of the project led
by Nicole Cyrenne, who is a member of our OAARSN network.
for our letter and some messages of support
from family members of Nicole's network. If you would like to support the
continued funding of this project, please fax your letter to Nicole at
807-623-6413. Or you may email her at firstname.lastname@example.org
Individualized Funding: The Time is Now!"
February 20 to 22, 2004 at the Inn on the Park
The goals are:
- To develop an action plan for implementing IF
in Ontario; and
- To develop strategies for building the capacity
of families & communities for citizenship & IF.
Key stakeholders from all parts of the province
are invited to think carefully about who needs to be invited in order to
create and train a diverse, energetic and motivated leadership team. Please
contact Judith Snow. Phone: 416-538-9344 or Fax: 416-516-1691
Family Net has posted an article on the new provincial
cabinet and particularly the new ministry for children's services. "Premier,
new ministers sworn in: New ministry for children’s services"
on this link
for directory of all MPPS Note that Ted Arnott ( Waterloo-Wellington)
is the Critic for Children's Services and Shafiq Qaadri from North Etobicoke
is the Parliamentary Assistant for Ministry of Children's Services.
maintains a useful email service related to advocacy for
ABA/EIBI for young children with ASD. Over the past couple of years, she
has also collected press articles on autism issues. A listing is available
in Excel. As she suggests, this information could help in continuing advocacy.
Nancy could also photocopy and mail selected articles at cost. To get on
her email List or ask about past articles, contact her at email@example.com
Autoimmunity Project (TAAP) is a non profit charity dedicated
to obtaining funding for independent research addressing immune and immunogenetic
abnormalities in autism. Please visit the TAAP
website for more information.
FROM THE FRONT
HELP AND SHARING EXPERIENCES
adults with autism is usually negative. OAARSN receives many appeals for
advice on where to turn for help--with diagnosis and assessment, advocacy,
planning for the future, alternatives to approaches that are not working.
There are virtually no obvious sources of help for isolated adults with
autism and their caregivers.
We know that
some adults and their families and caregivers are heroically using what
resources they have to achieve some successes with their challenges. Some
can report remarkable progress. We invite you, as an adult or caregiver
living with autism, to share your problems and your success stories, if
you think others might help or benefit.If you wish, we will not publish
your name or email address. You may send a message to firstname.lastname@example.org
for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing
the Communication bar on our main
Good News Story by a mother in
the ASPIRE group in Waterloo-Wellington
It begins: "My son "DJ" still hesitates to tell
his story. There is still a lot of pain because he wasn't diagnosed until
he was 15 years of age. He was frustrated a lot and could not understand
why others did not see how hard he was trying to be a good boy and be accepted...."