ON OAARSN'S WEBSITE
Please note the wealth of news, announcements and
other links in the weekly OAARSN News Bulletins that are archived on our
website. Click for the list
of earlier OAARSN bulletins
and find the most recent:
AUTISM IN THE
plight of Danny
Best-selling novelist Nick Hornby has launched
a powerful attack on the British Government for not spending enough money
on the care of tens of thousands of autistic children. He spoke movingly
about the condition of his son Danny (10) and described how parents face
a daily battle against grinding bureaucracy, under-funded services and
the seeming indifference of the authorities. To a packed meeting at the
British Labour Party's annual conference in Bournemouth he said: "One of
the first of many shocks one receives as the parent of a disabled child
is that there is no one to help you negotiate the dense and dark forest
of difficulties that has suddenly sprung up in front of you. Only a few
parents are able to do this and even this fortunate minority go through
hell and back to fight for what their children need and what they are legally
entitled to." He particularly stressed the need for co-ordinating any services
and supports, and that this depends overwhelmingly on mothers.
is 19 and severely autistic, with a baby's mind. His best hope is the battle
his father is waging for his future
"A City of London banker shares his own story.
Every day of his life, he faces one of the most difficult challenges imaginable:
bringing up an inaccessible child who needs him, and who will always need
him, like an infant. You might think that the Government would be falling
over itself to help such obviously needy cases, to make it easier for brave
parents... . Not a bit of it."
must do more to help parents cope with autism
A story in The Scotsman about 13 years of life
with a daughter who has Asperger's. It begins:
"No sleeping! No sleeping! Every time I started
to drift off, the hand would snatch out and peel my eyelids back. And the
questioning. The interminable questioning. And the screaming. The interminable
sleep disorders can leave entire family exhausted
World Community Autism Program Appeal to begin
to meet the needs of an estimated 10,000 children.
Bangalore to Hollywood
Julia Roberts to produce the amazing story of
the Indian boy of 13, Rajarshi ‘Tito’ Mukhopadhyay, who is telling others
what it feels like to be trapped in an autistic body and mind.
brushed by genius
Famous since childhood as the 'autistic savant'
with an amazing ability to draw intricate buildings from memory, now Stephen
Wiltshire (30) has risen to new artistic heights.
to be built for people with autism
A project in Ellesmere Port,
England, consisting of a total of eight houses and bungalows, providing
accommodation for 18 people. It is novel in combining a status for the
residents as tenants rather than patients with the provision of professional,
specialist care and support.
Place for Kids Like Them
A good story of a Sibling Support Project in Florida.
heals provides therapy beyond words
A lovely story about how horses are used to provide
physical and mental therapy for children with disabilities including autism.
OF EVENTS OR SPECIAL PROJECTS
** ** means that
a new posting--an event being announced here for the first time
of more events on OAARSN Bulletin
Board and Calendar, and our archive
of past OAARSN news bulletins.
submissions for this news bulletin or for the OAARSN Calendar and Bulletin
Board in plain text format by email to firstname.lastname@example.org
with "announcement" at the beginning of the subject line.
details of the following as BRIEFLY as possible:
Speakers and Topics of Event
and Location of Event
information to learn more about event
Do Not Send Files Or Brochure Attachments
Autism Services: Workshops in Central West Region
July-December 2003 Click
for more information about all these events
Events are free and most will be held in the KPAS
Resource Centre in Brampton, unless otherwise stated.
THURSDAY, OCTOBER 9 AT OFCP, 1630 LAWRENCE AVE,
TORONTO, 10 AM TO 1:30 PM
**AD HOC GATHERING of people
interested in influencing the new government about disability supports
Meeting sponsored by the Individualized Funding
Coalition for Ontario:
Some questions that will be explored include:
1. What kind of framework and set of values will
the major players likely agree on?
2. How do we see individualized funding and related
supports fitting with the more traditional service system?
3. What would make sense to ask for from a new
government to insure that individualized support and funding can be significantly
4. What strategies do we want to pursue?
who should do them?
Please RSVP to email@example.com
October 9, 7:30 pm, in Waterloo
Waterloo Chapter of ASO meeting, with guest speaker
Karen Klee on
**Sexuality and Adolescents
with Developmental Needs**
No charge. 115 University Ave E. (KW Habilitation)
October 18, 2003, in Whitby, Region of Durham
Current Directions and Findings
in Autism Research
Featuring Guest Speakers Dr Wendy Roberts and
Dr Jeanette Holden
Where: When:Saturday, October 18, 2003
Where: Durham District School Board Auditorium,
400 Taunton Road East, Whitby
Time: 9:00 a.m. - 3:30 p.m.
for registration form and more details.
Tuesday, October 21, 2003, 7-9 pm, in Kitchener
of New Autism Collection at Kitchener Public Library
The unique collection of books, videos and other
information about Autism Spectrum Disorders, made possible by a generous
grant from Waterloo Wellington Autism Services, is to be launched during
Ontario Public Library week. Click
for more details
October 21 until November 21, 2003, in Toronto
ARTIST ALERT: Abilities
Festival: A Celebration of Disability Arts and Culture
Abilities Festival is offering as its inaugural
event "Connections," a month-long visual art exhibition and sale. It will
run at the Carrier Gallery, which is housed in the Columbus Centre, 901
Lawrence Avenue, at the corner of Dufferin Street in Toronto. The gallery
is open to the public every day and all are invited. The Canadian Abilities
Foundation, on behalf of Abilities Festival, invited artists with disabilities
to submit their work for consideration to this juried exhibition and sale.
For further information, please visit the website
or phone 966-0393.
Friday, October 24, 2003, in Toronto at Edwards
**Celebrate the 30th anniversary
of Autism Society Ontario**
"It will be a marvelous evening of good food,
entertainment and silent auction items - all in support of families living
with children with ASD."
Tickets can be ordered or reserved by contacting
the ASO office 416-246-9592. Seating is limited, so make your reservation
as soon as possible.
October 24-26, 2003 in Atlantic City, NJ
**Fatty Acid BioMedical
Symposium with Dr. Patricia Kane
THE Conference on Fatty
Acids, the Brain and Evidence Based Nutrition**
Join us for a 3-day odyssey into fatty acid metabolism,
brain architecture, detoxification, neurochemistry, the cell membrane and
Learn how to safely and efficiently stabilize
your patients with a new clinically proven method of both Oral and IV Lipid
information To Register: Call 888.320.8338 or 856.825.8338 or visit
Saturday, 25 October 2003, all day
Dufferin Chapter of ASO:
1st Annual Symposium on
for full program and registration form
October 25 to November 15
Lifetime Networks: Autumn Workshop series
Four Saturdays mornings, in Kitchener
Planning a Good Life Now
Oct. 25: Planning financial security
Nov. 1: Planning a home of one's own
Nov. 8: Planning for after we’re gone
Nov.15: Planning with our disabled children (capacity
assessment, powers of attorney, and supported decision-making.
Click on heading for more details or phone 519-746-1188
or email firstname.lastname@example.org
Saturday October 25th, 2003, in Toronto
Annual Conference of Ontario
Association for Families of Children with Communication Disorders
Thanks to the generous support of the Hospital
for Sick Children Foundation, this is the largest event OAFCCD has ever
organized. Speakers include:
-Carla Johnson, Associate Professor, Speech-Language
Pathology, University of Toronto on the long term impacts of a communication
-Kathy Schaffer, Ministry of Education Special
education Project, on Individual Education Plans
-Ginny Marx, SLP and Karen Rolston, Teacher with
the Kindergarten Language Program at the Toronto Catholic District School
Board on phonological awareness.
-Dr. Maria Kokai-Czapar, Psychologist, Deaf and
Hard of hearing Program, Toronto Catholic District School Board on
the challenges of growing up with a communication disorder
for flyer and registration form
October 25 & 26 in Toronto
WORKSHOPS by Dr Patrick
McGreevy, at University of Toronto, St. Michael's College
October 25: TEACHING APPROPRIATE SOCIAL BEHAVIOUR
TO CHILDREN AND ADULTS WITH
AUTISM AND OTHER DEVELOPMENTAL DISABILITIES
October 26: INTENSIVE TRAINING IN VERBAL BEHAVIOUR
- TEACHING LANGUAGE TO
CHILDREN AND ADULTS WITH AUTISM AND OTHER DEVELOPMENTAL
Registration and Information: email Brookfield
Programs at email@example.com
or telephone 416-999-3266.
Please send / leave a message and someone will
get back to you as soon as possible.
November 8, 2003, in Guelph
2003 "Rock Star Gala"
in Peter Clark Hall, University of Guelph, as an autism fundraiser.
Organized by Len
Kahn in support of Autism Society of Ontario, Wellington County Chapter's
summer programs and the new Stephanie Home, a local group home for autistic
December 10 - 13, 2003, in Chicago, Illinois
2003 Annual TASH Conference
The TASH Conference is the conference to attend
to learn about the most progressive policy and practice issues affecting
people with disabilities, their families, support providers, and advocates.
Participants can choose from a menu of over 450 sessions showcasing the
most progressive thinking, practices, and research in the areas of Young
Adult and Adult Services and Supports, Inclusive Quality Education across
the Lifespan, Ethics, Values and Rights, and more!
for details To
February 20 to 22, 2004 at the Inn on the Park
Funding: The Time is Now!"**
The goals of this "workfest" weekend are:
- To develop an action plan for implementing IF
in Ontario; and
- To develop strategies for building the capacity
of families & communities for citizenship & IF.
Key stakeholders from all parts of the province
are invited to think carefully about who needs to be invited in order to
create and train a diverse, energetic and motivated leadership team. Please
contact Judith Snow. Phone: 416-538-9344 or Fax: 416-516-1691
OF SPECIAL PROJECTS AND RESEARCH
Voices of FC Users:
the Idea of a Workshop in Ontario
Yes, persons with autism do still use Facilitated
Communicating to express themselves with insight and eloquence--even in
Ontario! For some it is the only reliable way they have of making their
real needs and wishes understood.
Chris Pentzell of Los Angeles, whose extraordinary
brother Nick has been an FC user and poet for more than a decade, has a
vision of sharing the voices of other FC users, by publishing a book of
poetry, short stories and artwork created strictly by FC users. She’d like
all profits from the book to go to an organization that furthers FC use,
and strongly believes that FC users should be involved in the entire process,
not just in the creative aspect. She wants to make sure the FC users communicate
what they want to say rather than it being about what others think should
be communicated. Click
for more background
Chris wonders if an FC workshop might be organized
in Ontario, as part of a series of "low-maintenance learning tools" in
other regions of North America. She writes: "One workshop is nearly
all set up here in Whittier, CA. I've been working with WAPADH (Steve
Boyer, Darlene Hanson, Janine Guncic). They're providing the space and
some money to have the workshop professionally videotaped (for possible
future documentary purposes). We've got a professional writer leading the
workshop -- Professor Tony Barnstone of Whittier College. As of now,
7 participants are confirmed. The Autism Society is providing lunch
for us. I don't know exactly how it's all going to look, but I'm sure it
will be fun and a definite learning experience for the future. Elin Doval
in Richmond, VA has taken on coordinating a workshop there, but no date
has been set. My brother, Nick Pentzell, and my stepmother, Gwen Waltz,
are looking into having the Lonesome Doves create a workshop in Philadelphia.
Meanwhile, my brother Max is looking into resources in the San Francisco
Whom do you know in Ontario who uses FC to communicate?
Perhaps FC is the only or most reliable way s/he can express himself/herself?
Are you interested in supporting such a workshop? Can you suggest any practical
help, such as somewhere to meet, and some funds to pay for facilitation?
Please let OAARSN know. You may
email Chris Pentzell at CPentzell@aol.com
or phone her at (310) 202-7866
The Ontario Mental Health
Foundation is pleased to announce that Autism Society Ontario will again
be offering a studentship in 2004. The Foundation will administer
the studentship on behalf of Autism Society Ontario. The regular Guidelines
of the Foundation will apply to this award, with the following
The award will be restricted to applicants who
can show that their work is in the field of autism.
The award will be for $20,000.00 per annum. Funds
are sufficient to make one award in 2004.
The application deadline is: Friday, November
Click for application
Abstracts as examples of current topics and findings:
* Indolyl-3-acryloylglycine (IAG)
Is A Putative Diagnostic Urinary Marker For Autism Spectrum Disorders
* Constipation with Acquired Megarectum
In Children With Autism
* Early Intervention And Brain Plasticity
* Can Early Interventions Alter The
Course of Autism?
* Why Have Drug Treatments Been So
* Autism and Specific Language Impairment:
Categorical Distinction or Continuum?
* Cognition In Autism: One Deficit
* The Amygdala, Autism And Anxiety
* What Do Imaging Studies Tell Us
About The Neural Basis Of Autism?
* Microbiology And Immunology Of
Autism Spectrum Disorders
* The Neuropathology of Autism Spectrum
Disorders: What Have We Learned?
* X-linked Genes And The Neural Basis
Of Social Cognition
* How Might Genetic Mechanisms Operate
* Evidence of MMR Risk Is 'Compelling'
Abstracts are posted in SCHAFER AUTISM REPORT
for Monday, October 6, 2003, SECOND SECTION, Vol. 7 No. 202.1
Find in SAR Archive
abstracts of articles in the Journal of Autism and Developmental Disorders
"Peer Interaction and Loneliness in High-Functioning
Children with Autism"
"The Friendship Questionnaire: An Investigation
of Adults with Asperger Syndrome or High-Functioning Autism, and Normal
See also: Funding
Issues--in OAARSN Discussion Boards and Topics. Press the Communications
bar on OAARSN’s main page
then choose Discussion Area
: The Autism Autoimmunity Project's goals are to:
1) fully define immune etiologies
2) develop appropriate treatment
options for individuals who have autism through autoimmunity or immune
3) develop mechanisms for
prevention of immune-based autism.
Read the new article Reflections
on Friendship by David and Faye Wetherow.
"What steps can we take
to invite and support real friendships for our sons and daughters who live
with disabilities? We sometimes see other children moving along in
a sea of friendship, and we see our children struggling with isolation.
The natural ebb and flow of play, enjoyment
and affection may seem
out of reach, and we worry about the possibility of a life-long pattern
of separateness. What can we do?....."
This article was first published
on the Apraxia-Kids
FROM THE FRONT
HELP AND SHARING EXPERIENCES
adults with autism is usually negative. OAARSN receives many appeals for
advice on where to turn for help--with diagnosis and assessment, advocacy,
planning for the future, alternatives to approaches that are not working.
There are virtually no obvious sources of help for isolated adults with
autism and their caregivers.
We know that
some adults and their families and caregivers are heroically using what
resources they have to achieve some successes with their challenges. Some
can report remarkable progress. We invite you, as an adult or caregiver
living with autism, to share your problems and your success stories, if
you think others might help or benefit.If you wish, we will not publish
your name or email address. You may send a message to firstname.lastname@example.org
for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing
the Communication bar on our main