ONTARIO ADULT AUTISM 
RESEARCH AND SUPPORT NETWORK 
NEWS BULLETIN
OAARSN offers a rich and expanding collection of up-to-date information and communication tools that can put you in touch with others. We can all benefit from the opportunities for mutual support, encouragement and information sharing. We hope that OAARSN's efforts to promote positive approaches and best practices in supporting adults with autism can help all who live and work on the front lines. Click on OAARSN's main page

See our archive of past OAARSN news bulletins.

Send news, announcements and comments to gbloomfi@uoguelph.ca We welcome news items, announcements of autism events, new information, discussion questions and comments, and accounts of experience.

 

NEWS BULLETIN
7 September 2003


NEW CONTENT ON OAARSN'S WEBSITE 

Adults with Autism
Text of the leaflet OAARSN produced to accompany a display on adult autism issues for the Ontario Ministry of Education's conference on Teaching Students with Autism: Enhancing Capacity in Ontario Schools, September 10-12, 2003. 

Adult Autism Issues in Waterloo-Wellington 20 (Summer 2003) has been added to the website.
Click to read it in PDF format

Adults and their families in Waterloo-Wellingon-Dufferin region of southern Ontario:
Click for the latest  ASPIRE update (August 2003)

Please note the wealth of news, announcements and other links in the weekly OAARSN News Bulletins that are archived on our website. Click for the list of earlier OAARSN bulletins
and find the most recent: 
June 19, 2003
June 29, 2003
July 12, 2003
July 21, 2003
July 28, 2003
August 4, 2003
August 11, 2003

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AUTISM IN THE NEWS

CANADIAN NEWS

Ontario's new BRIDGES program for autistic children past 6 years
While new funding and services are needed, some have criticized these plans as being quite inadequate. In a letter to The  Toronto Sun, Janis Jaffe-White of Toronto pointed out that Ontario already has a program that could serve this purpose very well, if expanded to keep pace with needs, Special-Services-at-Home.

CanChild reports: Services for Children with Asperger's Syndrome in Canada:
Read the report 
 

GENERAL AUTISM NEWS

Diagnosis of Autism
An article in the British Medical Journal.

Girls, Boys and Autism
Newsweek's cover story for September 8 begins: "Is this mysterious and sometimes devastating condition just an extreme version of normal male intelligence? That’s one provocative new theory. Behind autism’s gender gap."

Live Talk: A New Theory of Autism
Simon Baron-Cohen, author of the book featured in the Newsweek story, responds to questions about autism. 

Allowed to be odd
A review of Mark Haddon's novel.
The Curious Incident
An excerpt from Mark Haddon's novel.

Multicoloured Mayhem - Parenting The Many Shades Of Adolescence, Autism, Asperger Syndrome And ADHD, by Jacqui Jackson, mother of four autistic sons featured in a recent BBC program, is to be published in October.

A Picture in Mind
A story about Peter Scott Stone (30), autistic artist of Salt Lake City.

I often wonder what it would be like to have a conversation with my child
The strain of caring for her severely autistic son cost Virginia Bovell her career and her marriage to author Nick Hornby. Yet Danny is the best thing that ever happened to her, she tells Hero Brown in the Evening Standard, London (UK) 

"People with autism need more support" (in Britain) 
A new report highlights a lack of support for people with autistic spectrum disorders (ASD), prompting calls for government action. The National Autistic Society (NAS) says many people with ASD are struggling to get access to advocacy support services. The NAS report "Autism: The Demand for Advocacy" found that 68 per cent of advocacy organisations provide support for ASD. But only 11 per cent of people in need of such support were getting it, the report said. The society claims that advocacy providers are not prioritising people with ASD and that independent advocacy organisations lack the resources to support the 330,000 adults with ASD in the UK. They are calling on the government to address the issue by drawing up a national strategy for people with ASD. Source: Health Newswatch, 6/8/2003

Autism Awareness Campaign launched in Colombo, Sri Lanka
Information from parents and carers Ivan and Charika Corea who quote an estimate of 30,000 autistic people. Ivan Corea is the Chair of the Autism Awareness Campaign now the largest ever movement for Autism in the UK. He and his wife initiated 2002 as Autism Awareness Year. He is a Trustee of the Royal College of Speech and Language Therapists and a Fellow of the Royal Society of Arts in London. The Autism Awareness Campaign won the 2002 Charity Awards, 2002 Windrush Award, 2002 BBC Community Award Runner Up, 2002 Daily Mail Unsung Heroes Merit Award and the 2003 Gold Web Award. Visit the website 

World  Community Autism  Program 
Max & Sandra Desorgher of South Africa have sent us information about their WCAP services including the publication of two new books. See Redefining Autism 

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ANNOUNCEMENTS OF EVENTS OR SPECIAL PROJECTS

See details of more events on OAARSN Bulletin Board and Calendar, and our archive of past OAARSN news bulletins.

Please send submissions for this news bulletin or for the OAARSN Calendar and Bulletin Board in plain text format by email to ebloomfi@uoguelph.ca with "announcement" at the beginning of the subject line.
Please provide details of the following as BRIEFLY as possible: 
 Name of Event
 Main Speakers and Topics of Event 
 Date of Event 
 City and Location of Event 
 Contact information to learn more about event 
 Please Do Not Send Files Or Brochure Attachments
 

Tuesday, September 9 in Guelph
Guelph Services for the Autistic announces 
PATH workshop, facilitated by Beth Hancox of Waterloo and Jan Cooper of Guelph, 
to explain and demonstrate how a facilitated PATH (Planning Alternative Tomorrows with Hope) can help families, with their sons or daughters with autism and their friends, to plan a good life now and a more secure future. Call (519) 823-9232 to register (it's free). More information may be found on the  ASPIRE page
 

September 21, 2003, Belwood Conservation Area, Wellington County
Cycle for Autism of Wellington County Chapter, Autism Society Ontario 
Registration begins at 9am and the Cycle send off is at 10am.  Registration will continue until 12noon. For a pledge form lease call Kim @ 821-3388, Natalie @ 836-8589, Gatten Chiropractic Clinic @ 843-1490, Marlene @ 822-2578, or George Vettor @ 824-5829. Kim @ 821-3388 also appeals for volunteers to help with any part of the organization.
 

September 26, 2003 in Buffalo
CONFERENCE: Autism/Asperger's 2003
Temple Grandin, Ph.D.
Eustacia Cutler -(Temple's mother) "Raising Temple Grandin"
Rebecca Moyes - "Teaching Social Skills & Addressing Clrm Behavior"
Register online
 

Kerry's Place Autism Services: Workshops in Central West Region
July-December 2003  Click for more information about all these events
Events are free and most will be held in the KPAS Resource Centre in Brampton, unless otherwise stated.
 

Fall 2003 (various dates) in Toronto
Drumming opportunities in the "Playshop" Series. See details  
 

October 18, 2003, in Oshawa
Current Directions and Findings in Autism Research
Featuring Guest Speakers Dr Wendy Roberts and Dr Jeanette Holden
Where:  Durham District School Board Auditorium, 400 Taunton Road East, Oshawa
Time:  9:00 a.m. to 3:30 p.m.
Cost*:  For ASO members**:  $10 Parent/Individual with ASD, $25 Professional
            For non-members:  $15 Parent/Individual with ASD, $30 Professional
* Includes lunch. **Annual tax-deductible membership of $30 (parent/individual) or $50 (professional) may be paid at the door.
Please note that registration for this workshop is BY MAIL ONLY and will be confirmed only upon receipt of payment.   Click for registration form and more details.
 

Tuesday, October 21, 2003
Official launch of New Autism Collection at Kitchener Public Library
A good-sized collection of books, videos and other information about Autism Spectrum Disorders has been made possible by a generous grant from Waterloo Wellington Autism Services. The official launch is planned for Ontario Public Library week. After that date, borrowers from outside Kitchener can request a Limited Access Borrower’s card to borrow from the Autism Collection. Materials may also be requested through Inter-Library Loan. OAARSN's Elizabeth Bloomfield has advised on this project. 
 

October 21 until November 21, 2003, in Toronto
ARTIST ALERT: Abilities Festival: A Celebration of Disability Arts and Culture
Abilities Festival is offering as its inaugural event "Connections," a month-long visual art exhibition and sale. It will run at the Carrier Gallery, which is housed in the Columbus Centre, 901 Lawrence Avenue, at the corner of Dufferin Street in Toronto. The gallery is open to the public every day and all are invited. The Canadian Abilities Foundation, on behalf of Abilities Festival, invited artists with disabilities to submit their work for consideration to this juried exhibition and sale. For further information, please visit the  website or phone 966-0393.
 

October 25 & 26 in Toronto
WORKSHOPS by Dr Patrick McGreevy, at University of Toronto, St. Michael's College
October 25: TEACHING APPROPRIATE SOCIAL BEHAVIOUR TO CHILDREN AND ADULTS WITH
AUTISM AND OTHER DEVELOPMENTAL DISABILITIES
October 26: INTENSIVE TRAINING IN VERBAL BEHAVIOUR - TEACHING LANGUAGE TO
CHILDREN AND ADULTS WITH AUTISM AND OTHER DEVELOPMENTAL DISABILITIES
Registration and Information: email Brookfield Programs at brookfield@sympatico.ca or telephone 416-999-3266.
Please send / leave a message and someone will get back to you as soon as possible.
 

November 8, 2003, in Guelph
2003 "Rock Star Gala" in Peter Clark Hall,  University of Guelph as an autism fundraiser.
Organized by Len Kahn in support of Autism Societyof Ontario, Wellington County Chapter's summer programs and the new Stephanie Home, a local group home for autistic children.

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ISSUES AND ADVOCACY

See also: Funding Issues--in OAARSN Discussion Boards and Topics. Press the Communications bar on OAARSN’s main page then choose Discussion Area

Nancy Cherry's campaign to find or develop a tracking device system for Ontario persons with ASD
Waterloo advocate and mother of two teenagers with special needs, Nancy invites other parents and advocates to join her efforts. This story from FamilyNet.

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HELPFUL RESOURCES

PARENT RATINGS OF BEHAVIORAL EFFECTS OF BIOMEDICAL INTERVENTIONS
Compiled by the Autism Research Institute in San Diego, CA
Study the table 

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FROM THE FRONT LINES: 
CALLING FOR HELP AND SHARING EXPERIENCES

News about adults with autism is usually negative. OAARSN receives many appeals for advice on where to turn for help--with diagnosis and assessment, advocacy, planning for the future, alternatives to approaches that are not working. There are virtually no obvious sources of help for isolated adults with autism and their caregivers.

We know that some adults and their families and caregivers are heroically using what resources they have to achieve some successes with their challenges. Some can report remarkable progress. We invite you, as an adult or caregiver living with autism, to share your problems and your success stories, if you think others might help or benefit.If you wish, we will not publish your name or email address. You may send a message to ebloomfi@uoguelph.ca for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing the Communication bar on our main page

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