Adult Autism Issues in Waterloo-Wellington
20 (Summer 2003) has been added to the website.
to read it in PDF format
Please note the wealth of news, announcements and
other links in our weekly OAARSN News Bulletins that are archived on our
website. Click for the list
of earlier OAARSN bulletins
and find the most recent:
Adults and their families in Waterloo-Wellingon-Dufferin
region of southern Ontario:
Click for the latest ASPIRE
update (August 2003)
AUTISM IN THE
Valley Autistic Homes update
The last eleven residents were removed from their
group homes on August 7. This follows the OVAH Board's decision to close
its homes, after the Ontario Ministry of Community, Family and Children's
Services found "financial and management issues" in its review of Ottawa
Valley Autistic Homes. Click
for the staff union's position
new BRIDGES program for autistic children past 6 years
The Government's news release on its promise to
help older children with autism. It claims that Ontario is the first province
to develop a program aimed at meeting their unique needs for social, communication
and behavioural skills at home, school and in their communities. The new
program will be introduced at a demonstration site in London by October
2003, and evaluated before being extended elsewhere in Ontario. BRIDGES
will provide children with a two-hour per week, group-based program that
is intended to support and complement other community services or activities
with which the child and family are involved. BRIDGES will be offered in
two 16-week sessions per year, in the fall and spring. By 2006/07, the
news release states, Ontario will spend almost $100 million on new programs
and services for children with autism compared with 1999.
The Sun's story
education pilot project in Peel Region of Ontario
"Beginning in September, the standards for programs
and services delivered to autistic students will be implemented in ten
school boards to evaluate these new benchmarks."
update on autism
Why is autism, a once rare disease, now afflicting
more than 1 million people in the U.S.?
Online eBriefing by New York Academy of Sciences.
the autistic mind
An Observer Focus survey from The Guardian in
autistic children make remarkable progress with early intervention
Report of a study of the effectiveness of Early
Intensive Behavioral Intervention (EIBI) for 8 children by Ohio State University
turns trauma into educational opportunity
A good account of life with severe autism from
of a CD of "autism inner world"
"Practical Growth, Inc. offers a unique media
experience and a NEW PARADIGM FOR UNDERSTANDING AUTISM. Animations document
one person's understanding and overcoming incurable and mysterious autism,
Asperger Syndrome, and the Savant Brain via a new website: Cosmic Conniptions
(www.conniptions.com) offering CDs of autism's inner worlds." Read
part of the story behind the CD from Autism Today
teen so wanted an ordinary life
Ashton Smith's world, ..."full of confusion and
frustration", became too much for him to bear.
Household Products Database
The National Institutes of Health unveiled a consumer's
guide that provides easy-to-understand information on potential health
effects of more than 2,000 ingredients contained in more than 4,000 household
products. The Database can be viewed at: http://householdproducts.nlm.nih.gov.
OF EVENTS OR SPECIAL PROJECTS
of more events on OAARSN Bulletin
Board and Calendar, and our archive
of past OAARSN news bulletins.
submissions for this news bulletin or for the OAARSN Calendar and Bulletin
Board in plain text format by email to firstname.lastname@example.org
with "announcement" at the beginning of the subject line.
details of the following as BRIEFLY as possible:
Speakers and Topics of Event
and Location of Event
information to learn more about event
Do Not Send Files Or Brochure Attachments
August 16 & 17, 2003, in Calgary, AB
for Autism and Related Disorders
Coast Plaza Hotel
Register on-line at www.greatplainslaboratory.com/calgary
Speakers are Dr. Stephanie Cave, Dr. Vijendra
Singh, Dr. Mary Megson, Dr. David Geier, Dr. William Shaw, Dr. Woody McInnis,
Dr. Michael Brown, and Dr. Mark Geier.
Take home practicalities for parents and therapists.
Science for clinicians. Your chance to listen and ask questions to the
world's top experts on cutting edge treatments for autism.
CYCLE FOR AUTISM
: Help Solve the Puzzle
John Keating and Luc Vandermeeren, both fathers
of children with Autism Spectrum Disorders (ASD), are halfway through their
bicycle marathon from one end of Canada to the other. They began the cycle
in Vancouver, British Columbia and will end in Halifax. The goal
is to promote awareness of Autism Spectrum Disorders (ASD) and raise $1,000,000
in Canada for ASD research. Fundraising events in various cities across
Canada will also increase public awareness. Please click for the Cycle
for Autism website to find out about local events in Ontario cities
and encourage your family and friends to get involved in their own communities.
Information can also be found on the ASO website under What's New? www.autismsociety.on.ca
Wednesday 27 August: Family
Fun Day at Sportsworld Waterpad, from 2 pm.
Call (519) 822-0279 for
more information and to reserve tickets.
Autism Services: Workshops in Central West Region
July-December 2003 Click
for more information about all these events
Events are free and most will be held in the KPAS
Resource Centre in Brampton, unless otherwise stated.
Tuesday, September 9 in Guelph
for the Autistic announces
facilitated by Beth Hancox of Waterloo and Jan Cooper of Guelph,
to explain and demonstrate
how a facilitated PATH (Planning Alternative Tomorrows with Hope) can help
families, with their sons or daughters with autism and their friends, to
plan a good life now and a more secure future. More information may be
found on the ASPIRE
Tuesday, October 21, 2003
of New Autism Collection at Kitchener Public Library
A good-sized collection of books, videos and other
information about Autism Spectrum Disorders has been made possible by a
generous grant from Waterloo Wellington Autism Services. The official launch
is planned for Ontario Public Library week. After that date, borrowers
from outside Kitchener can request a Limited Access Borrower’s card to
borrow from the Autism Collection. Materials may also be requested through
Inter-Library Loan. OAARSN's Elizabeth Bloomfield has advised on this project.
See also: Funding
Issues--in OAARSN Discussion Boards and Topics. Press the Communications
bar on OAARSN’s main page
then choose Discussion Area
Cherry's campaign to find or develop a tracking device system for Ontario
persons with ASD
Nancy, Waterloo advocate
and mother of two teenagers with special needs, invites other parents and
advocates to join her efforts. This story from FamilyNet.
Puzzles and some games can
appeal to people with autism who may have very good visuospatial and tactile
skills and a passion for order and sequence. Playing games and solving
puzzling with family and friends can provide great experience in social
interaction and also provide some simulation of working out strategies
to solve problems in real life.
But commonly available games
and puzzles may not be so good for teens and adults with autism and no
speech. There are few age-appropriate puzzles with enough geometric and
spatial interest and challenge. And conventional games that usually require
speech and a strong competitive spirit among players tend to exclude those
We are pleased to recommend
two lines of games and puzzles that appeal strongly to Andrew, who has
autism and says "games and puzzles are my life."
The co-operative games invented
by Jim Deacove and distributed by Family
Pastimes of Perth, Ontario since 1972. Why didn't
we discover these years ago?
Recent Books on
the Autism Spectrum
The clever and beautiful puzzles made by Imagination
that has been developing fun, unique, award-winning products since 1994.
We specially like the puzzles derived from brilliant designs by M.C. Escher.
Autism Society Ontario announces its second manual
(in a series of five): Children Diagnosed with Autism, What to Expect
and Where to Get Help... See ASO website.
In The Ride Together: A Brother and Sister's
Memoir of Autism in the Family, Paul and Judy Karasik tell the story
of growing up in Chevy Chase, Md., with their parents and two brothers,
Michael and David. David, the oldest, is autistic and mildly retarded,
and the book follows him as he grows from infancy to middle age.
The Curious Incident of the Dog in the Night-time
Mark Haddon (David Fickling/Jonathan Cape, 2003): ..."beautifully written
– and beautifully published, about Asperger's, suitable for 11-year-olds
What kind of brain do you have? Really big differences
between the male and female brain could help explain conditions such as
autism, says Simon Baron-Cohen, director of the Autism Research Centre,
Cambridge University, in The Essential Difference: Men, Women and the
Extreme Male Brain (Penguin, May 2003).
Treating Autism: Parent Stories of Hope and
Success, edited by Stephen M. Edelson and Bernard Rimland, “in-depth
stories by parents and doctors who have used the rational, non-drug Defeat
Autism Now! (DAN!) biomedical treatments”. Order for $22 US from AUTISM
RESEARCH INSTITUTE, 4182 Adams Avenue, San Diego, CA 92116 • Fax (619)
The Drawings of a Boy with Autism by Jonathan
Lerman (George Braziller, 2002).
A Wizard Alone: The Sixth Book in the Young
Wizards Series by Diane Duane (Harcourt (2002).
The Natural Medicine Guide to Autism (The
Healthy Mind Guides) by Stephanie Marohn (Hampton Roads, 2002).
Demystifying the Autistic Experience: A Humanistic
Introduction for Parents, Caregivers and Educators by William Stillman
(Jessica Kingsley, 2002).
American Normal by Lawrence Osborne (Copernicus
Books, 2002). Asperger's syndrome.
Martha Kate Downey has written several books on
aspects of Asperger Syndrome, High-Functioning Autism and PDDNOS, including
DANCING in the night, If you've ever wanted to crawl in the closet
with an OREO... and What Do I Do About Hitting? See her
Marianna Csoti of Wales writes books to help children,
young people and adults with social challenges. Assertiveness For Young
Adults (1998); People Skills for Young Adults (2000); Social
Skills for Children (2001); Contentious Issues: Discussion Stories
for Young People (2001); The People Skills Bible (2002);
Phobia, Panic Attacks and Anxiety in Children (2003); Emotional
Rescue (2003). Several are published by Jessica Kingsley. Click
for more details
Dennis Debbaudt Newsletter: Volume One,
Issue Number 3, June 2003. To subscribe, contact Dennis Debbaudt at email@example.com
Look up also the Autism Risk Management Project
Police and Autism: Avoiding Unfortunate Situations
FROM THE FRONT
HELP AND SHARING EXPERIENCES
adults with autism is usually negative. OAARSN receives many appeals for
advice on where to turn for help--with diagnosis and assessment, advocacy,
planning for the future, alternatives to approaches that are not working.
There are virtually no obvious sources of help for isolated adults with
autism and their caregivers.
Children with Special Needs
Amy Baskin and Heather Fawcett, mothers of children
with ASD, invite you to share your thoughts and experiences. They are writing
a book with the working title From Struggle to Strength: How Mothering
a Child With Special Needs Transforms Your Life to be published by
Woodbine House in 2005. More information and a copy of the questionnaire
form may be found in the OAARSN news bulletin
for 4 August 2003.
We know that
some adults and their families and caregivers are heroically using what
resources they have to achieve some successes with their challenges. Some
can report remarkable progress. We invite you, as an adult or caregiver
living with autism, to share your problems and your success stories, if
you think others might help or benefit.If you wish, we will not publish
your name or email address. You may send a message to firstname.lastname@example.org
for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing
the Communication bar on our main