28 July 2003
OAARSN NEWS AND COMMENT
Please note the wealth of news, announcements and
other links in our weekly OAARSN News Bulletins that are archived on our
website. Click for the list
of earlier OAARSN bulletins
or find the most recent:
Click for the latest ASPIRE
AUTISM IN THE
Brunswick parents protest holding of autistic man
A 21-year-old man, who was ordered placed in Centracare
in March by the Department of Family and Community Services, is said to
have deteriorated to the point where he is a shell of his former self.
PLEASE NOTE THIS APPEAL FROM NEW BRUNSWICK:
Contribute to the fight for Waleed's release
by emailing your name and address to Nancy Blanchette, a director of the
Fredericton Autism Center for Education at email@example.com.
Your name will be added to the growing list on the petition. The goal is
1000 names by Tuesday (two days from now!) when it will be presented to
the Minister of Family & Community Services on the floor of the Legislature
by the opposition critic. Thank you for your continued support of
our east coast causes! Please don't delay!
Canadian Living magazine's website now
carries various articles published in its March 2003 issue by Pam Harrison,
who writes: "As the rates of autism soar, more Canadians are discovering
the roller-coaster ride of parenting a child with autism. The good
news is that discoveries in genetics, nutrition, psychiatry and education
are all adding pieces to the autism puzzle." There are stories of
the Del Duca family in Windsor, Maureen Bennie and her children, and Michele
Dawson (41) of Montreal who has autism. Early Intensive Behavioural Intervention
brother is my best friend"
The heartwarming story of an autistic boy and
his champion -- his nine-year-old sister -- in Ottawa.
Newsweek's account of the new research, published
in The Journal of the American Medical Association, that links the condition
to abnormally rapid brain growth during infancy and raises new hopes for
diagnosis and treatment.
cases rise, but the reasons may not be all negative
An article about the apparent prevalence of autism.
and showing' problems for autistic children
Research findings could be important for understanding
early language and communication problems.
Growing numbers of parents, scientists finding
avenues to reach autistic children. From the Leaf-Chronicle in Clarksville,
The transcript of the CBS airing on 60 Minutes
II of the story of Tito's remarkable success in communicating, though he
does not speak, and his mother Soma's Rapid Prompting Method.
Set apart by their odd habits,
people with Asperger syndrome may have vast amounts of knowledge but few
friends. They just want others to know why.
and lows on a wild ride with Josh
By his father in Scotland.
about Andrew: How an 8-year-old boy is fighting autism
A detailed story from Pennsylvania.
success story from Nebraska
man's plight prompts outpouring
Another story about the Philadelphia man of 63,
whose father left $1.2 million (US) for his support but all was lost through
the alleged fraud of the executor.
Nicky has Asperger's and
a special talent
Nicky (15) has been drawing locomotive profiles
and pictures since April 2000. See:
1 Link 2
Potter helps autism
An enterprising internet community of Daniel Radcliffe
fans from across the world have come up with an innovative way of celebrating
the Harry Potter starís birthday. Instead of sending the actor a present,
the organisers of Danradcliffe.com website are making donations to the
National Autistic Society in the UK to mark Danielís 14th birthday on 23rd
July. By donating online, at www.justgiving.com/danradcliffe,
Danielís fans can play a part in the birthday celebrations, from wherever
they live in the world. Daniel has already shown his support for autism
by taking part in an educational DVD for people with autism that enables
them to read human emotions more easily.
right royal private embarrassment
The story of Prince John (1905-1919), youngest
son of King George V and Queen Mary, who had epilepsy and mild autism,
is central in The Lost Prince, a new two-part dramatization for
TV by Stephen Poliakoff.
OF EVENTS OR SPECIAL PROJECTS
of more events on OAARSN Bulletin
Board and Calendar, and our archive
of past OAARSN news bulletins.
submissions for this news bulletin or for the OAARSN Calendar and Bulletin
Board in plain text format by email to firstname.lastname@example.org
with "announcement" at the beginning of the subject line.
details of the following as BRIEFLY as possible:
Speakers and Topics of Event
and Location of Event
information to learn more about event
Do Not Send Files Or Brochure Attachments
AUTISM : Help Solve the Puzzle
Beginning on July 5th, 2003, John Keating and
Luc Vandeermeeren, both fathers of children with autism Autism Spectrum
Disorders (ASD), embarked on a bicycle journey from one end of Canada to
the other. They began the cycle in Vancouver, British Columbia and will
end in Halifax. It will take them 8 weeks to complete this journey. The
goal is to promote awareness of Autism Spectrum Disorders (ASD) and raise
$1,000,000 in Canada for ASD research through an annual cross-Canada Cycle
for Autism. Fundraising events in various cities across Canada will also
increase public awareness. Please click for the Cycle
for Autism website to find out about local events in other Ontario
cities and encourage your out-of-town family and friends to get involved
in their own communities.
in Ontario cities include:
1. Metro Toronto Chapter's Beach Volleyball tournament
on Friday, August 8, at Ontario Place (South Beach) to mark the occasion
and raise some funds. The event will offer fun, fitness, and refreshments.
If you are interested in contributing to this event or registering a team,
please contact Kim Taylor at email@example.com
Registration is at 3:00 - Volleyball from 4pm-9:30pm
- Dancing until 1am. Your registration fee covers all you can eat BBQ!
for more information.
2. Oshawa, Saturday, August 9th: 8-km pledge ride,
followed by the picnic at Lakeview Park. PLEASE come out and support
Cycle for Autism, whether by cycling with John and Luc, or even just showing
up at the picnic for a couple of hours. There will be great food,
great entertainment, and great children's activities available, so it won't
even be like a sacrifice! It's open to the public, so ask all your
family, friends, and neighbours to come too.
3. Ottawa on Saturday August 9th at 7:30 p.m. and
on August 11. Full details were posted in the OAARSN Bulletin for July
4. First ever Autism Day on September 7, 2003 at
the Toronto Skydome at 1:05 pm. The Toronto Blue Jays will be hosting the
Detroit Tigers. This is a family day and the bargain-rate tickets are available
through the Autism Society Ontario Provincial office at up to 40% off regular
ticket prices. This is not a fundraising event for ASO, and any proceeds
earned through ticket sales will be directed to ASD research in Canada
and to support families living with autism. We hope to wow the folks at
Skydome with amazing ticket sales that show tremendous community support
for these children and their families. Orlando Hudson, Blue Jays Baseball
star, is thrilled about the event and hopes to be part of the pre-game
activities on the field with Cycle for Autism dads Luc Vandermeeren and
John Keating and their families. There is already an ad announcing the
game and support for autism on the electronic billboard at Yonge and Dundas
in downtown Toronto. Check it out! Invite everyone you know to buy tickets
and show support for families living with ASD. The attached info can also
be found on the ASO website under What's New? www.autismsociety.on.ca
Autism Services: Workshops in Central West Region
July-December 2003 Click
for more information about all these events
Events are free and most will be held in the KPAS
Resource Centre in Brampton, unless otherwise stated.
Wednesday 27 August: Family
Fun Day at Sportsworld Waterpad, from 2 pm.
Call (519) 822-0279 for
more information and to reserve tickets.
A.R.T.S. Center & Autism Arts are aware of the many individuals
throughout the world dedicated to improving the lives of individuals who
are affected by an Autism Spectrum Disorder. These advocacy challenges
include increasing awareness and understanding of this disorder to the
broader community, creating more opportunities in research and medical
treatments, and increasing the availability of educational and community
based supports. In assuring that individuals affected by this disorder
can have the best possible opportunities to achieve a fulfilling life,
conferences offer an opportunity where the communications among parents,
educational, and medical advocates can secure improved treatment options
and hopefully, one day find a cure.
To show our appreciation of the passionate endeavors
of advocates throughout the world, we are initiating a special contest
-- the Autism Arts Conference Connection (AACC), where winners may select
the conference they wish to attend. DEADLINE: September 1, 2003 [no cost
for the Autistic announces PATH workshop
Tuesday, September 9 in
PATH workshop for family
representatives, to explain how a facilitated exercise in PATH: Planning
Alternative Tomorrows with Hope can help families, with their sons or daughters
with autism and their friends, to plan a good life now and a more secure
future. More information may be found on the ASPIRE
See also: Funding
Issues--in OAARSN Discussion Boards and Topics. Press the Communications
bar on OAARSNís main page
then choose Discussion Area
Cherry's campaign to find or develop a tracking device system for Ontario
persons with ASD
Nancy, Waterloo advocate
and mother of two teenagers with special needs, invites other parents and
advocates to join her efforts. This story from FamilyNet.
the Way was started in January 2003 by parents who understand
how overwhelming it is when a child is diagnosed with Autistic Spectrum
Disorder (ASD), and wanted to fill a void, to provide support, and assist
parents and service providers in getting ready to participate in therapy.
They have created a number of communication tools and Applied Behavioural
Analysis products that will assist parents and professionals to understand
and communicate with their children.
with Special Needs
A new web page is intended to assist parents and
caregivers seeking information about services funded and/or provided by
the Ontario government for children with physical, intellectual and/or
developmental disabilities, mental health disorders, medical problems or
those who need specialized services to participate in daily living activities.
New Child Disability
The Canada Customs and Revenue Agency
(CCRA) has announced the implementation of the new Child Disability Benefit
(CDB) for children who have a severe and prolonged impairment. The first
payment of the CDB supplement will be issued with the March 2004 Canada
Child Tax Benefit (CCTB) payment and will include a retroactive amount
from July 2003 to March 2004 inclusively.
The CDB is a tax-free supplement,
for eligible recipients, to the CCTB and the Children's Special Allowance.
It helps families with the cost of caring for children under the age of
18 who have a severe and prolonged mental or physical impairment. The CDB
will provide up to $133.33 a month in financial assistance for each eligible
The CCRA will automatically calculate
and include the CDB in the payment in March 2004 for families who have
already submitted Form T2201, Disability Tax Credit Certificate. They will
not have to complete any other forms.
If you receive the CCTB for a child
with a severe and prolonged mental or physical impairment but have not
submitted Form T2201 on behalf of that child, please complete the form,
get it signed by a qualified person, and send it to your local tax centre.
To find out if your child is eligible
for the CDB, please see the eligibility conditions outlined on Form T2201.
Families with an eligible child who have not submitted Form T2201 are encouraged
to apply as soon as possible to prevent delay when payment of the supplement
To get a copy of Form T2201 and
for more information about the CDB supplement, the conditions for eligibility,
and how to apply, visit the CCRA's Web site at www.ccra.gc.ca/benefits,
or call the CCTB enquiries line at 1-800-387-1193.
FROM THE FRONT
HELP AND SHARING EXPERIENCES
adults with autism is usually negative. OAARSN receives many appeals for
advice on where to turn for help--with diagnosis and assessment, advocacy,
planning for the future, alternatives to approaches that are not working.
There are virtually no obvious sources of help for isolated adults with
autism and their caregivers.
We know that
some adults and their families and caregivers are heroically using what
resources they have to achieve some successes with their challenges. Some
can report remarkable progress. We invite you, as an adult or caregiver
living with autism, to share your problems and your success stories, if
you think others might help or benefit.If you wish, we will not publish
your name or email address. You may send a message to firstname.lastname@example.org
for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing
the Communication bar on our main