21 July 2003
OAARSN NEWS AND COMMENT
Comment from Tracy Beck,
OAARSN network member:
One article that was
linked in the most recent OAARSN mailing came through to me with a clear
message about the enormous need for more individualized / personalized
supports. The title link reads: "Danny Muller (29) who is non-verbal and
lives in a group home, speaks through his art". The story was originally
posted on FamilyNet.
At first glance, it comes
across like a pleasant little feel-good article about a man who has
found his "voice" through
art. That is until the reader reaches the final four paragraphs only to
learn that others have
apparently casually and perhaps not so casually, silenced him. The
casual decision made
by his group home staff that his art is "too messy" for their house is
Furthermore, while I can't speak to the specifics regarding his need for
medication, I am truly
left wondering whether the side effects might be far worse than the
condition itself. As
an adult who uses her voice to articulate thoughts and emotions, it
would have to be pretty
dire circumstances before I would tolerate medication that cut off my
ablity to communicate
in the manner to which I'm accustomed. Is there really someone who speaks
for Danny--a man without the means to succinctly express himself?
Look up the story: Man
with autism a noted artist
Please note the wealth of news, announcements and
other links in our weekly OAARSN News Bulletins that are archived on our
website. Click for the list
of OAARSN bulletins.
Click for the latest ASPIRE
AUTISM IN THE
insights into autism
A new study in this week's issue of the Journal
of the American Medical Association finds that a small head circumference
at birth followed by a sudden growth spurt of the head before the end of
the first year is a reliable early warning sign of autism. This story in
The Wall Street Journal.
a too-male brain be one cause of autism?
Another story about Simon Barol-Cohen's new book--this
one from The Wall Street Journal.
New Child Disability
The Canada Customs and Revenue Agency (CCRA) has
announced the implementation of the new Child Disability Benefit (CDB)
for children who have a severe and prolonged impairment. The first payment
of the CDB supplement will be issued with the March 2004 Canada Child Tax
Benefit (CCTB) payment and will include a retroactive amount from July
2003 to March 2004 inclusively.
The CDB is a tax-free supplement, for eligible
recipients, to the CCTB and the Children's Special Allowance. It helps
families with the cost of caring for children under the age of 18 who have
a severe and prolonged mental or physical impairment. The CDB will provide
up to $133.33 a month in financial assistance for each eligible child.
The CCRA will automatically calculate and include
the CDB in the payment in March 2004 for families who have already submitted
Form T2201, Disability Tax Credit Certificate. They will not have to complete
any other forms.
If you receive the CCTB for a child with a severe
and prolonged mental or physical impairment but have not submitted Form
T2201 on behalf of that child, please complete the form, get it signed
by a qualified person, and send it to your local tax centre.
To find out if your child is eligible for the
CDB, please see the eligibility conditions outlined on Form T2201. Families
with an eligible child who have not submitted Form T2201 are encouraged
to apply as soon as possible to prevent delay when payment of the supplement
To get a copy of Form T2201 and for more information
about the CDB supplement, the conditions for eligibility, and how to apply,
visit the CCRA's Web site at www.ccra.gc.ca/benefits,
or call the CCTB enquiries line at 1-800-387-1193.
Improve Educational Practice and Outcomes with ASD
Do you work with children and young people with
Autistic Spectrum Disorders (ASD) and want to improve education practice
and outcomes? A two-year research project is underway in New Zealand,
using a research method called participatory action research (PAR). PAR
involves a range of people - including families, whänau and educators
- who investigate and share effective education practice in order to understand
what works and why; and what does not work and why. The Ministry
of Education leads the project in collaboration with the Ministry's ASD
reference group. The project is run by the Christchurch College of Education
and the Donald Beasley Institute. To learn more about the project, go to:
18 shouldn't be on Paxil, drug-maker and Health Canada warn
Canada has followed in the footsteps of the United
States and Britain, instructing doctors and parents that children under
18 shouldn't take a popular anti-depressant because it appears to trigger
suicidal thoughts in some adolescent users.
OF EVENTS OR SPECIAL PROJECTS
of more events on OAARSN Bulletin
Board and Calendar, and our archive
of past OAARSN news bulletins.
submissions for this news bulletin or for the OAARSN Calendar and Bulletin
Board in plain text format by email to firstname.lastname@example.org
with "announcement" at the beginning of the subject line.
details of the following as BRIEFLY as possible:
Speakers and Topics of Event
and Location of Event
information to learn more about event
Do Not Send Files Or Brochure Attachments
AUTISM : Help Solve the Puzzle
Beginning on July 5th, 2003, John Keating and
Luc Vandeermeeren, both fathers of children with autism Autism Spectrum
Disorders (ASD), embarked on a bicycle journey that will take them from
one end of Canada to the other. They began the cycle in Vancouver, British
Columbia and will end in St. John’s, Newfoundland. It will take them 8
weeks to complete this journey. They will stop in many cities along the
way. Our goal is to promote awareness of Autism Spectrum Disorders (ASD)
and raise $1,000,000 in Canada for ASD research through an
annual cross-Canada Cycle for Autism. The Cycle
will begin July 5 to August 24, 2003 with fundraising events held in various
cities across Canada including Vancouver, Calgary, Regina, Winnipeg, Ottawa,
Toronto, Montreal, Halifax and St. John’s. These events will not only raise
funds but increase public awareness as well. Please click for the Cycle
for Autism website.
Cycle for Autism
is coming to Ottawa
Luc and John will be riding through Ottawa on
August 11th. In order to raise money to support this incredibly important
cause, ASO Ottawa will be hosting a "Cycle for Autism Benefit Concert"
at Centrepointe theatre on Saturday August 9th at 7:30 p.m. All tickets
are priced at $15 (plus
theatre surcharges). The concert will feature
many talented local musicians who have volunteered their talent and time
to support the cause. All proceeds will be donated to Cycle for Autism,
with 10% being gifted back to ASO Ottawa Chapter.
How you can help:
1. Tickets for the concert are on sale as
of today at the Centrepointe box office, 101 Centrepointe Drive, Nepean.
Tickets may be purchased in person, or by phone at 580-2700 or Toll-free:
1-866-752-5231 (summer hours) 11 a.m. - 3 p.m. Mon. - Fri. (closed weekends).
Tickets can be purchased online at www.centrepointetheatre.ca
PLEASE SPREAD THE WORD. Encourage your families, neighbours and co-workers
to attend. Attending the concert will not only provide a great evening
of entertainment, but will also provide a very public forum to show our
support for autism and the Cycle.
2. Be a pledge rider. Go to www.cycleforautism.com
for details on how to sign up. There will be a 10K ride-along pledge
ride on Monday August 11th as the riders enter Ottawa. The ride will
begin at 4 p.m. and conclude at 5 p.m. at the rally at City Hall.
3. Plan to attend the rally. We hope to have
a number of families, friends and supporters on hand to greet the cyclists
as they enter town. We will be first gathering on Parliament Hill
to cheer the riders as they arrive, then moving to Ottawa city hall (less
than 1 km and an
easy walk) for a reception and rally. The
rally begins at 4:15 at Parliament Hill and 5:00 at City Hall. Please
plan to attend.
THIS IS AN UNPRECEDENTED ONE-TIME OPPORTUNITY FOR
OUR COMMUNITY TO RAISE THE PROFILE OF AUTISM BOTH LOCALLY AND NATIONALLY.
Please support this incredible effort. For more information on the
concert, to volunteer, to receive posters, etc. please contact Anita at
(613)829-4723 or by e-mail at email@example.com.
For more information on the cycle, or how to become a pledge rider, contact
Casey at (613)738-9140.
Autism Services: Workshops in Central West Region
1st Thursday of month: Social Skills for young
adults 16-25 years
Sept 18: Introduction to Autism Spectrum Disorders
Sept 23: (Orangeville) Long Term Planning: Legal
and Estate Planning
Sept 27: Long Term Planning: Legal and Estate
Oct 7: Occupational Therapy Workshop
Oct 23: Behavior Strategies
Nov 6: Asperger Syndrome
Nov 20: Long Term Plannning: Personal Support
Dec 11: Introduction to Autism Spectrum Disorders
Dec 16: Recreation and Leisure Skills
Also Education Forum still to be arranged.
Most events are free and to be held in the KPAS
Resource Centre in Brampton, unless otherwise stated. Click
for more information about all these events
See also: Funding
Issues--in OAARSN Discussion Boards and Topics. Press the Communications
bar on OAARSN’s main page
then choose Discussion Area
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FROM THE FRONT
HELP AND SHARING EXPERIENCES
adults with autism is usually negative. OAARSN receives many appeals for
advice on where to turn for help--with diagnosis and assessment, advocacy,
planning for the future, alternatives to approaches that are not working.
There are virtually no obvious sources of help for isolated adults with
autism and their caregivers.
We know that
some adults and their families and caregivers are heroically using what
resources they have to achieve some successes with their challenges. Some
can report remarkable progress. We invite you, as an adult or caregiver
living with autism, to share your problems and your success stories, if
you think others might help or benefit.If you wish, we will not publish
your name or email address. You may send a message to firstname.lastname@example.org
for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing
the Communication bar on our main