12 July 2003
Please note the wealth of news, announcements and
other links in our weekly OAARSN News Bulletins that are archived on our
website. Click for the list
of OAARSN bulletins.
AUTISM IN THE
Child Advocate's office has
suffered under Tories: Toronto Star stories
watchdog probe a sham
children deserve a stronger voice
pledges "super ministry"for children's issues [if the Conservatives
promise stronger child advocate
Closing of 6 group homes for 28 adults with autism
on protests by parents and workers
boy receives service dog
with autism a noted artist
Danny Muller (29) who is
non-verbal and lives in a group home, speaks through his art.
man with autism is wildlife photographer and long-distance swimmer
A life of routine, then grievous
The money his father left was allegedly stolen,
and his home was sold. The emotional loss may be greater. Update
on Ronnie Mich of Philadelphia
Sarah Peralta (9) of Lexington, MA introduces
her brother, Evan, who is eight and has autism.
Set apart by their odd habits, people with Asperger
syndrome may have vast amounts of knowledge but few friends. They just
want others to know why.
for Grandparents of Children with Aspergers, by Nancy Mucklow
Essential Difference: Men, Women and the Extreme Male Brain
A review in The British Medical Journal of Simon
Baron-Cohen's new book, in which three kinds of normal human brain are
discussed: "empathising" (type E), "systemising" (type S), and "balanced"
(type B, which is a meld of types E and S). At its extreme, the author
argues, the systemising brain is autistic.
works with families to make brain tissue available
to researchers who look for evidence of changes in the brain that explain
autistic behaviors and can give clues about useful treatment.
Toronto Star review of Mark Haddon's new book,
Curious Incident Of The Dog In The Night-Time, in which Christopher
(15 and autistic) is the narrator.
of Human Dignity
Occupational therapists are performing quiet miracles
by helping people regain their independence...
OF EVENTS OR SPECIAL PROJECTS
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Do Not Send Files Or Brochure Attachments
CYCLE FOR AUTISM
: Help Solve the Puzzle
Beginning on July 5th, 2003, John Keating and
Luc Vandeermeeren, both fathers of children with autism Autism Spectrum
Disorders (ASD), embarked on a bicycle journey that will take them from
one end of Canada to the other. They began the cycle in Vancouver, British
Columbia and will end in St. Johnís, Newfoundland. It will take them 8
weeks to complete this journey. They will stop in many cities along the
way. Our goal is to promote awareness of Autism Spectrum Disorders (ASD)
and raise $1,000,000 in Canada for ASD research through an
annual cross-Canada Cycle for Autism. The Cycle
will begin July 5 to August 24, 2003 with fundraising events held in various
cities across Canada including Vancouver, Calgary, Regina, Winnipeg, Toronto,
Montreal, Halifax and St. Johnís. These events will not only raise funds
but increase public awareness as well. Please click for the Cycle
for Autism website.
CANADAN AUTISM RESEARCH CENTRES
Funds raised by the Cycle for autism will support
increased Canadian research into autism spectrum disorders, like that described
on these websites:
Autism Spectrum Disorders
- Canadian-American Research Consortium ( ASD-CARC
Canadian Autism Intervention
Research Network ( CAIRN )
CYCLE FOR AUTISM LOG
Saturday July 5th: Vancouver to
Hope (Luc writing)
We're off! After months of preparation,
the big day has finally arrived. The official sendoff took place at English
Bay in Vancouver. Media coverage was great. CTV News, Citypulse News and
The Province newspaper were there to cover the action. Christine Dade,
President of Autism Society Ontario, officially sent the riders and crew
on their 7,400 km journey ? the first coast-to-coast autism fundraising
event ever held in Canada. Ellen Woodsworth, the Deputy Mayor of Vancouver,
Ellen Watsworth welcomed us to the beautiful city of Vancouver and wished
us well on our journey. The Cycle for Autism team would like to thank Marianne
Brown, ASBC event coordinator and Anna Donato, Cycle for Autism program
director, for giving us a great sendoff. After John and I dipped our bike
tires in the Pacific Ocean, the team said tearful goodbyes to loved ones.
Emilie, Bryan and Sara ? I want you to be good for mommy and I'll see you
in four weeks. My God that's a long time. I'm going to miss all of you
so much. Five motorcycle police officers and two mounted police, on Sam
& Harley, escorted us and our motorcade through downtown Vancouver.
Pledge riders who rode with us a short distance included a twelve year
boy with autism and Ben Kramer, a 47 year old man with autism who will
swim around the island of Manhattan on August 13th to raise funds for research
and support programs. The route was flat for all of 60 feet before going
up a big hill on Davie Street ? a portent of things to come.
Leaving Vancouver we cycled through
the most beautiful countryside any of us had ever seen with lush, majestic
mountains on either side of the wide U-shaped Fraser valley. We enjoyed
a terrific lunch at the Mission Springs
Restaurant and Brewing Company and
made a promise to return one day to sample the beer. Chris, the restaurant
manager, supported our cause by making our meals complimentary. Thanks
also for the nice hats, Chris. Rebecca our waitress was excellent. After
cycling 165 km, we arrived at the City of Hope at 7:30 pm. We stayed at
the Colonial 900 Motel, run by Jack and Phyllis Randall. They had seen
us earlier on TV and gave us a free room for the night. Thanks also to
Diana, manager of the Home Restaurant, for giving us great service, huge
dinner portions and two complimentary meals.
Day 2: Hope to Merrit (John
Sunday July 6, we were up early
awakening to a beautiful sunny morning. We went for breakfast and while
ordering, a couple approached us and asked if we were the one's cycling
across Canada for Autism. They had seen us on
television. They were Frank and
Sylvia Hutchins from Hope. They told us about their daughter and son in
law Joel and Neil Roberts who have a 3 ½ yr old son Adrian who has
Autism. They were just a terrific couple who could not thank us enough
for what we are doing. They gave us a very nice donation and then also
picked up our breakfast bill. Thanks Frank and Sylvia. It was great meeting
both of you. Hi to Adrian and his family. Keep the hope and faith, there
is a great future!!!!!!
After breakfast we jumped on the
bicycles and headed out onto the Coquihalla highway for what was a day
that Luc and I never really expected. The day was nothing but mountains,
and I mean mountains. The WHOLE day. When I cycled for 90 days across the
USA 2 yrs ago, I never encountered mountains this big for the whole day.
There were times when we were climbing up hills almost at the same slow
speed transports were going. After a long hard day of cycling, we finally
reached Merritt. We cycled 113 KM today up to an elevation of 3,900 feet,
all mountains. We stayed at the Best Western. They donated the rooms to
Cycle for Autism. This is a great Best Western with very clean rooms and
a great restaurant and most importantly, a great HOT TUB which I immediately
threw my sore body into. We all eventually made good use of the hot tub.
I encourage anyone in Merritt to stay at this Best Western, it's a great
place and they really supported Autism. We are just going to sleep now
to rest these tired bodies.
We want to say Hi to all our families.
I really miss my children Kurtis and Krystal. I think of them every second
and can't wait to get home to be with them. I love you two sooooooo much.
new announcement for this week
Saturday, July 19th, 2003, in Guelph
ASO Biomedical Support Group,
Hear Robin Fraser discuss naturopathic medicine
and NAET (Nambudripad's Allergy Elimination Techniques): how they work,
how they can help build health, followed by demonstration of NAET, including
testing for sensitivities and allergies.
RSVP and for directions: please phone 823-9232
or email email@example.com
Monday, July 21, in Toronto
Social Accounting 1/2 Day
Workshop for Nonprofit Accountants
What is the value of our volunteer resources,
and how can we document this in a credible way?
How can we use this information to tell our performance
story in financial statements, annual reports, in funding proposals, and
in volunteer recognition programs?
How can we demonstrate to policy makers and accounting
bodies the social value of non-profit organizations?
The Funding Connection
905-686-0781 or 1-866-746-3696
and Crisis Plans
progress report by Nancy
Cherry of Waterloo
Nancy Cherry of Waterloo has begun a project with
the hope of accomplishing several things:
1. Developing a template for calling 9-1-1 should
the primary caregiver be unable to make the call
2. Registering with the police so that when a
9-1-1 call is placed there is an electronic alert displayed that gives
3. Registering with the local hospital or crisis
clinic to avoid the intake procedure when dealing with an out-of-control
individual who has special needs and may be non-verbal
4. Finding a tracking device to monitor children
who regularly wander (and adults who want to develop more independence
To learn more about Nancy's project, please contact
her at phone (519) 884-3309 or email firstname.lastname@example.org
A Guelph family has formed a buying club linked
with the Ontario Natural Food Co-op. A buying club or co-op is a group
of individuals who get together to buy directly from the wholesaler, thus
saving money and getting access to quality products. Of particular interest
to families following special diets that avoid gluten, casein and other
food substances that people with ASD cannot tolerate. If you live in or
near Guelph, you might ask to join this co-op. Otherwise, we may be able
to connect you with a co-op in your city or region. For more information
Survey of CCAC
Services in Relation to Autism Spectrum Disorders
Have you, as a person or family living with ASD,
used services available through Community Care Access Centres? How helpful
have you found them? Please let us know of your experience. Any information
will be generalized, as a basis for advising other families of the value
of CCAC-funded services. We will not publish your name or location. Please
reply to email@example.com
See also: Funding
Issues--in OAARSN Discussion Boards and Topics. Press the Communications
bar on OAARSNís main page
then choose Discussion Area
A model of positive behavioral support for individuals
with autism and their families: The family focus process. Positive behavioral
support is a comprehensive approach used to address challenging behavior
and improve broad lifestyle outcomes that serve to increase the overall
quality of an individual's life. In Focus on Autism and Other Developmental
Disabilities. Publication date: 2003-07-01
FROM THE FRONT
HELP AND SHARING EXPERIENCES
adults with autism is usually negative. OAARSN receives many appeals for
advice on where to turn for help--with diagnosis and assessment, advocacy,
planning for the future, alternatives to approaches that are not working.
There are virtually no obvious sources of help for isolated adults with
autism and their caregivers.
We know that
some adults and their families and caregivers are heroically using what
resources they have to achieve some successes with their challenges. Some
can report remarkable progress. We invite you, as an adult or caregiver
living with autism, to share your problems and your success stories, if
you think others might help or benefit.If you wish, we will not publish
your name or email address. You may send a message to firstname.lastname@example.org
for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing
the Communication bar on our main