We sadly announce the
from cancer of the Rev. Lucie Milne of Newmarket, loyal member of WWAS
and keen supporter of our efforts to make autism better known in the
An artist and writer, as well as retired minister of the Presbyterian
in Canada and former missionary to the Bhil Field, India, she wrote
and reviewed books for AAIWW and OAARSN. She was also the author of About
Myself: Portrait of Andrew who has Autism (1998). For a sample, see
essay on "Overcoming E-fear" in AAIWW 8
page 8. You may find other reviews and essays by searching from the
page of our website and typing in her name.
Our sympathy to
family who have suggested that friends might care to give to autism
in her memory.
to our Website
Matthew's New Job
Matthew is a young man of nearly 21 who
with his family in one of the smaller towns of the Region of Waterloo.
He has PDD and juvenile diabetes, and he and his family have had a very
hard time obtaining appropriate supports from service agencies. He is
and eager to work with people who understand him. Recently he and his
found him a little job with Mennonite co-workers in a quarry about 30
from his home and they hope the company will be able to keep him
for the story
Grandin: “AUTISM A PART OF WHO I AM” reported by Minna
Please note the wealth of news,
other links in our weekly OAARSN News Bulletins that are archived on
website. Click for the list
of OAARSN bulletins.
suffered under Tories
children aren't getting the help they need because of systemic problems
virtually ignored by the provincial government. In a newly released
a children's rights group said Ontario compares miserably to other
when it comes to protecting children under government care and helping
to stop and prevent abuse.
An article by Murray Campbell in The Globe
Mail, Saturday, Jun. 21, 2003, begins:
"This is the context: There were no known
deaths of children in the care of the Ontario government in the 18
before the Progressive Conservatives came to office, but there have
seven since then.
"There are some 23,000 children in group
foster homes, mental-health centres and young-offender institutions for
whom the government is, in effect, the parent. The sad reality for
kids is that their parenting seems to leave a lot to be desired.
"The controversy about how well Ontario's
children are being served is played out through Child Advocate Judy
the person responsible under law for ensuring that government treats
charges fairly. Ms. Finlay has held her post for 13 years, and has
good relations with a series of supervising ministers."
The Globe and Mail article
group home's failure reflects Ministry inaction, report says
Neglect and inaction by the provincial
of Community, Family and Children's Services contributed to major
housing and safety problems at Ottawa Valley Autistic Homes, says a
obtained by the Citizen. See also Autistic
home's reports misfiled
standards for school autism programs: pilot project
Ten school boards across the province have
chosen as pilot sites for new standards for services and programs for
with autism, Deputy Premier and Minister of Education Elizabeth Witmer,
camp good news story from the Toronto Star
Autistic teens grasp new skills, at a day
that offers work placements and field trips that teach basic life
diagnosed early: Therapy for toddlers makes 'huge difference'
Several stories from your families.
A good story from south Florida about how
children come to realize that "seemingly simple tasks are major
for autistic children."
Lawson: autism is about strengths and abilities as well as impairment
Wendy Lawson, a PhD candidate in Victoria,
has autism as do two of her four children.
disorder that spurs genius
A perspective on autism from India.
for a day
Lawrence Osborne describes for The New York
his experience of transcranial magnetic stimulation by the Medtronic
Pro, operated by Allan Snyder, one of the world's most remarkable
of human cognition. A side-effect of TMS is that subjects can suddenly
exhibit savant intelligence -- those isolated pockets of geniuslike
ability that most often appear in autistic people.
and Autism linked
BBC’s Radio 4's, "File on Four" has
a superb investigative programme, with thorough research and interviews
in the US as well as the UK. Click on the heading to read the text. Or
you may listen again with this link
scroll down the list to "File on 4" and click on "listen."
ailments in children being linked to strep
Sudden-onset OCD or tics are recognized
to have a name: PANDAS, for Pediatric Autoimmune Neuropsychiatric
Associated with Streptococcal Infection.
OF EVENTS OR SPECIAL PROJECTS
of more events on OAARSN Bulletin
Board and Calendar, and our archive
of past OAARSN news bulletins.
submissions for this news bulletin or for the OAARSN Calendar and
Board in plain text format by email to email@example.com
with "announcement" at the beginning of the subject line.
details of the following as BRIEFLY as possible:
Speakers and Topics of Event
and Location of Event
information to learn more about event
Do Not Send Files Or Brochure Attachments
July 4-6 , 2003
5th Canadian Fragile X
and Autism Spectrum Disorders Conference. Kingston, Ontario. Click
for more details
CYCLE FOR AUTISM :
Beginning on July 6th, 2003, John
and Luc Vandeermeeren, both fathers of children with autism Autism
Disorders (ASD), will embark on a bicycle journey that will take them
one end of Canada to the other. They will begin the cycle in Vancouver,
British Columbia and end in St. John’s, Newfoundland. It will take them
8 weeks to complete this journey. They will stop in many cities along
way. Our goal is to promote awareness of Autism Spectrum Disorders
and raise $1,000,000 in Canada for ASD research through an
annual cross Canada Cycle for Autism.
Cycle will begin July 5 to August 24, 2003 with fundraising events held
in various cities across Canada including Vancouver, Calgary, Regina,
Toronto, Montreal, Halifax and St. John’s. These events will not only
funds but increase public awareness as well. Please click for the Cycle
for Autism website.
August 16 & 17, 2003
for Autism and Related Disorders
Coast Plaza Hotel, Calgary, AB
Speakers are Dr. Stephanie Cave, Dr.
Singh, Dr. Mary Megson, Dr. David Geier, Dr. William Shaw, Dr. Woody
Dr. Michael Brown, and Dr. Mark Geier
Register on-line at www.greatplainslaboratory.com/calgary
December 11-13, 2003
Chicago "the most inclusive and vibrant disability conference around"
Super Early Bird savings of up to $40 per
are available by registering before June 30th If funds will
be freed up for your organization after July 1st, call or e-mail --
of these low rates can be made until July 15th, but no extensions will
be available after that date.
Over 400 sessions representing an incredible
of topics from a just-as-incredible group of presenters are planned .
range from the authors whose names are on the backs of the books on
shelves to a great number of people with disabilities, family members,
teachers, direct care staff and others who are out in the trenches
good ideas into good lives every day. (In fact we are still accepting
for poster sessions -- call or see our web site for details.) Come to
for one of the most invigorating and rejuvenating experiences around
a person committed to progressive disability policy, research, and
change! Find out more about the Conference or register by
Or call to register with a credit card by phone (1-800-482-8274, ext.
East Coast business hours).
and Crisis Plans
progress report by
Cherry of Waterloo
Nancy Cherry of Waterloo has begun a project
the hope of accomplishing several things:
1. Developing a template for calling 9-1-1
the primary caregiver be unable to make the call
2. Registering with the police so that when
9-1-1 call is placed there is an electronic alert displayed that gives
3. Registering with the local hospital or
clinic to avoid the intake procedure when dealing with an
individual who has special needs and may be non-verbal
4. Finding a tracking device to monitor
who regularly wander (and adults who want to develop more independence
Nancy has made many useful contacts. One
she has planned is set for Thursday July 10 with a company in Toronto
could build on its existing products to make a (wireless interactive)
device that would also hold vital medical and other personal
If you are interested in learning more about Nancy's project, or in
the meeting, please contact Nancy at phone (519) 884-3309 or email firstname.lastname@example.org
A Guelph family has formed a buying club
with the Ontario Natural Food Co-op. A buying club or co-op is a group
of individuals who get together to buy directly from the wholesaler,
saving money and getting access to quality products. Of particular
to families following special diets that avoid gluten, casein and other
food substances that people with ASD cannot tolerate. If you live in or
near Guelph, you might ask to join this co-op. Otherwise, we may be
to connect you with a co-op in your city or region. For more
Services in Relation to Autism Spectrum Disorders
Have you, as a person or family living with
used services available through Community Care Access Centres? How
have you found them? Please let us know of your experience. Any
will be generalized, as a basis for advising other families of the
of CCAC-funded services. We will not publish your name or location.
reply to email@example.com
Issues--in OAARSN Discussion Boards and Topics. Press the
bar on OAARSN’s main page
then choose Discussion Area
Newsletter: Volume One, Issue Number 3, June 2003
To subscribe, contact Dennis Debbaudt at firstname.lastname@example.org
Dennis Debbaudt now has three web
Autism Risk Management Project http://www.autismriskmanagement.com/
[about his investigative business]
The Police & Autism: Avoiding
carried an article in their March edition titled "Heartbreak & Joy"
about a mother's struggle to raise a child with autism. The
to that article was so great that Canadian Living has created an autism
forum on their web site. To participate, visit www.canadianliving.com/forums
A new Discussion
Group for Adults with Autism
"This group is for adults
to share among professionals, psychologist, psychiatrist and eductors,
discussing the issues of autism from an inside perspective. It is
that both professionals and people of autism come to better terms of
each others roles in interventions, teachings, and the motives behind
interventions of people of autism. This list will hopefully help
within their clinical settings and or classrooms begin to understand
cause and effects of the internal reactions to people with autism from
various approaches. My purpose for the list is to hopefully allow
a chance to learn how people of think and respond to life. It is not a
place for therapy, or to dispute one's thinking, but a way to learn
each. None of the professionals on the list are to promote their
or work as in spam mail. People of autism here are not on public
and none of their words can be taken for personal gains, or copied
the consent of the individual persons permission. None of the post here
can be shared off list. This list is not open to parents, as
need a safe place to express themselves in a mutual way that is safe
them too. Although if you are a professional who also happens to be a
of a child with autism then you are welcomed. ** A professional is any
one who devotes most of their life work to those diagnoses with ASD. If
you are unsure if you meet the criteria please send
a post of introduction and
be detrmined if you qualify."
London Speech and
Centre was founded by Kerry Erle, Speech-Language Pathologist,
1987. Nationally recognized for excellence, our mission is to
the social, emotional, educational and vocational advancement of
with communication and learning challenges. Website: www.londonspeech.com
"Talk about Fun”
Camp is a unique day camp for 3-10 year olds
speech, language and/ or learning difficulties. We are now
registrations for July and August, 2003. In its eighth year, this
camp offers kids a much- needed boost in communication and learning
over the summer months. It is attracting a record number of
campers from all parts of southwestern Ontario. But there are
camp spots available! Each camper receives an initial screening
from a speech-language pathologist, an individualized treatment program
and two one-on-one therapy sessions per day. Treatment goals are
addressed throughout the day using interactive games and activities.
ratios are kept extremely low (i.e. 3:1 maximum) to allow lots of
attention for campers. Parents are kept up-to-date on therapy progress
with written reports from speech-language clinicians each day.
London Speech and Language
is privately funded; however camp fees may be covered through employee
health benefits (i.e. under "speech-language pathology"), extended
care insurance or severely disabled children’s benefits (i.e. under
provisions). Families are encouraged to investigate funding
prior to registration.
request camp brochures or posters or to talk with one of our staff,
call (519) 642-7370. Ask for: Terri Corriveau, M.Cl.Sc., Reg.
Speech-Language Pathologist, Clinical Supervisor
OR Sue Ciphery. B.A., B.Ed.
of Educational Services Camp Leader
for a story about Kerry Erle
HELP AND SHARING EXPERIENCES
adults with autism is usually negative. OAARSN receives many appeals
advice on where to turn for help--with diagnosis and assessment,
planning for the future, alternatives to approaches that are not
There are virtually no obvious sources of help for isolated adults with
autism and their caregivers.
some adults and their families and caregivers are heroically using what
resources they have to achieve some successes with their challenges.
can report remarkable progress. We invite you, as an adult or caregiver
living with autism, to share your problems and your success stories, if
you think others might help or benefit.If you wish, we will not publish
your name or email address. You may send a message to email@example.com
for OAARSN. Or you might use the OAARSN Discussion Board, reached by
the Communication bar on our main