26 May 2003
GUIDE TO THE
Note the wealth of news, announcements and other
links in our weekly OAARSN News Bulletins which are archived on our website.
Click for the list
of OAARSN bulletins to the end of March, and note the following recent
AUTISM IN THE
Montreal clinic designed to help autistic children
The Montreal Children's Hospital has launched
its Autism Spectrum Disorders Program designed to provide a whole range
of services to autistic children and their families.
is no match for Aaron's determination
The story of Aaron Grimm's journey through high
school in Wetaskiwin, Alberta and his graduation.
A very good story from California about Ben who
has Asperger's Syndrome.
review The boy who could not tell a lie
For The Telegraph (UK) Carol Ann Duffy reviews
..."a beautifully written – and beautifully published book [about Asperger's],
suitable for 11-year-olds and upwards... Haddon is to be congratulated
for imagining a new kind of hero, for the humbling instruction this warm
and often funny novel offers and for showing that the best lives are lived
where difference is cherished."
Title: The Curious Incident of the Dog in the
Night-time Author: Mark Haddon
Publisher: David Fickling/Jonathan Cape, £10.99.
ISBN 0224063782 270pp
Channel Five is making a TV drama about the alleged link between autism
and vaccines. "Hear the Silence" will be televised in the autumn.
OF EVENTS OR SPECIAL PROJECTS
of more events on OAARSN Bulletin
Board and Calendar
See our archive
of past OAARSN news bulletins.
submissions for this news bulletin or for the OAARSN Calendar and Bulletin
Board in plain text format by email to firstname.lastname@example.org
with "announcement" at the beginning of the subject line.
details of the following as BRIEFLY as possible:
Speakers and Topics of Event
and Location of Event
information to learn more about event
Do Not Send Files Or Brochure Attachments
Friday, June 20 and Saturday, June 21, 2003 in
Autism Society Ontario's Annual Autism Conference
and General Meeting
Guest presenter and keynote speaker - Dr.
and registration form
For more information call 416-246-9592
June 21 & 22, in Vancouver
Foundation, 4th annual conference
Discovering the autistic transformation:
Empowering the autistic community
Guest Keynote Speaker Dr. Lars Perner,
(Professor of Marketing, Riverside,
University of California)
Guest workshop leader Phoebe Murer,
(Artist, writer and college student
majoring in psychology at Arcadia University, Pennsylvania)
Panel of self advocates (Local AF
Early bird registration deadline:
June 6th, 2003
Limited space available (60 people)
For autistic teens & adults
and families, professionals and paraprofessionals involved in raising,
supporting and educating autistic individuals.
*Certificate of Attendance – each
participate will receive a certificate for attending all workshops at the
To register: call 604-802-2622/email:
Visit the ANCA
October 17 and 18, 2003 in Edmonton, Alberta
to the Treasure Chest
4th annual conference featuring Carol Gray and
Dr Tony Attwood
November 21-22, 2003 in Montreal, QC
4th International Medical Conference on Autism
2003 - Understand, Act and Heal
Contact: ATEDM (Autisme et troubles
envahissants du développement Montréal)
Autism 2003 Tel: 514-524-6114 Fax:
514-524-6420 Email: email@example.com
CALLING ALL ARTISTS -
MINISTRY OF EDUCATION CONFERENCE
An Opportunity to showcase artistic
talents of Ontario students with ASD
Autism Society Ontario is hosting
a two-day display of the artwork of students with ASD at the Ministry of
Education's Conference on Autism on September 10-12, 2003.
Artwork due in June/July. If you
would like to submit a piece of work for consideration, please contact
Jean Woolford at ASO's provincial office: 416-246-9592 x 23 or by email
firstname.lastname@example.org as soon
previously posted, in brief:
May 30 & 31, 2003 in Toronto
2nd National Conference on Aspergers Syndrome
Click for details
Tuesday 3rd June 2003 in Kitchener
Annual General Meeting of Waterloo-Wellington
June 10, 2003, in Hamilton
Canadian Psychological Association
and Ontario Psychological Association present Community Speaker Series
on "Some ABCs of attention, learning and behavior in children" with
Dr Tom Brown and Dr Susan Bryson. Free admission.Click
June 12 & 13, 2003 in Toronto (at Ryerson University)
Results Based Management
and Evaluation Workshop
presented by Harry Cummings and Associates Inc.(HCA)
workshop information Visit
the HCS website
June 21 & June 22, 2003
Ryerson University, Toronto, Ontario
Open Windows Essential Training:
June 29-July 2, 2003,
in the Adirondack region of New York State.
Autreat is a retreat-style conference
run by Autism Network International.
for more information and contacts
July 4-6, 2003, in Kingston Ontario
5th Canadian Fragile X Syndrome and Autism Spectrum
Click for Conference
for Autism updated website
Please note the new material on autism
See also: Funding
Issues--in OAARSN Discussion Boards and Topics. Press the Communications
bar on OAARSN’s main page
then choose Discussion Area
SPECIAL SERVICES AT HOME
IS 21 YEARS OLD!
LET'S KEEP IT EFFECTIVE!
This individualized form of funding is a popular
and effective way of providing some flexible help to families who support
their children and adults with special needs. At last count, the Ontario
Ministry of Community, Family, and Children's Services spent 6 per
cent of its $1 billion budget to provide 18,500 families with an average
The SSAH Coalition invites you to urge the Ministry
to increase SSAH $$$$ and thus the ability of families to cope and improve
their children's and adults' quality of life. Even if your family is doing
all right, please speak up for the families, children and adults who are
not getting enough help yet.
But there are more than 1,000 families on the waiting
Last year more than $2 million (that has been allocated
to SSAH) was diverted to other purposes.
Many families who support adults at home don't know
they could get SSAH dollars
Families who live with autism spectrum disorders should
apply for increased funding
Click to reach PDF files about SSAH and the campaign
to send a huge number of Father's Day Faxes to the Minister.
from the Special Services at Home Coalition
First Choice News
Day Fax to the Minister advocating more SSAH funds
print, complete and fax in the week preceding Father's Day on June 15.
DISABILITY AND ADULT LIFE
Online Newsletter offered by JACKIE MARQUETTE,
author on Independence Bound (2002) and mother of Trent who has made a
successful transition to life in the community.
1) PURPOSE OF NEWSLETTER
2) WHAT A COMMUNITY COACH CAN OFFER
3) TRENT’S PRINTS
4) MEDIA COVERAGE
5) AUTISM ONE CONFERENCE
6) ABOUT JACKIE MARQUETTE
Email Jackie: Jam4independence@aol.com
9-1-1 Protocol and Crisis
Nancy Cherry of Waterloo has begun a project called
"9-1-1 Protocol and Crisis Plans" with the hope of accomplishing several
1. developing a template for calling 9-1-1 should
the primary caregiver be unable to make the call
2. registering with the police so that when a
9-1-1 call is placed there is an electronic alert displayed that gives
3. registering with the local hospital or crisis
clinic to avoid the intake procedure when dealing with an out-of-control
individual who has special needs and may be non-verbal
4. finding a tracking device to monitor children
who regularly wander (and adults who want to develop more independence
Nancy wants to reach individuals, families and
other primary caregivers who have stories to tell about handling crises
of the kinds suggested in the goals above. She writes: "Family Net has
very kindly offered to help with this project. We need to interview families
over the phone who have had experience with safety issues. We would like
their personal stories as well as the kinds of changes they would like
to see happen in the province. Success stories interest us as well. If
any families have put special measures in place, we would like to hear
how they made arrangements."
If you are willing to have a phone interview or
otherwise share your experience, please contact Nancy at phone (519) 884-3309
or email Nancy Cherry <email@example.com>
Nancy is also working on contacts for the Ontario
Association of Chiefs of Police and the OPP, and would appreciate any leads.
NOTE THIS HELPFUL RESOURCE
Protecting the Child or
Adult with Autism: Information for Parents and Other Caregivers
WHAT YOU NEED TO KNOW----
WHAT YOU CAN DO----
if your loved one gets into these situations:
Wanders away * Doesn't fear danger * Upset
by new situations * Public outbursts * Can't I.D. self or explain
what's wrong * Dangerous obsessions * Crime victim * Crime suspect
for guide produced by the South Carolina Autism Society--downloadable
in PDF as leaflet.
TRACKING DEVICES THAT COULD
GIVE EVERYONE PEACE OF MIND
as our children and adults
explore their environs.
(with thanks to Nancy Morrison)
Please comment if you have experience, or suggest
1. Digital Angel seems promising, but they have
suspended taking orders due to demand at the moment, Also , like other
devices, there is a delay in providing monitoring support in Canada. http://www.digitalangel.net/
2. IDs that individuals can wear on parts of the
body, such as the ankle.
3. GPS PERSONAL LOCATOR FOR CHILDREN by Wherify
"Wherify's GPS Personal Locator helps keep loved
ones safe by combining Wherify's patented technology with the U.S. Department
of Defense's multi-billion dollar Global Positioning System (GPS) satellites
plus the largest 100% digital, nationwide PCS wireless network."
A portion of your purchase/subscription price
could be donated to Cure Autism Now.
FROM THE FRONT
HELP AND SHARING EXPERIENCES
adults with autism is usually negative. OAARSN receives many appeals for
advice on where to turn for help--with diagnosis and assessment, advocacy,
planning for the future, alternatives to approaches that are not working.
There are virtually no obvious sources of help for isolated adults with
autism and their caregivers.
We know that
some adults and their families and caregivers are heroically using what
resources they have to achieve some successes with their challenges. Some
can report remarkable progress. We invite you, as an adult or caregiver
living with autism, to share your problems and your success stories, if
you think others might help or benefit.
with Asperger's speaks out to parents
When Gary Waleski learned he had Asperger’s syndrome,
he was relieved. His life started making sense. His advice to parents:
"Definitely don’t look at your child as doomed."
If you wish,
we will not publish your name or email address. You may send a message
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Or you might use the OAARSN Discussion Board, reached by pressing the Communication
bar on our main page