ONTARIO ADULT AUTISM 
RESEARCH AND SUPPORT NETWORK 
NEWS BULLETIN
OAARSN offers a rich and expanding collection of up-to-date information and communication tools that can put you in touch with others. We can all benefit from the opportunities for mutual support, encouragement and information sharing. We hope that OAARSN's efforts to promote positive approaches and best practices in supporting adults with autism can help all who live and work on the front lines. Click on OAARSN's main page

See our archive of past OAARSN news bulletins.

Send news, announcements and comments to gbloomfi@uoguelph.ca We welcome news items, announcements of autism events, new information, discussion questions and comments, and accounts of experience.

 

NEWS BULLETIN
19 May 2003

NEW ON OAARSN
 

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AUTISM IN THE NEWS

Supreme Court to hear autism case
The Supreme Court of Canada has agreed to hear a landmark case involving the right of judges to direct how health-care money should be spent. In the decision under appeal by the British Columbia government, the B.C. Court of Appeal ordered the province to provide intensive treatment for autistic children. See also: Appeal ruling hailed by advocates
 

Autism diagnoses double in California [in four years]
A New York Times story about last week's major report.
For links to the official California report
Autism alert Newsweek's commentary on the California statistics.
Comment on the California data in The Telegraph (UK)
 

Kennedy Krieger Institute awarded $7.7 million over 5 years to study autism,
as one of eight centres of STAART, or Studies to Advance Autism Research and Treatment, in the US.
 

Behavioral problems, social competence and self-concept in siblings of children with autism
Abstract of a Dutch research project, with a link to the full text. "Overall, siblings of children with HFA are not more susceptible to adaptation problems than siblings of children without a disorder. Implications for practice and further research are discussed.
 

Autistic traits in the general population
An abstract in Archives of General Psychiatry of twin-based research that found that the social deficits characteristic of autism spectrum disorders are common.
 

Mind the gap
"I am fascinated by autism and love my sons, but it is relentless. I cope by making sure I still have a life outside." Charlotte Moore, who has two sons with autism, writes a regular thought-provoking column in The Guardian. This column begins:
'As autism is a spectrum disorder, autists exhibit wildly differing traits. Their idiosyncrasies, deficits, and abilities can make one autist almost as unlike another as he is from a non-autistic person. But if autists often have little in common, there is one experience that unites all their parents: being asked the question "how do you cope?"' 
 

Mother appeals for more understanding
A story from the front lines about a mother in Wales whose two sons and father all have Asperger's.

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ANNOUNCEMENTS OF EVENTS OR SPECIAL PROJECTS

See details of more events on OAARSN Bulletin Board and Calendar
See our archive of past OAARSN news bulletins.

Please send submissions for this news bulletin or for the OAARSN Calendar and Bulletin Board in plain text format by email to ebloomfi@uoguelph.ca with "announcement" at the beginning of the subject line.
Please provide details of the following as BRIEFLY as possible: 
 Name of Event
 Main Speakers and Topics of Event 
 Date of Event 
 City and Location of Event 
 Contact information to learn more about event 
 Please Do Not Send Files Or Brochure Attachments 

new announcement

May 24, 2003, in Richmond Hill
SENSORY INTEGRATION - 'MAKE & TAKE' WORKSHOP
INSTRUCTOR - SHIRLEY SUTTON, OCCUPATIONAL THERAPIST
Saturday May 24th 9:00 a.m. to 4:00 p.m. Pre-registration required
Meeting Room B13, Loyal True Blue and Orange Home, 11181 Yonge Street, Richmond Hill
Click for details

 
June 12 & 13, 2003 in Toronto (at Ryerson University)
Results Based Management and Evaluation Workshop 
presented by Harry Cummings and Associates Inc.(HCA) of Guelph.
"Evaluation is a form of analysis that helps managers make decisions about current or future projects, programs or initiatives." 
Nandana Prasad, who is on the OAARSN network, is a member of the HCA team. She writes: "I think that evaluation and planning could play an important role in the autism field. A social impact assessment of having a child with ASD in the classroom, in the school and in the family would be one aspect of evaluation and planning. Another would be access to services in rural areas. What are they, how many and who is providing them? HCA has conducted and written a report on services for immigrants in a northern community. This study revealed the deficits and challenges for new Canadians in rural northern towns. In another study, HCA conducted an evaluation of the second chance program for Justice, Canada. This is a program that helps youth find meaningful employment or return to school. The workshop teaches transferrable skills that can be used everywhere."
For workshop information  Visit the HCS website 
 

October 17 and 18, 2003 in Edmonton, Alberta
Keys to the Treasure Chest 
4th annual conference featuring Carol Gray and Dr Tony Attwood
 

previously posted, in brief:

May 30 & 31, 2003 in Toronto
2nd National Conference on Aspergers Syndrome
Click for details

Tuesday 3rd June 2003 in Kitchener
Annual General Meeting of Waterloo-Wellington Autism Services
More information

June 10, 2003, in Hamilton
Canadian Psychological Association and Ontario Psychological Association present Community Speaker Series on "Some ABCs of attention, learning and behavior in children" with Dr Tom Brown and Dr Susan Bryson. Free admission.Click for flyer

June 21 & June 22, 2003 
Ryerson University, Toronto, Ontario
BIOMEDICAL CONFERENCE 
Open Windows Essential Training: 
www.autismcanada.org   Call (905)-332-4766 

Autreat 2003, June 29-July 2, 2003, 
in the Adirondack region of New York State.
Autreat is a retreat-style conference run by Autism Network International. 
Click for more information and contacts

July 4-6, 2003, in Kingston Ontario
5th Canadian Fragile X Syndrome and Autism Spectrum Disorders Conference
Click for Conference flyer

July-August 2003
Cycle for Autism updated website 
Please note the new material on autism research objectives 
Email: cycleforautism@sympatico.caTel:905-832-3959
 

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ISSUES AND ADVOCACY

See also: Funding Issues--in OAARSN Discussion Boards and Topics. Press the Communications bar on OAARSN’s main page then choose Discussion Area

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HELPFUL RESOURCES

The Canadian Autism Intervention Research Network (CAIRN) is a consortium of researchers, parents, professionals, and policy makers from across Canada that is dedicated to using a repeating cycle of defining the research agenda, conducting research, disseminating the findings, and receiving feedback, which is then used to redefine the agenda (The Research Iterative Loop) to improve diagnostic methods and interventions in autism spectrum disorders. The CAIRN website is committed to posting the best available evidence-based findings. 
See the  Report on the 2003 CAIRN conference February 8 & 9, Toronto, Ontario. 
"The one theme that emerged from the feedback was the need for consistency — in research outcomes and outcome measures, in research methods, in screening tools, in policy about interventions, and in the delivery of interventions."
 

Autism Society Ontario York Region Chapter and the Junior League of Toronto plan to launch the latest in a series of comprehensive educational manuals dealing with Autism Spectrum Disorder (ASD): Children Diagnosed with Autism--What to Expect & Where to Get Help: 
Strategies and Information for Ontario Families and Care Providers
This parent-friendly guidebook will be publicly introduced at a celebration on:
Tuesday, May 27, 2003, 7:00 to 9:00 PM
at the Loyal, True Blue and Orange Home 11181 Yonge Street, Richmond Hill

This project is a complete and thorough discussion of ASD.  It covers everything from what you can do to help the child with ASD all the way to financial resources. This is a must attend event for not only parents of children with ASD and their service providers, but also:
Preschool Autism Services Wait Listed Families
Pre-, Nursery and Primary School Staff
Private Service Providers of ABA/IBI Programs
Private Agencies Including: Occupational Therapists, Speech and Language Pathologists and Behaviour Consultants
Publically Funded Autism Service Providers
Other Supporting Professionals                                                               .
We look forward to your attendance at this event and to sharing with you a terrific new resource that will help so many! Phone 905-780-1590 
 

New Software Program to Help Learn Emotions & Facial Recognition
Mind Reading: the interactive guide to emotions.
Thanks to Bernice Polinsky and the AHA-AS-PDD Newsletter http://www.aha-as-pdd.org
http://www.udel.edu/bkirby/asperger/
Click on either the Social Skills area or the Important News area.
Created by Simon Baron-Cohen, Jacqueline Hill, Ofer Golan, and Sally Wheelwright at the Autism Research Centre of the University of Cambridge in the UK, this program (available for Windows and Mac on DVD-Rom and CD-Rom) uses actors to portray over 5000 video and audio expressions of emotion. ;-)
There is an "Emotions library" where 412 different emotions are organized into 24 groups. Video clips of people of all ages demonstrate through the use of stories, definitions and explanations of the facial expressions.
The "Learning Center" includes lessons and quizzes. The "Games Zone" allows users to have a bit of fun while practicing and testing their skills. Here users will find a special visitor -- the young actor who portrays Harry Potter.
 

AUTISM TODAY invites you to consider membership
Benefits include:
Access to our expanding list of "Resident Experts"
Download of experts articles and papers as many of the experts are having us maintain this information for them. 
Discounts on resources like books, videos, CD's. 
Discounts on listing and advertising. 
Discounts on Tele-Classes. 
Search of all historical articles and creative talents. 
Click for more information

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FROM THE FRONT LINES: 
CALLING FOR HELP AND SHARING EXPERIENCES

News about adults with autism is usually negative. OAARSN receives many appeals for advice on where to turn for help--with diagnosis and assessment, advocacy, planning for the future, alternatives to approaches that are not working. There are virtually no obvious sources of help for isolated adults with autism and their caregivers.

We know that some adults and their families and caregivers are heroically using what resources they have to achieve some successes with their challenges. Some can report remarkable progress. We invite you, as an adult or caregiver living with autism, to share your problems and your success stories, if you think others might help or benefit.

If you wish, we will not publish your name or email address. You may send a message to ebloomfi@uoguelph.ca for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing the Communication bar on our main page

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