ONTARIO ADULT AUTISM 
RESEARCH AND SUPPORT NETWORK 
NEWS BULLETIN
OAARSN offers a rich and expanding collection of up-to-date information and communication tools that can put you in touch with others. We can all benefit from the opportunities for mutual support, encouragement and information sharing. We hope that OAARSN's efforts to promote positive approaches and best practices in supporting adults with autism can help all who live and work on the front lines. Click on OAARSN's main page

See our archive of past OAARSN news bulletins.

Send news, announcements and comments to gbloomfi@uoguelph.ca We welcome news items, announcements of autism events, new information, discussion questions and comments, and accounts of experience.

 

NEWS BULLETIN
12 May 2003

NEW ON OAARSN
 

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AUTISM IN THE NEWS

Ontario children need IBI funding
Lawsuit against province hopes to overturn funding decision. A story about Lillian Wagman and her two autistic children.

Autism parents left to struggle alone 
Sufferers' families cope with round-the-clock caring with little or no help from social services. This story is actually about conditions in Britain but it applies as much in other places too. By Jo Revill in The Observer on Sunday May 11, 2003.
"This week the National Autistic Society will present a report looking at how few parents with autistic children, or autistic adults, actually receive the benefits and help to which they are entitled. A survey of 548 members found that more than 60 per cent of carers had difficulties getting support from social services, with many unable to find a social worker they felt understood their needs. One-third of carers openly admitted they didn't understand the benefits system, with two-thirds of those who had made a claim saying they had problems filling out the relevant forms."
....But it is the lack of a basic understanding of the disorders that [is most troubling].  An Asperger's syndrome sufferer told the survey organisers: 'I don't have a social worker now because my past experiences were mostly negative. None of them ever had any knowledge or understanding of the syndrome. When my family and I tried to explain my problems and the type of support I would need, they always replied that such a service wasn't available, and there were no funds to cover such provision."  
A related report from the Guardian 
Another account from BBC News

Major Autism Report by State of California 
A status report that compares 2003 data with 1999 and refers to several other key reports.

Autism is "two separate illnesses" 
The British Psychological Society conference last week heard that autism is really a combination of two separate illnesses, each controlled by different sets of genes.

Autism: different opinions 
Letters to the British Medical Journal commenting on Peter Szatmari's editorial article "The causes of autism spectrum disorder." BMJ 2003; 326: 173-174.

Vaccine, autism link considered
An epidemic of autism and other brain problems in children is linked to vaccines, say doctors, activists and one member of Congress who met at Loyola University in Chicago over the weekend.

Treating Autism: Parent Stories of Hope and Success, edited by Stephen M. Edelson and Bernard Rimland. Announcing a collection of in-depth stories written by parents and doctors who have used the rational, non-drug Defeat Autism Now! (DAN!) biomedical treatments recommended by ARI to improve the lives of autistic children. 

Autistic kids make progress through PLAY 
About a unique program that tries to draw autistic children out of their shells through intensive, guided play sessions with their parents and trained specialists.

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ANNOUNCEMENTS OF EVENTS OR SPECIAL PROJECTS

See details of more events on OAARSN Bulletin Board and Calendar
See our archive of past OAARSN news bulletins.

Please send submissions for this news bulletin or for the OAARSN Calendar and Bulletin Board in plain text format by email to ebloomfi@uoguelph.ca with "announcement" at the beginning of the subject line.
Please provide details of the following as BRIEFLY as possible: 
 Name of Event
 Main Speakers and Topics of Event 
 Date of Event 
 City and Location of Event 
 Contact information to learn more about event 
 Please Do Not Send Files Or Brochure Attachments 

new announcement

June 10, 2003, in Hamilton
Canadian Psychological Association and Ontario Psychological Association present Community Speaker Series on "Some ABCs of attention, learning and behavior in children" with Dr Tom Brown and Dr Susan Bryson. Free admission.Click for flyer

June 11, 2003, in Hamilton
Canadian Psychological Association sponsors all-day workshop:
Autistic Spectrum Disorders: An Update on Recent Advances and Issues in Diagnosis, Assessment and Intervention with Featured Speaker: Susan E. Bryson Ph.D. Professor and Craig Chair in Autism Research, IWK Health Centre, Dalhousie University
Click here for full information and registration form. Registration Deadline: May 16, 2003. Enrollment Limited

previously posted, in brief:

May 30 & 31, 2003 in Toronto
2nd National Conference on Aspergers Syndrome
Click for details

Tuesday 3rd June 2003 in Kitchener
Annual General Meeting of Waterloo-Wellington Autism Services
More information

June 21 & June 22, 2003 
Ryerson University, Toronto, Ontario
BIOMEDICAL CONFERENCE 
Open Windows Essential Training: 
www.autismcanada.org   Call (905)-332-4766 

Autreat 2003, June 29-July 2, 2003, 
in the Adirondack region of New York State.
Autreat is a retreat-style conference run by Autism Network International. 
Click for more information and contacts

July 4-6, 2003, in Kingston Ontario
5th Canadian Fragile X Syndrome and Autism Spectrum Disorders Conference
Click for Conference flyer

July-August 2003
Cycle for Autism updated website 
Please note the new material on autism research objectives 
Email: cycleforautism@sympatico.caTel:905-832-3959
 

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ISSUES AND ADVOCACY

See also: Funding Issues--in OAARSN Discussion Boards and Topics. Press the Communications bar on OAARSN’s main page then choose Discussion Area

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HELPFUL RESOURCES

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FROM THE FRONT LINES: 
CALLING FOR HELP AND SHARING EXPERIENCES

News about adults with autism is usually negative. OAARSN receives many appeals for advice on where to turn for help--with diagnosis and assessment, advocacy, planning for the future, alternatives to approaches that are not working. There are virtually no obvious sources of help for isolated adults with autism and their caregivers.

We know that some adults and their families and caregivers are heroically using what resources they have to achieve some successes with their challenges. Some can report remarkable progress. We invite you, as an adult or caregiver living with autism, to share your problems and your success stories, if you think others might help or benefit.

If you wish, we will not publish your name or email address. You may send a message to ebloomfi@uoguelph.ca for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing the Communication bar on our main page

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