ONTARIO ADULT AUTISM 
RESEARCH AND SUPPORT NETWORK 
NEWS BULLETIN
OAARSN offers a rich and expanding collection of up-to-date information and communication tools that can put you in touch with others. We can all benefit from the opportunities for mutual support, encouragement and information sharing. We hope that OAARSN's efforts to promote positive approaches and best practices in supporting adults with autism can help all who live and work on the front lines. Click on OAARSN's main page

See our archive of past OAARSN news bulletins.

Send news, announcements and comments to gbloomfi@uoguelph.ca We welcome news items, announcements of autism events, new information, discussion questions and comments, and accounts of experience.

 

NEWS BULLETIN
28 April 2003




NEW ON OAARSN

Latest issue of Adult Autism Issues in Waterloo-Wellington now on site.
Read PDF version

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FROM THE FRONT LINES: 
CALLING FOR HELP AND SHARING EXPERIENCES

A Place for All by Jasmine Lee O'Neill
"I write from the depths of myself. As an autistic lady, I have my own bubble world that
encases me. In it, I have all the gifts, charms, personal experiences, and unique perceptions
that create who I am. I am mute, but have rich inner language. I'm equipped to describe the
many good things about being autistic. The negative is stressed by people who live on the
outside, looking in. But, I'm on the inside, looking out, and don't view the condition of Autism
as being bad at all."
In The Pennsylvania Journal on Positive Approaches, VOLUME 1, NUMBER 2, SPRING 1997 
Published by the Pennsylvania Office of Mental Retardation (OMR) Statewide Training Initiative through Temple University, Institute on Disabilities, University Affiliated Program and Contract Consultants,
Inc., 105 Old York Road, New Cumberland, PA 17070.Dedicated to helping people with developmental disabilities and challenging behaviors live fulfilling everyday lives. Through case studies, Positive Approaches practices and tools, book reviews, interviews, policy and regulation reviews, and articles, the following Positive Approaches continuum of supports will be highlighted and explored: 
       Values and Changes in Environment 
       Effective and Enhanced Communications 
       Appropriate Specialized Assessments & Interventions 
       Wrap Around and Extraordinary Supports - Hanging In There

News about adults with autism is usually negative. OAARSN receives many appeals for advice on where to turn for help--with diagnosis and assessment, advocacy, planning for the future, alternatives to approaches that are not working. There are virtually no obvious sources of help for isolated adults with autism and their caregivers.

We know that some adults and their families and caregivers are heroically using what resources they have to achieve some successes with their challenges. Some can report remarkable progress. We invite you, as an adult or caregiver living with autism, to share your problems and your success stories, if you think others might help or benefit.

If you wish, we will not publish your name or email address. You may send a message to ebloomfi@uoguelph.ca for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing the Communication bar on our main page

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AUTISM IN THE NEWS

Autistic treatment case heads to court in Toronto today
Autistic children are being denied essential medical treatment and education, according to 29 families who have launched a $100 million lawsuit against the province. The trial, which begins in Superior Court in Toronto this morning, seeks to force Ontario to provide intensive therapy for autistic children that would continue as the child progresses through the school system. Read more about the families' case

They just can't help it
What kind of brain do you have? There really are big differences between the male and female brain, says Simon Baron-Cohen. And they could help explain conditions such as autism. Simon Baron-Cohen is the director of the Autism Research Centre, Cambridge University. His new book, The Essential Difference: Men, Women and the Extreme Male Brain, will be published by Penguin on May 1.
Do you have a male or female brain? Take the test

Autism Advance: Mutated genes disrupt nerve cell proteins
A French research team has identified two mutated genes that appear to cause the neurological disorder known as autism. The little-studied genes both normally yield proteins that nerve cells use to form communication channels. "These are the first genes convincingly linked to autism," says team member Thomas Bourgeron of the Pasteur Institute in Paris. Other researchers find the evidence compelling, if not quite conclusive.

The Persisting Autism Mystery
A review in the Harvard Mental Health Letter (Tuesday, 01-04-2003).

Mind the gap
"When a child is diagnosed as autistic, there is no point wishing for a cure. Acceptance is the only way to cope." Charlotte Moore, whose two older sons are autistic, in her Guardian column, April 23, 2003. " If I had my time again, I'd intervene straight away with a gluten-free, casein-free, additive-free diet, and as much interventionist behavioural therapy as I could manage. I'd keep them out of mainstream school until I was certain they were ready for it - and I'd try to accept that that day might never come." 

Horse power helps handicapped surmount life's daily obstacles
A good story from Japan about therapeutic riding.

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ANNOUNCEMENTS OF EVENTS OR SPECIAL PROJECTS

See details of more events on OAARSN Bulletin Board and Calendar
See our archive of past OAARSN news bulletins.

Please send submissions for this news bulletin or for the OAARSN Calendar and Bulletin Board in plain text format by email to ebloomfi@uoguelph.ca with "announcement" at the beginning of the subject line.
Please provide details of the following as BRIEFLY as possible: 
 Name of Event
 Main Speakers and Topics of Event 
 Date of Event 
 City and Location of Event 
 Contact information to learn more about event 
 Please Do Not Send Files Or Brochure Attachments 

new announcements

Thursday, May 8th, 2003, in Fergus
ASO: Wellington County Chapter's AGM 
(with dinner from 6:30 pm) at The Fountain Head Health Store, 212 St. Andrew St. W., Fergus. Len Kahn will give a PowerPoint presentation about the ASO and set the stage for a brighter future of our chapter.  RSVP a.s.a.p.  and for more information: Marlene Klimkosz, phone # (519) 822-2578. Email: aso_wcc@hotmail.com

Tuesday 3rd June 2003 in Kitchener
Annual General Meeting of Waterloo-Wellington Autism Services
at the Stanley Park Baptist Church, 31 Lorraine Ave, Kitchener. More information

Autreat 2003, June 29-July 2, 2003, in the Adirondack region of New York State.
Autreat is a retreat-style conference run by Autism Network International.  We are now accepting proposals for workshops to be presented at this year's Autreat.  Click for more information and contacts

CALLING ALL ARTISTS - 
MINISTRY OF EDUCATION CONFERENCE ON AUTISM
An Opportunity to showcase artistic talents of Ontario students with ASD  (artwork required by June 30th, for display in Sept., see below)
Where? Autism & Education Conference in Toronto
What? Artwork produced by K-High School students with ASD in Ontario's Schools
When? September 10-12, 2003
Details:
¨ Autism Society Ontario is hosting a two-day display of the artwork of students with ASD at the Ministry of Education's Conference on Autism on September 10-12, 2003. 
¨ Ideally, we would like to have representation of student's work from each of our 30 ASO chapters. 
¨ Artwork must be tastefully framed and able to be easily displayed on a wall or supported by an easel. Three-dimensional pieces may also be considered. 
¨ Work must be delivered to the Provincial ASO by no later than Friday, June 30, 2003. The Coordinator for this project is Jean Woolford.
¨ Basic information (Name, age of student, home town) will be displayed along with the title of the work.
¨ A signed consent from the student and his/her parent will be required in order for us to display the work and to take a photo of the work for publication in a program booklet.
¨ Arrangements will be made to have the pictures returned after the show
If you would like to submit a piece of work for consideration, please contact Jean Woolford at ASO's provincial office: 416-246-9592 x 23 or by email jean@autismsociety.on.ca as soon as possible.

previously posted, in brief:

May 12, 2003 in Brampton, Ontario
Kerry's Place Autism Services offers
Long Term Planning Workshop

May 30 & 31, 2003 in Toronto
2nd National Conference on Aspergers Syndrome
Click for details

June 21 & June 22, 2003 
Ryerson University, Toronto, Ontario
BIOMEDICAL CONFERENCE 
Open Windows Essential Training: 
Limited seating - Early Bird Rate expires May 1st, 2003 
www.autismcanada.org   Call (905)-332-4766 

July 4-6, 2003, in Kingston Ontario
5th Canadian Fragile X Syndrome and Autism Spectrum Disorders Conference
Click for Conference flyer

July-August 2003
Cycle for Autism updated website
Email: cycleforautism@sympatico.caTel:905-832-3959
 

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ISSUES AND ADVOCACY

See also: Funding Issues--in OAARSN Discussion Boards and Topics. Press the Communications bar on OAARSN’s main page then choose Discussion Area

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HELPFUL RESOURCES

Autism Today
Check out and consider subscribing to this site with its many informative features, including a "World class team of  Resident Experts such as Temple Grandin, Simon Baron-Cohen, Lisa Lewis, Donna Williams, (and now also safety advocate Bill Davis) to advise you and guide you with your concerns about any aspect of autism."

Accessible and Affordable Natural and Organic Foods
A Guelph family is forming a buying club linked with the Ontario Natural Food Co-op. A buying club is a group of individuals who get together to buy directly from the wholesaler, thus saving money and getting access to quality products. Of particular interest to families following special diets. For more information email gbloomfi@uoguelph.ca

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