ONTARIO ADULT AUTISM 
RESEARCH AND SUPPORT NETWORK 
NEWS BULLETIN
OAARSN offers a rich and expanding collection of up-to-date information and communication tools that can put you in touch with others. We can all benefit from the opportunities for mutual support, encouragement and information sharing. We hope that OAARSN's efforts to promote positive approaches and best practices in supporting adults with autism can help all who live and work on the front lines. Click on OAARSN's main page

See our archive of past OAARSN news bulletins.

Send news, announcements and comments to gbloomfi@uoguelph.ca We welcome news items, announcements of autism events, new information, discussion questions and comments, and accounts of experience.

 

NEWS BULLETIN
21 April 2003
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FROM THE FRONT LINES: 
CALLING FOR HELP AND SHARING EXPERIENCES

Do you wonder what it's like to be me?

Iím a bundle of sensations
I get the urge
to touch and pick
and I must follow my urges.

Can you see my urges?
I canít tell you
I just show you.

Iím a bundle of nerves
and a jumble of thoughts.
Iím in constant motion
and my mindís always going.

I wonder what itís like to be you.
Do you wonder what itís like to be me?
Iím a time bomb waiting to explode
And a tear waiting to fall.

-by Andrew who types but does not speak (2003)

News about adults with autism is usually negative. OAARSN receives many appeals for advice on where to turn for help--with diagnosis and assessment, advocacy, planning for the future, alternatives to approaches that are not working. There are virtually no obvious sources of help for isolated adults with autism and their caregivers.

We know that some adults and their families and caregivers are heroically using what resources they have to achieve some successes with their challenges. Some can report remarkable progress. We invite you, as an adult or caregiver living with autism, to share your problems and your success stories, if you think others might help or benefit.

If you wish, we will not publish your name or email address. You may send a message to ebloomfi@uoguelph.ca for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing the Communication bar on our main page

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NEW ON THE OAARSN WEBSITE

The Kitchener Public Library's special Autism Collection of books, videos and other information materials is moving closer to launching and use by the reading public. The colection has been made possible by a special grant of $20,000 from Waterloo Wellington Autism Services to the Kitchener Public Library Foundation. Some individuals are also giving books, videos and donations to the collection. WWAS has pledged to make smaller annual donations to keep the collection current. We understand that readers and patrons elsewhere in Ontario may request books in this collection through inter-library loan. We hope this idea will catch on in other Ontario communities. 

Books and videos for the special Autism Collection are being ordered from the lists posted on our website. OAARSN will continue to notice and review new books and videos in our page, Books on the Autism Spectrum. Here are notes about three new books:

A Parent's Guide to Asperger Syndrome and High-Functioning Autism: 
How to Meet the Challenges and Help Your Child Thrive
By Sally Ozonoff, Geraldine Dawson and James McPartland. 
Guilford Press, 2002. ISBN: 1572307676. 278 pages; appendix of resources, references, index
Click for our review

Two Books about Living with Asperger's (click for more details and brief reviews)
Buster and the Amazing Daisy: Adventures with Asperger Syndrome
by Nancy Ogaz. 2002. ISBN: 184310721X Distributed for Jessica Kingsley Publishers by UBC Press in Canada. $19.95 Paperback 

Finding Ben: A mother's journey through the maze of Asperger's
By Barbara La Salle. McGrawHill, 2003.   ISBN: 007140225X. 

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AUTISM IN THE NEWS

Ontario orders closure of six Ottawa group homes for adults with autism
The Ministry found "financial and management issues" in its review of Ottawa Valley Autistic Homes. Kerry's Place Autism Services has agreed to work with the 26 residents and their families towards person-centred planning and more individualized living situations.

We note that a new support group for adults with Aspergerís Syndrome was recently started in Ottawa, named ďAspirationsĒ. See news item from Maap Services.

Nature's account of revised DNA sequence on Chromosome 7
Geneticist Stephen Scherer, of the University of Toronto, and his colleagues have identified the site of more than 100 new mutations associated with autism, several leukaemias and lymphomas.CBC report

"Safe" Lead Levels Pose Risk to Children's Intelligence
From the April 17 issue of The New England Journal of Medicine.

MMR and Autism Study Debated in the Current New England Journal of Medicine Volume 348:951-954 March 6, 2003 Number 10). "Measles, Mumps, and Rubella Vaccination and Autism" includes letters from Walter Spitzer and Wakefield.

Mercury in Jabs may contribute to autism

Seeking the First Signs of Autism
Researchers Hope Early Diagnosis, Intervention Can Improve Outcomes
A good story about Rebecca Landa, director of the Center for Autism and Related Disorders at Baltimore's Kennedy Krieger Institute, and the first study funded by the National Institutes of Health (NIH) to detect autism in children aged 14 months and younger.

Setting a Trend? Extended Autism Intervention Funding (EAI)
Effective April 1, 2003, families in British Columbia may be able to access Extended Autism Intervention funding of up to $6,000/year for school-age children with ASD when intervention is recommended by a specialist pediatrician, psychiatrist, registered psychologist, or neurologist) and all designated forms have been completed. 
Another announcement

Autistic children need our compassion

Technology to track lost people

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ANNOUNCEMENTS OF EVENTS OR SPECIAL PROJECTS

See details of more events on OAARSN Bulletin Board and Calendar
See our archive of past OAARSN news bulletins.

Please send submissions for this news bulletin or for the OAARSN Calendar and Bulletin Board in plain text format by email to ebloomfi@uoguelph.ca with "announcement" at the beginning of the subject line.
Please provide details of the following as BRIEFLY as possible: 
 Name of Event
 Main Speakers and Topics of Event 
 Date of Event 
 City and Location of Event 
 Contact information to learn more about event 
 Please Do Not Send Files Or Brochure Attachments 

new announcements

May 12, 2003 in Brampton, Ontario
Kerry's Place Autism Services offers
Long Term Planning Workshop

May 30 & 31, 2003
2nd National Conference on Aspergers Syndrome
Metro Toronto Convention Centre - South Building
Presented by The Aspergers Society of Ontario
Click for details

July 4-6, 2003, in Kingston Ontario:
5th Canadian Fragile X Syndrome and Autism Spectrum Disorders Conference
Click for Conference flyer

July-August 2003
Cycle for Autism updated website
Email: cycleforautism@sympatico.caTel:905-832-3959
 

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ISSUES AND ADVOCACY

See also: Funding Issues--in OAARSN Discussion Boards and Topics. Press the Communications bar on OAARSNís main page then choose Discussion Area

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HELPFUL RESOURCES

Support Worker: Special Needs, News and Resources
"A website providing news, feature articles and forums for people working in social services. Working with people with disabilities, psychiatric problems or behavior problems can be challenging. It is our goal to assist social service workers to make more informed decisions and provide better care."

Maap Services, Inc. is a nonprofit organization dedicated to providing information and advice to
     families of More advanced individuals with Autism, Asperger's syndrome, and Pervasive
     developmental disorder (PDD). Through its quarterly newsletter, The Maap, the organization
     provides the opportunity for parents and professionals to network with others in similar
     circumstances and to learn about more advanced individuals within the autism spectrum. 
Visit the maapservices website
How can Maap Services Help?
     Maap Services, Inc. supports families of more advanced individuals within the autism spectrum and
     the professionals who work with and for them by:

  • Producing The Maap, a quarterly newsletter. The newsletter allows subscribers to exchange information, learn about issues related to autism spectrum disorders, and share with others who face similar challenges. The Maap has reached over 10,000 individuals and families in 45 countries. 
  • Distributing printed materials relevant to more advanced individuals with autism, Asperger's Syndrome, and Pervasive Developmental Disorder. 
  • Responding to phone calls, letters and e-mail from family members, professionals, and individuals with autism who need advice or information. 
  • Presenting information at conferences, workshops, and meetings of parent and community groups. 


DAN! Protocol Seminars offered by Christine Laurent
Of interest to families and caregivers concerned with biomedical interventions.

Accessible and Affordable Natural and Organic Foods
A Guelph family is forming a buying club linked with the Ontario Natural Food Co-op. A buying club is a group of individuals who get together to buy directly from the wholesaler, thus saving money and getting access to quality products. Of particular interest to families following special diets. For more information email gbloomfi@uoguelph.ca

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