24 March 2003
OAARSN is three years old!
What changes have we seen since we launched the
website in March 2000?
There seems now to be much greater awareness of
autism in the news media, where there was almost nothing in Canada three
Estimates of the prevalence of autism continue
to rise. But we wish publicists and advocates would be more accurate in
their claims. Too often we see statements like this: "Ten (or twenty years)
ago autism affected only one in ten thousand children. Now, it's up to........"
However, for nearly 40 years, we've been able to quote prevalence rates
of 4 to 5 in every 10,000 (for classic autism) based on careful studies
in several world regions. Autism affects so many now, we don't need to
exaggerate the increase. And such statements also downplay the plight of
adults with ASD, whose numbers are now increased by all those whose Asperger's
Disorder or High Functioning Autism as been identified only in adulthood.
Feisty parents of children with ASD are setting
an example to older parents of adults in demanding funding for appropriate
interventions. Let's hope the next three years will see more encouraging
news of good lives for adults on the autism spectrum.
AUTISM IN THE
Another story about the increased
prevalence of ASD, with a call for research.
Brunswick Parents Protest
An angry group of parents of autistic
children engaged in a verbal confrontation with New Brunswick's ministers
of health and education during a demonstration outside the legislature.
The parents have campaigned for the past three years for the province to
fund Applied Behavioural Analysis treatment.
autistic is my child?
Sophie Petit-Zeman on the man who
is helping speed up diagnosis of a condition which affects over 2,000 British
children a year
Through A Glass Darkly; The Battle of Autism: Finding
the Root Causes
Tory and George Mead are the parents
of two children, Eleanor and William born in May 1998. George is an attorney
who at one time practiced medical malpractice defense (defending doctors
and hospitals). Tory is a writer and an advocate for special needs children.
They live in Portland, Oregon. The full
article is from Redflagsweekly.com, a web publication that probes the
politics of health issues.
issues patent on Biomarker Linking Autism, ADD and ADHD
link may tie together pesticides, ADHD, Gulf War syndrome and other
Research at the Salk Institute has
identified a gene that may link certain pesticides and chemical weaponry
to a number of neurological disorders, including the elusive Gulf War syndrome
and attention deficit/hyperactivity disorder (ADHD). The finding, published
in the March 17 online version of Nature Genetics, is the first to demonstrate
a clear genetic link between neurological disorders and exposure to organophosphate
chemicals; the gene is one that scientists had not studied in previous
efforts to find connections between these chemicals and disease. Organophosphates
include household pesticides as well as deadly nerve gases like sarin.
GPs 'unaware of autism needs' in UK
Many GPs feel unprepared to treat
patients with autism. The National Autistic Society (NAS) found 42% of
GPs felt they lacked the skills or expertise to recognise signs of autism,
half the number who have actually seen patients with autism in the last
12 months. The figure was even higher amongst those GPs who said they had
not seen an autism patient in the last 12 months. Family doctors told the
NAS they wanted more guidance.
Researchers find potential way to cut
Nasrin Rasaee Khalili's research
breakthrough--potentially eliminating mercury from power-plant emissions--couldn't
come at a more opportune time. Studies have shown that exposure to mercury,
a highly toxic heavy metal, may be linked to Alzheimer's disease and autism.
used to calm autism
Upon parents' requests and doctor's
note, Detroit-area school cafeteria workers will prepare gluten- and casein-free
meals for students. Linda Stull, a dietitian with the Department of Education,
gives workers tips about kids' dietary needs.
Parents of autistic children train
in Massachusetts to bring Son-Rise program to Clovis homes.
Behavioral Interventions Workshop
Summary for Autism now available
"Research on Psychosocial and Behavioral
Interventions in Autism: Confronting the Methodological Challenges" is
document about EIBI, drafted by researchers, practitioners and community
members who met on September 5 & 6, 2002 under the sponsorship of several
need to fight
Some institutions need shaking up
to get right care for kids. "Studies show that parents of severely disabled
children are more motivated to advocate for their offspring than parents
of children with mild disabilities. "Sometimes parents of children with
mild disabilities have ambivalent feelings about speaking up for their
youngsters," said Lynette Rosser, a family counselor at the Children's
Hospital of Pittsburgh.
New UC Davis M.I.N.D. Institute Buildings to Display
Artwork of Children, Adults with Autism Click
Research on Autism Spectrum Disorders
19 Autism Related Abstracts – contains
these research abstracts
* How well does
early diagnosis of autism stand the test of time? Follow-up study of children
assessed for autism at age 2 and development of an early diagnostic service.
* Ability profiles
in children with autism: influence of age and IQ.
* The development
and maintenance of friendship in high-functioning children with autism:
functioning in a group of Swedish adults with Asperger syndrome or high-functioning
autism: insights from mind and brain.
* A retrospective
analysis of the clinical case records of 'autistic psychopaths' diagnosed
by Hans Asperger and his team at the University Children's Hospital, Vienna.
neurocognitive phenotypes in autism.
* Why is joint
attention a pivotal skill in autism?
* Does the perception
of moving eyes trigger reflexive visual orienting in autism?
* The pathogenesis
of autism: insights from congenital blindness.
* The enactive
mind, or from actions to cognition: lessons from autism.
* The systemizing
quotient: an investigation of adults with Asperger syndrome or high-functioning
autism, and normal sex differences.
* Towards an
understanding of the mechanisms of weak central coherence effects: experiments
in visual configural learning and auditory perception.
weak coherence and executive dysfunction: planning drawing in autism and
* The reach-to-grasp
movement in children with autism spectrum disorder.
individual differences in brain abnormalities in autism.
* The role of
the fusiform face area in social cognition: implications for the pathobiology
* Cognitive evoked
potentials in autistic children.
* Joint attention
training for children with autism using behavior modification procedures.
OF EVENTS OR SPECIAL PROJECTS
of more events on OAARSN Bulletin
Board and Calendar
See our archive
of past OAARSN news bulletins.
submissions for this news bulletin or for the OAARSN Calendar and Bulletin
Board in plain text format by email to email@example.com with "announcement"
at the beginning of the subject line.
details of the following as BRIEFLY as possible:
Speakers and Topics of Event
and Location of Event
information to learn more about event
Do Not Send Files Or Brochure Attachments
April 15th, 2003 is deadline for submissions for
"BOOK OF AUTISM ART"
featuring artwork by people on the
autism spectrum all over the world.
Today in collaboration with Autism
The book will be full color, 7 x
10 and under sixty pages. The retail price will be $26.00 USD.
This creative idea is driven by
the desire for both Autism Today and Autism Arts to bring the creative
art talent of those living with an autism spectrum difference greater exposure
and the chance to promote their wonderful work. This will empower them
to express their personal best to a broad audience.
The intent is that each and every
artist selected will be permitted to write a 100-word summary of themselves
and their interest and also list all of their contact information right
in the book next to their artwork. This way others can find their art and
purchase directly from the artist. This offers great potential especially
for the artists!
Artists may submit art which they
have scanned themselves according to the following specifications: 300
dots per square inch (dpi) in tiff format and from 3 x 5 to 6 x 9 inches
in size. At the most, only five pieces will be chosen from any artist.
They will also be asked for their
summary, contact information and will sign a release for publication form.
Also, all participants will be showcased on Autism Arts's virtual
art gallery PH: 780-417-5336
E- mail: ARTism@autismtoday.com
April 28 - 30, 9-5pm
Inclusion Press presents TOOLS
FOR CHANGE workshop
with Hosts Jack Pearpoint and Louise Bailey
College St United Church, 452 College St, Toronto
Hands-on Learning: Graphics, PATH, MAPS, Solution
Tuition $500 per person, payable
to Inclusion Press
Send cheque with full details of
name, address, phone and email
to Inclusion Press, 24 Thome Crescent,
Toronto, ON M6H 2S5
Enrolment is limited; register soon!
For more about Tools for Change, see the Inclusion
May 16 to 18 in Philadelphia:
DAN! Spring 2003 conference
here for a listing of speakers and topics as well as online registration
May 30 and 31, 2003: Second National Conference
Celebrating our achievements: Setting our sights
for conference program
Online Registration will be available
after April 1, 2003.
Metro Toronto Convention Centre
Aspergers Society of Ontario website
See also: Funding
Issues--in OAARSN Discussion Boards and Topics. Press the Communications
bar on OAARSN’s main page
then choose Discussion Area
A HOME OF ONE'S OWN
Most of us would uphold the rights
of every person to have his or her own home, as well as choice about whom
to share it with. People with autism have particular needs for quiet space
in their homes. Even when publicly-funded or subsidized housing is available,
it may not be suitable for people who are hypersensitive to noise and the
closeness of other people.
Do you know people who face similar
An Ontario man with ASD, who does have
his own home and wants to improve it, has been unable to qualify for CMHC
grants generally available for landlords.
One mother with two children, all with
ASD, found a place that was quiet and peaceful, but the landlord will not
maintain or improve the severely sub-standard housing.
Some adults with autism cannot tolerate
group home conditions.
Can you suggest how these problems
could be overcome?
Please reply to firstname.lastname@example.org
for OAARSN. Or you might use the OAARSN Discussion Board, reached by pressing
the Communication bar on our main
page If you prefer to respond privately, we can put you in touch.
1. Sensory Integration Therapy Interview
with Lorna Jean King, OTR, FAOTA
Lorna Jean King (LJK) was one of
the pioneers of sensory integration therapy, an international lecturer
on this topic, and the Founder and Director of the Center for Neurodevelopmental
Studies, Inc. in Phoenix, Arizona. This interview was conducted by Stephen
M. Edelson (SE) on June 9, l996.
2. Teaching Individuals with
Developmental Delays: Basic Intervention Techniques, by Ivar
Lovaas. Ivar Lovaas’ long-awaited update of the UCLA Early Intervention
Project. Provides the what, why, and how of the vaas ABA approach. 2002,
paperback, 429 pages. ($64.00)
3. Vaccines: Are They Really
Safe and Effective?, by Neil Z. Miller, updated/revised 2002.
An extraordinarily interesting and compelling analysis of the vaccine controversy.
Clearly written, illustrated with dozens of
invaluable graphs and fully-documented
(916 references!). This book should be read by every parent, parent-to-be,
physician and legislator. Paperback, 127 pages. ($13.00)
4. Vaccines, Autism and Childhood Disorders: Crucial
Data that Could Save Your Child’s Life, by Neil Z. Miller.
Up-to-the-minute discussions of the MMR controversy, the Danish study,
and Congressional testimony. Thoroughly documented, over 500 references,
28 charts and graphs. 2003, paperback, 128 pages. ($15.00)
FROM THE FRONT
HELP AND SHARING EXPERIENCES
adults with autism is usually negative. We receive many appeals for advice
on where to turn for help--with diagnosis and assessment, advocacy, planning
for the future, alternatives to approaches that are not working. There
are virtually no obvious sources of help for isolated adults with autism
and their caregivers.
We know that
some adults and their families and caregivers are heroically using what
resources they have to achieve some successes with their challenges. Some
can report remarkable progress. We invite you, as an adult or caregiver
living with autism, to share your problems and your success stories, if
you think others might help or benefit.
If you wish,
we will not publish your name or email address. You may send a message
to email@example.com for OAARSN.
Or you might use the OAARSN Discussion Board, reached by pressing the Communication
bar on our main page