Controversy: an investigation.
Three major articles by
Phillips, first published in the Daily Mail, March 11-13 2003.
From the first article:
"Autism is a poorly
characterised by withdrawal and isolation from the world, along with
habits and compulsions. These can include ritualistic hand-flapping,
absence of eye contact, self-injury and consuming interest in inanimate
"But the symptoms displayed
whose parents link their disorder with MMR also include serious bowel
loss of language, excessive thirst, recurrent respiratory problems,
and food intolerance.
"Such a list goes far beyond
current understanding of either autism or bowel disease. And how these
two conditions could be connected to one another, let alone to MMR, is
one of the most vexed questions of all.
"What remains clear is that
level of suffering among the parents of these children is immense.
lives have been turned upside down, and their efforts are nothing short
of heroic. Some have given up careers to care for their children. Many
have little sleep as their children are up for much of the night."
in the Mine: Oregon's Epidemic of Autistic Children.
By Yvonne Buchanan in
Magazine, March, 2003.
"My son has autism. Try
on your tongue; see how they taste." Oregon's prevalence is quoted as
boy in 86 under the age of three years.
win lawsuit over MMR vaccine in Japan
The government and a
affiliated with Osaka University have been ordered to pay a total of
million yen to the families of two children who died or suffered side
after receiving the MMR vaccine.
The vaccine, which covers
mumps and rubella, has since been banned because of its high side
Bacteria's Role In Inducing An Innate Immune
And Its Possible Link To Autism
Linda Carlton and Mary
present the hypothesis that autism maybe the result of a disease
by humans due to the aberrant use of chemicals, drugs, vaccinations,
toxins and poor nutrition.
Charlotte Moore's column in
Guardian, Wednesday March 12, 2003
"I have no idea how Sam and
will cope as adults but one thing I know - they'll never earn a living."
Farm Community is Goal
The Foundation for Adult
for Today and Tomorrow (FASTT) has been founded in the Belleville Area
overrules transplant ban, by Clare Dyer in The
A decision by doctors caring
an autistic teenager with acute kidney failure that he should not be
a kidney transplant, but just given palliative care once dialysis
impossible, has been overruled by England's top family judge, Dame
kids who are twice exceptional
Educators try to identify
gifted students who excel in some subjects but have learning
and require support.
victims face an impaired justice system
People who can't see, hear
like the general population are denied civil rights by a criminal
system that ignores developmentally disabled crime victims, law
and victim advocates say.
According to some
disabled people are raped, murdered and beaten at a rate 9.4 times
than the norm, but their cases get prosecuted 14 times less often. As a
result, researchers say, these victims learn not to report crimes.
is no point. No one listens. Criminals often go free.
OF EVENTS OR SPECIAL PROJECTS
of more events on OAARSN Bulletin
Board and Calendar
submissions for this news bulletin or for the OAARSN Calendar and
Board in plain text format by email to email@example.com with
at the beginning of the subject line.
details of the following as BRIEFLY as possible:
Speakers and Topics of Event
and Location of Event
information to learn more about event
Do Not Send Files Or Brochure Attachments
Clinical Trial Evaluating The Effects Of
Supplements on Autism Research "Casting Call"
If your child is between 4
years old, diagnosed with autism or related childhood developmental
(Asperger's Disorder or PDD-Not Otherwise Specified (PDD-NOS)), and
healthy, your child may be eligible to participate in this clinical
This 10-week study will begin in late April 2003.
Participants will receive
material, forms, and study supplements in the mail. All communications
and follow ups will take place via mail, phone, and/or email with the
staff. Your child will be
randomized to either the
the supplements or the group taking the placebo pills. Total of 13
per day will be required for both study groups during the 10-week study.
The study is being led by
Bradstreet (a physician with a large autism practice in Florida), with
the assistance of the Southwest College of Naturopathic Medicine &
Health Sciences and Arizona State University.
For more information on the
trial please call (321) 953-0278 or email: firstname.lastname@example.org
Autism Society Ontario: Peel Chapter
at Peel Board of Education,
Hurontario street, in the Board room.
A panel presentation of
Services for ASD. For info call (416)390-9193 or email email@example.com
West Coast Symposium Facilitated
April 3, 4, 5, 2003,
Hotel, Whittier, California, Phone: 562-946-0467, X15
DAY 1: THE IMPACT OF FC ON
VIEWS OF DISABILITY
Soma and Tito
Day 2: THE METHOD AND
TRAINING-INDEPENDENCE-USE OF SPEECH
Marilyn Chadwick, etc., etc.
Day 3: FACILITATED
AND QUALITY OF LIFE
Best. Jeanne Willig
Waterloo County Chapter, Autism
a) Silent Auction on April 12th at Fairview
We are highlighting
and antique items. We also have approx. 200
new items. We are
funds for summer camp for kids with ASD.
Donations or info. call our
b) Cycle for Autism on June 8, 2003 to
raise funds for summer camp, education and awareness. It begins
ends at Kitchener City Hall. There are 5, 10 and 40k routes to be
walked, run or biked. Again, same phone number.
to announce the ASO Summer Student Scholarship Program to start in May
2003. The Scholarships (minimum of two per year) will support
conducting research in any field related to Autism Spectrum Disorders.
The $4,000.00 Scholarship is to be applied towards the summer stipends
for the successful applicants. Supplementary funds for the student from
the researcher are recommended to ensure minimum recommended summer
stipends at the university/clinical setting where the student will be
To qualify, the student must be returning to University as a full-time
student during the fall.
Grants for Graduate Study in Autism Spectrum Disorders
ASO is pleased to announce
Grants for Graduate Study in Autism at an Ontario University to start
eptember 2003. The grants (minimum of 2 per year) will support
conducting research in any field related to Autism Spectrum Disorders
are offered to attract students to this field of study.
May 5-10, 2003 at Ghost Ranch, Abiquiu,
Five-Day ABCD RETREAT for
leaders on asset-based community development. JUDITH SNOW of Toronto,
of International Association for Inclusive Citizenship, is one of the
and describes the event as a "weeklong seminar where we can explore in
depth both building contribution and quality lives with individuals
unique differences, and building diverse and peaceful communities from
our assets." See
flyer for details
Europe site has information about the Autism Awareness Campaign
and the International Congress LISBOA
Issues--in OAARSN Discussion Boards and Topics. Press the
bar on OAARSN’s main page
then choose Discussion Area
Court Case : Friends of Children with Autism
28 families from all over
are suing the Province to legally recognize that treatment of autism is
“medically necessary”, just like treatment of diabetes or cancer and to
fund this treatment for all children diagnosed with autism. The case
over four years ago with one family that has twin boys with autism (now
11 years old). A court date has been set for April 23, 2003 in Toronto.
The families are appealing to everyone concerned for children with
to contribute towards the legal costs.
CACL Hosts Policy Forum on Unpaid
Canadian Knowledge Networks for
On February 18-19,
officials, policy makers, academic researchers and community
family members from various family-based disability organizations and
together in Ottawa to attend a policy forum on unpaid
Zuhy Sayeed, Director-at-Large, Robin Acton, Executive
and Co-ordinator of Family Resources, Janis Douglas, participated
at caregiving from the perspectives of eldercare and from family
members caring for
with a disability, as well as one that emphasized a current litigation
case, formed the
for the forum. The process of the forum supported the participants
to identify key policy
and then to further identify who should be engaged, what steps
should be taken and
was needed. Participants discussed policy mechanisms and
options to be explored
as: Labour Standards/codes (care leave); CPP; Tax Benefits, EI,
Work place Benefits,
Care, and Caregiver wage. For further information or copies of the
contact Janis Douglas (firstname.lastname@example.org)
Visual Perceptual Problems
There is growing evidence,
on both research and personal reports, that many autistic
individuals see their world
maladaptive, dysfunctional manner.
1. Scotopic Sensitivity Syndrome and the Irlen
Written by Stephen M.
Center for the Study of Autism, Salem, Oregon
An Interview with Helen Irlen -- By Stephen M.
for a list of other resources by the Center
Choosing the Right Job
with Autism or Asperger's Syndrome
for article by Temple Grandin that begins:
"Jobs need to be chosen that
use of the strengths of people with autism or Asperger's syndrome. Both
high and low functioning people have very poor short-term working
but they often have a better long-term memory than most normal people.
I have great difficulty with tasks that put high demands on short-term
working memory. I cannot handle multiple tasks at the same time."
Autism Asperger Publishing Company is
to interview about how being on the autism spectrum
their job choices in both positive and negative ways for a book on
they plan to publish. If you fit into one of the jobs listed below and
are interested in being interviewed, please contact Kate Duffy at Kduffee@aol.com
for more information by March 22.
Good Jobs for Visual
Computer troubleshooter and
Heating and Air Conditioning
Small appliance and
Web page design
Veterinary technician or
Good Jobs for
for people good with music, math or facts
Jobs for Nonverbal
Autism or People with Poor Verbal Skills
Reshelving library books
Factory assembling work
Lawn and garden work
Fast food restaurant (only
and cooking jobs)
Owning and operating a
is another way to go.
Locksmithing and repair
are especially good.
HELP AND SHARING EXPERIENCES
adults with autism is usually negative. We receive many appeals for
on where to turn for help--with diagnosis and assessment, advocacy,
for the future, alternatives to approaches that are not working. There
are virtually no obvious sources of help for isolated adults with
and their caregivers.
some adults and their families and caregivers are heroically using what
resources they have to achieve some successes with their challenges.
can report remarkable progress. We invite you, as an adult or caregiver
living with autism, to share your problems and your success stories, if
you think others might help or benefit.
we will not publish your name or email address. You may send a message
to email@example.com for
Or you might use the OAARSN Discussion Board, reached by pressing the
bar on our main page