3 March 2003
ON OAARSN SITE
ON VOLUNTEERS is a new section in OAARSN's Communications area
of Volunteering with Adults who have Autism
Volunteers needed!! - current volunteer opportunities with GSA
Why Volunteer? - Catherine Ferguson's experience of volunteering
Andrew's message - living with autism and why volunteers matter
Print or download a volunteer application form
????One of our network members has suggested the
idea that a volunteer
might relate online with an adult or older teenager
who lives with autism....
This could overcome practical and logistical problems
of finding times to get together.
Some ASD people could find meeting online with
a volunteer more comfortable.
What do you think?????
2. Past OAARSN News Bulletins are now archived
the OAARSN site, and their contents can also be reached through
searches of our site. Click
for a list of links to archived bulletins.
February 24, 2003
February 17 , 2003
February 10 , 2003
February 03 , 2003
January 27, 2003
January 20, 2003
January 14, 2003
January 6, 2003
December 20, 2002
October 29 ,2002
October 22 ,2002
3. PLN Bulletins are now being posted and will
be archived on the OAARSN site. PLN LIST began two years
ago for exchanging news and views about strategies of building and maintaining
personal support networks for people with disabilities, and associated
issues. PLN List came into being at the time Planned Lifetime Networks
was incorporated in the Waterloo-Wellington region of southern Ontario.
Members of the List are now distributed in communities across Canada, with
some in other countries too. Click for the current
AUTISM IN THE
there more autism? Or just a new definition?
Mercury in vaccines blamed for illnesses
Parents seek money for autistic
children through class-action
Mainly about the applications for
class-action certification in British Columbia by lawyer David Klein,who
has also filed on behalf of 100 families in Ontario, Manitoba, Alberta
and Saskatchewan. A
for breaking a a promise of full
funding for a treatment program. 23 parents of autistic children filed
legal action last week against the B.C. government as part of a continuing
effort to get court-ordered funding for Lovaas autism therapy.
Court orders BC's provincial government
to cover ASD treatment costs for children aged 6-18 years, but parents
say amount is woefully inadequate.
tries to thwart early treatment
The Government of Newfoundland and
Labrador has gone to court to overturn a provincial Human Rights
Commission ruling requiring it to provide timely treatment to autistic
Brain Signals (video)
Fragile X syndrome is a type of
mental retardation that affects children. Neuroscientists studying the
brains of adult patients have found that there are extra connections in
the Fragile X brain.
brain in the gut
The gut has a mind of its own. Operating
like the cranial brain and looking uncannily similar to it, the gut brain
is continuously active, whether we're aware of it or no....
Can Long-Term Treatment With Antidepressant Drugs
Worsen the Course of Depression?
by Giovanni A. Fava, M.D.
Autism and Hyperlexia
OF EVENTS OR SPECIAL PROJECTS
submissions for this news bulletin or for the OAARSN Calendar and Bulletin
Board in plain text format by email to email@example.com with "announcement"
at the beginning of the subject line.
details of the following as BRIEFLY as possible:
Speakers and Topics of Event
and Location of Event
information to learn more about event
Do Not Send Files Or Brochure Attachments
of more events on OAARSN Bulletin
Board and Calendar:
AUTISM CONSULTANT POSTING
Place Autism Services – Central West Region
Year Contract position for 30 to 37.5 hours per week.
Date: April 1, 2003
Based in Wellington Region
Open Windows Essential Training:
Opening Windows of Hope for Children
with Developmental Disorders
June 21 & June 22, 2003
Ryerson University, Toronto, Ontario,
The first conference of its kind
in Canada .....
"Open Windows Essential Training"
is presented by the International Child Development Research Center (ICDRC)
in conjunction with the Autism Canada Foundation.
This conference will teach you how
to integrate Biomedical, Behavioural, Nutritional and other effective treatment
options in a "whole approach" therapy style, so that you can help maximize
the potential of individuals living with Autism, PDD and Related Disorders.
Guest Speakers include:
Bradstreet, M.D. F.A.A.F.P
Dr. Jerry Kartzinel,
Dr. Lynda Thompson
..... and more ....
In Open Windows Essential Training,
Medical Researchers, Behaviouralists, Parents and Clinicians participate
in an interactive learning experience designed to educate and equip you
for the challenges presented by Autism and Related Disorders.
Click any of the links below for
additional information and to find out how to register
1. DOGS WITH JOBS helping people with autism
Many people have told us about seeing
the half-hour CTV program on Friday 28th.
This is how to reach NSD:
National Service Dogs Training Centre
P.O. Box 28009, Preston Postal Outlet
Cambridge, ON N3H 5N4
Tel: (519) 662-4223
Fax: (519) 662-4697
2. Devices to track lost people
a) Putnam device
that tracks lost people finds few takers. Read
b) Digital Angel holds promise of
increased independence for adults with autism (as they walk their dogs
in their neighbourhoods, for example) with peace of mind for parents and
caregivers. Available and usable in the United States and Europe, Digital
Angel does not yet seem to have adequate satellite support in Canada. Do
any network members know more about the practical usefulness of this device?
about Digital Angel
3. Puzzles and Games
Quite a few adults and teenagers
with autism are remarkably clever with the spatial skills required for
puzzles and some games. But there are too few clever and beautiful puzzles
that are age-appropriate for our people. Andrew recommends several puzzles
made by Imagination Project that has been developing fun, unique, award
winning products since 1994. He particularly likes two puzzles derived
from brilliant designs by M.C. Escher. Check the I-Project
4. Squeeze Machines and Steam Rollers
Temple Grandin is widely known for
her achievements despite her autism. To give her body with the deep pressure
it needed to deal with sensory challenges, she invented a hug (or squeeze)
machine (or box). Her design went into limited production to provide sensory
integration therapy for children and adults with autism. Are there any
such devices in Ontario that could be visited to test their usefulness?
A less expensive and more accessible alternative is Southpaw's Steam Roller
(at $400 US). Southpaw
5. Autistic Spectrum Disorder Diagram
Included in the updated 'First Guide
to Asperger Syndrome' by Sue Gething, Head of Southlands School. Available
from OAASIS for 6 pounds (GBP).
Families of Adults Afflicted with Asperger's Syndrome
PO Box 514 Centerville, MA 02632
6. Autism Asperger’s Digest magazine
Gymnastics, Fast ForWord and Special
Needs Trusts are featured in the latest issue for March-April 2003.
“Gymnastics is the ultimate sensory
playground,” says author Gene Hurwin, who has designed movement programs
for children with special needs for over 20 years. “It is a discipline
designed to integrate and maximize the developing child’s promixal senses:
proprioception (interpreting stimuli originating in muscles and joints,
that give information about the position of the child’s limbs), vestibular
(interpreting stimuli from the inner ear receptors regarding head position,
movement and gravity) and tactile (interpreting light touch and pressure
through skin contact/receptors.) These body-centered senses are the structural
foundation by which more complex and mature operations, and therefore,
occupations are scaffolded.” In his article, Gene explores how a gymnastics
program can be structured for kids with autism, and its potential benefits
in the areas of motor planning, organizational behavior, attention, problem-solving
skills, self-confidence and self-esteem.
The Autism Asperger’s Digest
is a 52 page magazine published bimonthly for the autism community, available
by subscription only. For more information, visit www.autismdigest.com
or call 800.489.0727.
See also: Funding
Issues--in OAARSN Discussion Boards and Topics. Press the Communications
bar on OAARSN’s main page
then choose Discussion Area
FROM THE FRONT
HELP AND SHARING EXPERIENCES
adults with autism is usually negative. We receive many appeals for advice
on where to turn for help--with diagnosis and assessment, advocacy, planning
for the future, alternatives to approaches that are not working. There
are virtually no obvious sources of help for isolated adults with autism
and their caregivers.
We know that
some adults and their families and caregivers are heroically using what
resources they have to achieve some successes with their challenges. Some
can report remarkable progress. We invite you, as an adult or caregiver
living with autism, to share your problems and your success stories, if
you think others might help or benefit.
A Journey with Autism: Excerpt
from Allison's Suncatchers and Chains by Kris Jones (Detselig Enterprises,
If you wish,
we will not publish your name or email address. You may send a message
to firstname.lastname@example.org for OAARSN.
Or you might use the OAARSN Discussion Board, reached by pressing the Communication
bar on our main page