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NEWS AND COMMENTARY
An interesting academic article describes several
relevant projects in which the authors were involved with their daughter
who has special needs, and with other families:
ventures for adults with intellectual disabilities,"
by Carolyn Lemon and James Lemon, The Canadian
Geographer, Volume 47 Issue 4 Pages 414-428, December 2003.
When people with intellectual disabilities gain
some influence over the running of their own households and the organisation
of their workplaces, their lives can improve markedly. But success depends
on community support not only from their families and social workers, but
also from nonprofit groups and public services such as social housing and
public transit. Dominant trends among institutions in the social sector
responsible for meeting the needs of people with intellectual disabilities
have produced models that focus on deficiencies, individualisation and
service. Through cooperative structures and entrepreneurial activity, projects
in community economic development have attempted to replace these models
with an emphasis on capacities, collectivisation and care. We describe
projects engaged in by community-based cooperatives in Toronto that demonstrate
this approach and encourage those with disabilities to live interdependently
and to participate as partners in their own businesses.
Specific projects described are: The Home in the
Annex Cooperative Corporation, Lemon & Allspice Cookery that is a legal
partnership employing eight people, and the Common Ground Cooperative Inc.
that raises and administers funds to support the cookery and potentially
other model projects.
The authors's conclusion provokes thought:
"The key words found in so much of the North American
literature on intellectual disabilities are consumer choice, self-determination,
self-advocacy, clients' rights and person-centred planning. We believe
that greater benefits to people with intellectual disabilities can arise
from cooperation, group determination and advocacy, human rights, community
participation and community-centred planning, that is, at the same time,
fully conscious of individual needs and in which individuals play central
1. Visit the new United
Family Congress website
The UNITED FAMILY CONGRESS was formed by group
of parents with medically exceptional dependents during the 2003 Ontario
election and as an outcome of an all-candidates’ debate held in Barrie,
Ontario. One valuable feature is pro bono legal advice by Ellie Venhola,
a lawyer with Community Legal Clinic (Simcoe, Haliburton, Kawartha Lakes)
based in Orillia, Ontario. You are invited to sign an electronic petition
in favour of Individualized Funding and the following UFC goals:
To ensure that each and every family caregiver and
their dependants living with an exceptionality have their personal needs
To provide a forum for sharing information about issues
of common concern and connect families of exceptional dependants so that
they can offer each other strength, confidence and knowledge.
To encourage the participation of families in each
town, city and region with our mission.
To facilitate and promote a provincial and national
collaborative, interactive relationship with all
exceptionality-related organizations and to participate
in developing social policies based on their experience and beliefs.
To ensure standards of social policies for individuals
living with exceptionalities are set so that all supports, services, education
and treatment are accessible and in a manner consistent and compliant with
the Ontario Human Rights Code and the Canadian Charter of Rights and Freedoms.
To promote the benefits of an inclusive and integrated
society to our communities, organizations and the government.
Planned Lifetime Networks
holds evening meetings on the 2nd Monday each
month, alternating discussion of chapters in A GOOD LIFE with business
meetings. For more details, phone 519-746-1188 or email firstname.lastname@example.org
Thursday January 29, 2004, 7-9 pm in Mississauga
Public meeting -- Peel Family Network
Guest Speaker - Marilyn Dolmage
Topic - See
the Strengths and Aim Higher: Inclusive Education NOW
Also - Meet families and hear the latest news
about activities of the Peel Family Network and developments in the Ministry
of Community, Family and Children's Services.
February 18, 2004, 7-10 p.m., at North Toronto
Memorial Community Centre
Toronto Family Network seminar:
**Education Law & The
Ontario Human Rights Code:
A Review of the Ontario
Human Rights Commission Report on Education**
February 20 to 22, 2004 at the Inn on the Park
Individualized Funding: The Time is Now!"
The goals are:
- To develop an action plan for implementing IF
in Ontario; and
- To develop strategies for building the capacity
of families & communities for citizenship & IF.
Key stakeholders from all parts of the province
are invited to think carefully about who needs to be invited in order to
create and train a diverse, energetic and motivated leadership team.
for updated information
or call Barbara in the Individualized Funding Coalition office at (416)
for IFCO website
March 19-21, 2004, in Syracuse NY
Ableism? Classism? Racism? Homophobia? Sexism?
How can we address all of these issues without
add-on programs and disjointed initiatives?
Inclusion and Diversity at the Center
An exploration of how schools and communities
can address social justice issues in integrated ways through curriculum,
pedagogy, school climate, teacher/staff training, advocacy and policy-making.
Keynote speakers: James Banks and Norman Kunc
Also post-Conference sessions on March 21.
April 28 - May 1, 2004, in Atlanta, Georgia
Immersion Learning about Self-Determination
Offered by the Center for Self-Determination in
partnership with the Georgia Governor’s Council on Developmental Disabilities.
for program details
Registration Questions? Kris Copeland
for Self-Determination's E-Newsletter
April 30 - May 2, 2004, at Gananoque
of Advocacy: Every Parent is an Advocate**
FAO/IAI Annual Conference
Key Note Speaker: Judy Finlay on "Why a
Strong Family Voice is Essential to Advocacy
for full details
of more events on OAARSN Bulletin
Board and Calendar, and our archive
of past OAARSN news bulletins.
submissions for this news bulletin or for the OAARSN Calendar and Bulletin
Board in plain text format by email to email@example.com
with "announcement" at the beginning of the subject line.
details of the following as BRIEFLY as possible:
Speakers and Topics of Event
and Location of Event
information to learn more about event
Do Not Send Files Or Brochure Attachments
Please help us create an important online resource.
We want to make the
transition to adult life for youth with disabilities
(16-29 years) easier.
We are making a website for the province of Ontario
with the latest news
about transition to adulthood. This will
include a listserv where people
can talk and share information. People with disabilities,
service providers are working together to make
the website and the
listserv. We hope everyone will be able
to use this resource as well.
This project was started by a group of service
providers, parents and youth
with disabilities in 1999. They learned that we
need an information
resource in Ontario that has all of the information
you would like about
transition, as well as giving you a chance to
share your experiences and
asking other people questions about transition.
for full bulletin
Virtual Voice for Canadian Families
A new independent website supporting Canadian
families to network and share information, while also facilitating political
action to achieve a vision of people with disabilites participating as
and Crisis Intervention:
by Nancy Cherry of Waterloo
During most of 2003, Nancy Cherry of Waterloo
worked on a project of great importance to the autism community. Its goals
may be summarized as:
1. Developing a template for calling 9-1-1 should
the primary caregiver be unable to make the call
2. Registering with the police so that when a
9-1-1 call is placed there is an electronic alert displayed that gives
3. Registering with the local hospital or crisis
clinic to avoid the intake procedure when dealing with an out-of-control
individual who has special needs and may be non-verbal
4. Finding a tracking device to monitor children
who regularly wander (and adults who want to develop more independence
Among other initiatives, Nancy has researched various
possible devices and systems, that would combine all or most of the above
features. In one scheme, it could be possible to get a substantial donation
of the Research and Development funds if at least 500 families or caregivers
pledge to be subscribers at a cost of say $50 per month.
a more detailed report
ASO chapter members were to be contacted by their
presidents about this and asked to respond immediately. OAARSN contacts
may not have been reached by this means. If this resource could help any
sitaution you know about, please contact Nancy at phone (519) 884-3309
or email her at firstname.lastname@example.org
Needs" Planning Group
Our mission is to assist parents and other family
members of people with disabilities in creating expertly formulated plans
which will guarantee an enhanced quality of life for the person with a
disability for their entire lifetime, after the parents have gone. There
is no fee for service.
for all the resources of The EnableLinker!
The latest issue includes details of
** Two New Reports on Disability in Canada **
Two new reports on disability are available from
Development Canada’s Office for Disability Issues.
Disability: A Complex Issue” provides a review
of, and framework
for understanding, disability definitions in key
Canada initiatives. “Disability in Canada: A 2001
outlines some of the key findings of the 2001
Activity Limitation Survey (PALS) in a plain language,
format. Both are available on the ODI website,
** Tax Measures for Persons with Disabilities **
The Technical Advisory Committee on Tax Measures
for Persons with
Disabilities was announced in the 2003 Budget
to advise the
Ministers of Finance and National Revenue on disability-related
tax measures. On December 22, 2003, the Co-Chairs
of the Committee
sent an interim reporting letter to the Ministers
of Finance and
National Revenue regarding the status of the Committee's
the direction of its current deliberations. For
visit the home page of the Committee's website
(Pour obtenir des renseignements en français,
veuillez consulter la page d'accueil du site Web
français du Comité
à l'adresse suivante : http://www.impot-handicapes.ca