Look up earlier bulletins for announcements and
news that may be still current.
painting, Passion, displayed in Toronto art gallery
Families United Network
Linda Viscardis of Peterborough writes:
I am very excited about being part of this network.
I believe it has great potential for bringing families together, for networking
and support, and for advocacy. No doubt our efforts will enhance the lives
of people who live with disabilities and their families.
Already, this small group of representatives from
each province and territory have been successful in advocating on behalf
of families on Prince Edward Island whose sons and daughters were being
discriminated against by the province's Disability Support Program.
Here is some background.....
In 1994, the Canadian Association for Community
Living convened a General Assembly of families in Toronto, Ontario. They
tried to form a national network at that time, but it did not happen.
In 1995, representatives from the four Atlantic
provinces met on Prince Edward Island and discussed the potential of family
networking on the east coast. An alliance was formed among the family members
from the Atlantic provinces who also participated in the General Assembly.
Then in June 2003, a pan-Canadian Family Share
Weekend brought families together on PEI to further develop this foundation
for a National Family Network. As a result, a cross-disability Families
United Network was born.
In October 2003, the Families United Network met
in Vancouver, British Columbia to revive and revise the National Accord
produced by the General Assembly in 1994.
What's happening now?
I am trying to build an e-mail network of like-minded
family members in the province of Ontario, especially families who might
not otherwise be connected to a family support network. This network will
become connected to other similar networks across the country through the
Families United Network.
Please pass this information along to families.
Attached are two documents: 1. The Network's beliefs, vision, purpose and
goals; and 2. a chronology of successful advocacy on the PEI DSP issue
(a tangible example of the potential of this Network).
Please contact me via e-mail with any questions,
concerns or feedback.
Linda Viscardis, Peterborough ON, firstname.lastname@example.org
We urge everyone concerned for the well-being
of children and adults with special needs to think about and speak up on
relevant issues in these weeks before voting for members of municipal councils
and school boards. This is an opportunity to raise awareness and express
Vote for Better
Family Alliance Ontario is asking the new Ontario
government to freeze a project set up by the previous government. This
project was designed to fund group homes only, and to fund people to live
in group homes only. It discriminated against all people who want better
options. Action must be taken before the end of October. The Ministry refused
to meet with families to hear their concerns.
So FAO is asking for the project to be frozen
to allow a review with input from families. If you support this action
and have a Liberal MPP in your riding, please fax, mail or deliver it to
your MPP. Please
download, print, and send this letter to your Liberal MPP
If you don't know your riding name, or don't know
who is your MPP, see http://www.ontarioliberal.com/en/ridings/
From SSAH Provincial
Coalition to all interested families and friends:
our SSAH PC website
We encourage all member organizations as well
as individual members to meet with your newly elected officials in your
ridings to speak about the importance of, and of our beliefs for SSAH.
Please make the following points:
Increasing the SSAH Budget by $25 million dollars
provincially, would help to meet the current needs of families in Ontario.
It is essential for families that SSAH be a program
of First Choice.
SSAH is a vital support. It helps people and families
to live meaningful lives in the community.
SSAH can change and evolve to respond to all family
Families have much to contribute about how SSAH could
Children with physical disabilities ineligible for
direct funding who received SSAH should continue to qualify after 18 years
Energetic families in
the Barrie (Simcoe County) area hope to form the UNITED
FAMILY CONGRESS to work together to improve
services and treatment of disabled children. Many of the families that
started this group have children with ASD. See
effective inclusive education
Initiatives of the Canadian Association for Community
4-page information summary
The Human Rights Report is now out.
THE OPPORTUNITY TO SUCCEED:
Achieving Barrier-free Education for Students
From the Executive Summary
".... it is apparent that many students
with disabilities do not have equal access to educational opportunities
in Ontario, either at the primary and secondary, or at the post-secondary
level. The key barriers are inadequate funding, physical inaccessibility,
cumbersome and time-consuming accommodation processes, negative attitudes
and stereotypes, and a lack of understanding of the rights and responsibilities
of all parties under the Code and Commission policy."
"In order to assist parties to understand
their roles and responsibilities, the Commission will release Guidelines
on Accessible Education as a companion piece to this Report. The Guidelines
will rely on key principles outlined in the Code and the Commission's Policy
and Guidelines on Disability and the Duty to Accommodate and apply them
to the education context. The Guidelines will discuss disability, discuss
prima facie discrimination because of disability, identify the parameters
of the duty to accommodate, assess undue hardship, and provide suggestions
for accommodation planning in the education context."
Safe and Secure Futures Networks,
2003 - 2004
Monthly forums for mutual support and information
sharing among family members of individuals who have a developmental disability--in
three Toronto locations. Sponsored by Extend-A-Family and funded by a City
of Toronto Community Services Grant. Click
for full details
Lifetime Networks: Autumn Workshop series
Saturdays mornings, in Kitchener
Planning a Good Life Now
Nov. 8: Planning for after we’re gone
Nov.15: Planning with our disabled children (capacity
assessment, powers of attorney, and supported decision-making.
Click on heading for more details or phone 519-746-1188
or email email@example.com
November 15, in Vancouver
A Good Death
November 22, in Markham, Ontario
Community Living Ontario Family Day (15th annual)
for the program and to register
for registration details
**Saturday, November 22, 2003: 10:00 a.m. to 12:30
p.m., in Toronto at the Columbus Centre
Kerry's Place Autism Services workshop on "Striking
the Balance – The Challenge to Balancing Rights, Risks and Responsibilities"
facilitated by Bill Allerton, CEO of Accreditation Ontario and introduced
presented by Orville Endicott, Barrister & Solicitor. Information
and registration form
Planned Lifetime Networks
also holds evening meetings on the 2nd Monday
each month, alternating discussion of chapters in A GOOD LIFE with business
meetings. The next business meeting is on November 10. All are welcome
to each meeting. Anyone needing a ride please call Verlyn 519-624-5195.
For more details, phone 519-746-1188 or email
December 10-13th: 2003 TASH
Conference - Possibilities..... Hilton Chicago
If you have not yet registered for the TASH Conference,
we invite you to do
so today. Click
for full conference details
This is a sampling of the many sessions
focusing on issues in self-determination and adult supports:
*T-6 Civil Rights, Self-Determination
and Decision Making vs. Guardianship
This session will discuss how to
support choice and self-determination rather than
substitute or "second party" best
interest decision-making and is designed for family members, attorneys,
care management, agency staff, and long term advocates.
*T-7 Learning To Listen Differently:
A guide to supporting people in having a life of their own choosing in
Living a full life in the community
- owning your own home, having a career, controlling your own resources,
having relationships and a full social life - is a dream for most of us
and has started to become a reality for many people with disabilities.
For those who challenge their friends, families, supporters and allies
to think (and take action) differently in order to support them, this is
not always the case. How do we learn to listen differently? How do we act
on what we learn to provide creative supports?
*T-8 Self Determination With and
For Individuals with Significant Cognitive Disabilities and Their Families
This session will explore ways that
family and individual culture can be honored in the process of developing
and sustaining a self-determined vision for quality of life over a person's
T-9 Achieving True Self-Determination
through Rethinking the Meaning of Quality, Systems Change, and New Funding
and Policy Models
On Thursday and Friday during the
conference, there are over 400 1 and 2
hour breakout sessions! Here are
just some of the many
-Recapturing Person Center Plans
-Out-Maneuvering the System: How
to Succeed in Providing Progressive Supports
Against the Odds
-Finding Allies and Building Alliances:
Making it Happen
-Ya Can't Give What Ya Don't Get:
Personnel Management Styles for Community
Supports That Work
-The Challenges (and joys) of Providing
-When People's Choices Make Us Uncomfortable
-The Management Challenges of Individual
-Using Self-Determination Tools
to Achieve Flexible Supports
-Paying Customers Are Not Enough
-Community Supports Roundtable
-Mentorship: An Alternative to Guardianship
-Amenities Trusts as an Alternative
to Guardianship: What Will Happen to My Child When I'm Gone
-Rethinking Guardianship Alternatives
-Home Ownership: It's Possible &
-Putting Self-Determination Into
-Promoting Greater Independence
by Teaching Self-Management Skills
-Steps to Self-Determination Through
-Using Technology to Facilitate
Self-Determination Transition Planning
-Exercising Your Right to VOTE!
-My Life, My Choices: Improving
Self Determination through active choice making
-Self-Determination: The Data You
Need to Convince Your "Power That Be"
-Goal Setting for Students with
Disabilities: Teaching this Core Component Skill
-Hunting Your Ideal Personal Care
-New Principles for Working WITH
People with Disabilities: A Critical Pedagogy Perspective
-Self-Directed Employment Approaches,
Illustrations, and Outcomes for People with Developmental Disabilities
Ontario Government Ministries
Family Net has posted an article on the new provincial
cabinet and particularly the new ministry for children's services. "Premier,
new ministers sworn in: New ministry for children’s services"
on this link