ONTARIO ADULT AUTISM

RESEARCH AND SUPPORT NETWORK
OAARSN NEWS BULLETIN
21 September 2008




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AUTISM NEWS, MAINLY ABOUT ADULT ISSUES

Autism 'may be missed in girls'
Girls with mild autism are less likely to be identified and diagnosed than boys, a study suggests. Researchers examined 493 boys and 100 girls with autistic spectrum disorders. They found the girls showed different symptoms, and fewer signs of symptoms traditionally associated with autism, such as repetitive behaviour. The researchers, who presented their work to a Royal College of Psychiatrists meeting, said this might mean cases among girls are missed.

All the children were classified as "high-functioning". They did not have classic autism, but did have difficulties with socialising and communication. The researchers, who have yet to publish their research, found that the girls were more likely to have obsessional interests centred around people and relationships. However, these interests were more likely to be acceptable to their parents, and therefore tended not to be reported to doctors.

Autism is caused by a 'supercharged' mind, scientists claim
A brief story, originally in The Telegraph UK, about a research report in New Scientist.
Children who develop autism have "supercharged" brains that are so clever and sensitive that they make everyday experiences utterly overwhelming, new research claims. According to a theory developed by Swiss neuroscientists, the condition is not caused by a brain deficiency but by a system overload which causes the world to seem frightening and overly intense. Husband and wife team Kamila and Henry Markram of the Swiss Federal Institute of Technology in Lausanne, believe the idea could explain the erratic nature of the condition. "Our hypothesis is that autistic people perceive, feel and remember too much," Kamila Markram told the New Scientist.


Research shows people with autism struggle with guessing others' intentions

Studies at Carnegie Mellon University have shed new light on what may be malfunctioning in autistic people's brains. One of the hallmarks of autism is difficulty in social relationships. Children and adults with autism often have trouble making eye contact, interpreting facial expressions and behaving appropriately in social settings. The Carnegie Mellon studies suggest that one of the key problems that underlie such behaviors is that the brain areas that do theory-of-mind processing are badly connected in people with autism. Researchers tested this most recently by asking a group of people with high-functioning autism and another group that did not have the disorder to watch three types of line-drawing animations while lying in a functional magnetic resonance scanner, which can measure blood flow in the brain second by second.


Eyes: A New Window on Mental Disorders
Clues about autism, Williams syndrome and the social brain come from tracking eye movements. An essay in Scientific American. (Subscription needed to read whole article).


An Autistic Student's Journey To College

"Sending your child off to college can be an anxious time for many parents. But for parents of children with a mental illness or learning disability, the transition is especially challenging. One worry is that parents of adult children have no legal standing in their medical care. The story of  In Nashville, Tenn., the Diehl family has worked hard to prepare their son for the move from home to college." Click on title to read the full article realted to a NPR radio program.



Healing power of the horse helps man with autism
A good story about the benefits of a therapeutic riding program in New Hampshire for a man of 22 with Asperger's.



Web Exclusive: Survey sponsors seek adults with autism
Adults with Autism Spectrum Disorder (ASD) and their caregivers are urged to participate in Connecticut’s first state-wide housing needs assessment project to be conducted under the auspices of the Creative Living Community of Connecticut (CLCC). The organization will offer long-term residential and vocational services for adults with autism in a farmstead setting. A state-wide count is being taken to develop a report for advocacy for future services. Parents, service providers and people with ASD ages 16 years and older may participate in the focus groups. The survey is for care givers, service providers and adults with ASD ages 20 years and older.
While this survey at www.creativelivingcommunityofCT.org is designed for people in Connecticut, it could be a good model for other groups elsewhere.


The Autism File
A North American edition of The Autism File, the longest running international autism magazine, has been released for distribution to 2000 bookstores in the United States and Canada. The Autism File, published in the UK for over 10 years, is also available in Spain (in Spanish) and Australia. The Autism File’s Scientific and Editorial Advisory Boards are made up of leading autism experts and advocates from around the world.

 

Bookstores that are stocking  The Autism File in the US include many Barnes & Noble, Borders, Books a Million, Universal News in New York and bookstores at four major airports: JFK, Newark, Chicago and San Francisco. Distribution varies by region. In Canada, stores carrying the Autism File will include Chapters, Coles, Indigo, and Presse Commerce and will be on the shelves for a three month period with an initial two week promotion.

 

The Autism File debuts in the US and Canada with articles from autism experts and advocates such as Dr Wendy Edwards, Dr Stephen Edelson,  Dr Elizabeth Mumper, Dr Harry Schneider and Laurie Mawlam from Autism Canada. A panel of scientific experts including  Dr Kenneth Bock, Dr Dan Rossignol and Dr Amy Yasko will reply to questions in their column “The Doctor is IN,” (Askthedoctor@autismfile.com).  Practical advice is offered by award-winning author Chantal Sicile-Kira in the “Ask Chantal” column. Articles by people on the spectrum, such as Dr Stephen Shore and Dean Beadle, are featured in every issue.

 

For more information or to subscribe, please visit www.autismfile.com/


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ANNOUNCEMENTS OF EVENTS

Please send submissions for this news bulletin or for the OAARSN Calendar and Bulletin Board in plain text format by email to ebloomfi@uoguelph.ca with "announcement" at the beginning of the subject line.
Please provide details of the following as BRIEFLY as possible: 
 
Name of Event
 Main Speakers and Topics of Event 
 Date of Event 
 City and Location of Event
 Contact information to learn more about event
 URL Link for more information/registration 

 Please Do Not Send Files Or Brochure Attachments

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Announcing Series of Events

PLAN Institute offers
Weaving the Ties That Bind
Online Training Course for Facilitating Social Support Networks
"Facilitated social support networks are an effective way to address the isolation and loneliness of many people living on the margins of our society. These networks (also known as “circles of friends”) are proven to contribute to the health, safety and well being of individuals who are vulnerable as a result of age, disability or social circumstance."
Click on title for details of availability and to register--for September, October, or November.

Fall 2008, between October 18 and November 29, in Oshawa
Compassion in Action: Open Mind, Open Heart, Skilful Means
an 8-part introductory seminar series in compassionate practices with Felicia Jervis.
THE HEART OF THE MATTER: Some children and adults express themselves through actions that are at times difficult to understand and support safely. These actions may include: occasional withdrawal or aggressive acts towards self, others and property. These actions must be understood not as challenging behaviors that need to be controlled or eliminated, but rather as communicative acts that often speak of the pain of humiliation and rejection, and a yearning to belong....
Click for full brochure and how to register in the workshop series

Click to read "When children hurt themselves"
by Felicia Jervis in BLOOM magazine on the Bloorview website


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Announcing Individual Events

Tuesday, September 23, 2008, 730-9pm, in Kitchener
Social Innovation Generation, at the University of Waterloo (SiG@Waterloo, www.sig.uwaterloo.ca), invites you to
Social Innovation Dialogues: Fall 2008 (http://sig.uwaterloo.ca/speakers.html)
Senator Michael Kirby, Chair, Mental Health Commission of Canada www.mentalhealthcommission.ca/
"Social Innovation and the Mental Health Commission of Canada"
Venue: Kitchener Public Library, Main Library, 85 Queen Street North, , ON
Senator Kirby will be speaking about the need for social innovation when striving to change perceptions and attitudes about mental health and mental illness amongst the general public, in policy circles, as well as within the Canadian health care system itself. 
THIS EVENT IS FREE TO ATTEND. PLEASE RSVP BY EMAILING info@sig.uwaterloo.ca OR CALLING 519 743 0271 ext 255.


October 3-5, 2008, in Ottawa
Family Alliance Ontario Annual Conference
Engaging Families and Building Bridges
Visit the Family Alliance Ontario website at this link for full information, including an important note about booking hotel rooms.  http://family-alliance.com/conference.html

Waterloo-Wellington Community Faculty Project
Date:           Monday, October 6, 2008
Time:           6:30 – 8:30 p.m.
Location:      Kitchener Public Library, Main Branch
                    85 Queen St N., Kitchener ON N2H 2H1
Community Faculty members are adults with Autism Spectrum Disorders (ASD) and their families. By sharing their personal experiences of living with autism, we hope to increase the general knowledge of and sensitivity to adults with Autism Spectrum Disorder. Four panelists will discuss the ways that ASD has touched their lives. There will be a question and answer period to conclude the presentation. Displays and information resources will be also available. This event is free of charge and open to all interested community members. We hope you will join us! Click to learn more about Community Faculty in Waterloo-Wellington.


October 7, 2008: 9am-4pm, at Wellington County Museum, between Fergus and Elora
Aging and Developmental Disabilities
Click for flyer



Tuesday, 7 October 2008, 7–9pm, in Guelph
MOVING FORWARD: INCREASING OPTIONS FOR ADULTS WITH ASD LIVING IN WELLINGTON
First of a series of information forums for families living in Guelph-Wellington, who are interested in learning about services and increasing life options for adults with Autism. Supported by Kerry’s Place Autism Services. At Kortright Presbyterian Church, 55 Devere Drive in Guelph (registration begins at 6:30 pm)
Guest speakers include: Andrea Robinson from Access, Information & Referral, Developmental Services; Elizabeth Bloomfield of Guelph Services for the Autistic; Gail Jones from Kerry’s Place Autism Services; and Dwight Syms, Service Resolution Facilitator for Wellington. Service information booths with staff representatives will also be available throughout the evening.
Child-minding services will be provided on site and light refreshments will be served.
Click for more details and to register
**For more information and registration, call Wendy Perry at 905-867-6152**



18 October 2008, 8:30-5pm, in Guelph
Hiring Support Workers: First Steps
an all-day workshop presented by Judith McGill
for Families for a Secure Future
Click for full details and how to register


October 22, 23, 24, 2008, in Toronto
Autism 2008 – Geneva Centre for Autism International Symposium
The Symposium will provide a cross-section of perspectives on the most recent research and information on evidenced based best  practice.  All topics of importance to autism intervention will be addressed including bio-medical and neurobiological research, ABA, intervention, social skills, behaviour, communication, first-hand accounts, Asperger’s Disorder, and more.  Featuring speakers from Canada, U.S., Great Britain, and Australia.  For registration information, visit www.autism.net or contact Eva Finna at efinna@congresscan.com or 416-504-4500 ext. 208.



Friday, October 24-Saturday, October 25, 2008
Organization for Autism Research hosts its
Sixth Annual Applied Autism Research and Intervention Conference
at the Westin Arlington Gateway in Arlington, VA.

Read all about Day One.
Click for information and early-bird registration


25 October 2008, 8:30-5pm, in Pickering
Hiring Support Workers: First Steps
an all-day workshop presented by Judith McGill
for Families for a Secure Future
Click for full details and how to register



November 10, 2008, in Toronto

Ontario Ministry of Community and Social Services,
Employer Outreach Secretariat:
Symposium on Disability and Employment

Contact: Tim Hilliard

Email: tim.hilliard@ontario.ca

3rd Floor, Hepburn Block

80 Grosvenor Street

Toronto, Ontario M7A 1E9

Tel: (416) 325-5352

FAX: (416) 212-4704

E-mail: employeroutreachsecretariat@ontario.ca

Employer Outreach Secretariat contacts: http://www.infogo.gov.on.ca/infogo/office.do?actionType=telephonedirectory&infoType=telephone&unitId=UNT0027984&locale=en



Wednesday, November 12, 2008, 4:30-6pm, in Kitchener
Social Innovation Generation, at the University of Waterloo (SiG@Waterloo, www.sig.uwaterloo.ca), invites you to
Social Innovation Dialogues: Fall 2008
Frances Westley & Paul Born (SiG@Waterlloo and Tamarack)
"Systems Change: Thinking like a Movement"
Venue: Kitchener Public Library, Main Library, 85 Queen Street North, , ON
THIS EVENT IS FREE TO ATTEND. PLEASE RSVP BY EMAILING info@sig.uwaterloo.ca OR CALLING 519 743 0271 ext 255


November 12-14, 2008 in Niagara Falls ON
National Association for the Dually Diagnosed (NADD) 25th Annual Conference: 
"A Quarter Century of Awareness: Assessment, Treatment & Policy Advances (ID/MH)"

At the Sheraton Fallsview Hotel,
Niagara Falls, ON, Canada.
At the end of the conference, participants will be able to:
• Cite advances in the field of co-occurring MH/ID;
• Recognize the genetic underpinning of several MH/ID disorders;
• Identify to relevance of the DM-ID to the diagnosis and treatment of persons with MH/ID;
• Name several integrated system responses that have developed in Canada and the US;
• Interpret relevant integrated research that can be generalized to other individuals with MH/ID issues.
To learn more information about this event, please visit:
http://www.thenadd.org/pages/conferences/25th/index.shtml 


November 17-21, 2008, in Ottawa
Global Forum for Inclusion and CACL 50th Anniversary Conference
CACL (Canadian Association for Community Living) is co-hosting a Global Forum for Inclusion and celebrating its 50th Anniversary November 17-21, 2008 at the Westin Hotel in Ottawa, Ontario. The Global Forum consists of an international gathering of self-advocates and families, Inclusion International’s General Assembly, an International Conference on the UN Convention on the Rights of Persons with Disabilities and Study Tours on Inclusive Practices in Canada and the US. CACL’s 50th Anniversary conference will celebrate the last 50 years and look at next steps needed to address the remaining challenges and barriers to the full inclusion of people with intellectual disabilities and their families.
Join with people from around the world to transform rights into action and make inclusion a reality for all!
To register for the Global Forum for Inclusion visit: www.inclusion2008.com
To register for CACL’s 50th Anniversary Conference visit: www.cacl.ca

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MORE ABOUT OAARSN


See our
archive of past OAARSN news bulletins.
Read about why OAARSN was started and the tasks still ahead


You may be interested in our Creative Supports Bulletins which carry news about disabilities and special abilities and creative strategies more generally. See for example:  http://www.ont-autism.uoguelph.ca/CS-20060720.html

Send news, announcements and comments to ebloomfi@uoguelph.ca We welcome news items, announcements of autism events, new information, discussion questions and comments, and accounts of experience.

Please send submissions for this news bulletin or for the OAARSN Calendar and Bulletin Board in plain text format by email to
ebloomfi@uoguelph.ca with "announcement" at the beginning of the subject line.

Please provide details of announcements as BRIEFLY as possible: 
 Name of Event
 Main Speakers and Topics of Event 
 Date of Event 
 City and Location of Event
 Contact information to learn more about event
 URL Link for more information/registration 

 Please Do Not Send Files Or Brochure Attachments if you have an online version to which you can provide a link.

Visit OAARSN's website and keep in touch through the OAARSN Listserv--send a message requesting to join to ebloomfi@uoguelph.ca