ONTARIO NEWS AND ISSUES
Summer 2008 has been enlivened in Ontario by debate over the Ontario Government's proposed legislation to replace the act originally passed in 1974 to govern funded services for developmental disabilities. Advocates for persons and families who live with disabilities had been hoping that the four-year process of discussing "transformation" would lead to more transparency and choice. But Bill 77, introduced in May 2008, with little advance notice and apparently intended to be swiftly enacted, has disappointed most stakeholders. Bowing to popular demand, the Standing Committee on Social Policy has held hearings in four centres and received written submissions.
The process is not over yet! The new legislation will shape the provision of funded services in Ontario for the next generation, so everyone who lives or works with autism spectrum disorders will be affected. Please review the material at these links and take any opportunity to speak up for the values and principles that will enable all persons with developmental disabilities to have more choice and control over their own lives.
Disability groups say Liberal bill is seriously flawed
Judith McGill and Janis Jaffe-White were interviewed by Helen Henderson of the Star about Bill 77 and the Provincial Ad Hoc committee's concerns. The article, in the Star of 16 August, section L 12, begins:
Click on title to read the full article online.
Scores of people, often as representatives of organizations but also on their own, presented their comments on Bill 77 to the Standing Committee during the first week of August. Their oral presentations are all recorded--a powerful summary of views of social policy--and may be read at the following links:
Committee Transcripts: Standing Committee on Social Policy -
Link to Text of Ontario Legislature Bill 77 (2008) in English and French, as submitted for first and second readings:
Click for a “plain-language compendium” version of Bill 77:
Read this paper and its summary of recommendations
Link to written brief by the Individualized Funding Coalition for Ontario
which contains references to various research papers supporting the approach advocated by IFCO.
Click for a one-page Framework for Individualized/Direct Funding, summarizing the need to keep these key functions separate: planning and facilitation; allocation; direct service; peer support/advocacy.
Relevance to Autism Spectrum Disorders
For those of us concerned with autism spectrum disorders (ASD), Dr Glenn Rampton, CEO of Kerry’s Place Autism Services, and Margaret Spoelstra of Autism
1. The needs of adults with ASD were not properly considered in the preliminary stages of the bill;
2. An integrated legislative framework is needed to enable lifelong planning and access to supports and thus to overcome the discontinuities of supports and services that followed the separation of developmental services and children’s services in 2003, and to cross sectors including mental health, education and justice as well [to which we would add physical health].
3. Employees of application centres may not have the specific skills and knowledge to assess the highly complicated and specific and individualized needs of persons with autism.
4. More resources will have to go into services and supports, as many adults with ASD have never had adequately funded help, and numbers of children identified on the autism spectrum have been increasing dramatically.
new is being pioneered in
The gatherings are so moving and powerful, it seems good to share the idea with others. The pioneers in 2004 began with a dream of “Bridges-Over-Barriers” as “a centre for friends and family who live with the challenges of autism to come together to share support, ideas and community..... We have been developing our skills as communicators and sharing technology ideas and friendship. We want to extend this community of pioneers to include more people. We would like there to be more opportunities for others to benefit from our experience, and to encourage and train more people to support those of us with communication and movement disorders.”Members of Bridges-Over-Barriers share the philosophy of "People First": "Nothing about me without me" and "Though I may not speak with my voice, I have plenty to say." They share a vision of helping more adults who use supported typing and other forms of AAC to express their thoughts and dreams. Three years ago, the idea began of asking family and friends to give to a fund that would enable Bridges to start helping others.
Friends and families of the men like the potential of Bridges to help with supported decision-making, and are supporting their efforts to realize the vision.
Link to the Bridges-Over-Barriers webpage
Newsletter 5 contains more information on specific projects.
SPECIAL OPPORTUNITIES FOR ARTISTS
Rosenberg describes an
submit artwork to be juried and ultimately installed in the new
invitation is extended
to all Spark of Brilliance communities and to
asked to send photographs
of your work to Spark of
Brilliance via email to: firstname.lastname@example.org
off photographs to the Spark of Brilliance office at 5420 Highway 6
the Ignatius Jesuit Grounds (
Please submit your
photographs no later than
2. Haadd initiative for artists on the autism spectrum
In order to promote the work of artists in the autism community and to raise additional funds for our Joseph Umbrico Bursary and Grant Programme, Haadd seeks submissions to be considered for a collection of note-cards to be launched prior to the 2008 holiday season. The entries will be reviewed by a panel of artists and Board members. An honorarium of $500 will be awarded to the artist whose submission is chosen. The successful artist will be asked to sign a waiver indicating that he/she has been paid for the piece and granting permission for Haadd to use it solely for the purpose described above. Click for the full announcement
CALLS FOR HELP
The website description is as follows:
CAPDA is an organization of senior psychologists who practise primarily in the areas of psychological or neuropsychological assessment of disability and impairment.There are strict requirements for membership and all members are bound by comprehensive standards which guide their practice and outline their obligations to the individual assessed and to the referral source.
ANNOUNCEMENTS OF EVENTS
send submissions for
this news bulletin or for the OAARSN Calendar and Bulletin Board in
format by email to email@example.com with
"announcement" at the beginning of the subject line.
PLAN Institute offers
Weaving the Ties That Bind
Online Training Course for Facilitating Social Support Networks
"Facilitated social support networks are an effective way to address the isolation and loneliness of many people living on the margins of our society. These networks (also known as “circles of friends”) are proven to contribute to the health, safety and well being of individuals who are vulnerable as a result of age, disability or social circumstance."
Click on title for details of availability and to register--for September, October, or November.
Fall 2008, between October
and November 29, in Oshawa
Compassion in Action: Open Mind, Open Heart, Skilful Means
an 8-part introductory seminar series in compassionate practices with Felicia Jervis.
THE HEART OF THE MATTER: Some children and adults express themselves through actions that are at times difficult to understand and support safely. These actions may include: occasional withdrawal or aggressive acts towards self, others and property. These actions must be understood not as challenging behaviors that need to be controlled or eliminated, but rather as communicative acts that often speak of the pain of humiliation and rejection, and a yearning to belong....
Click for full brochure and how to register in the workshop series
Click to read "When children hurt themselves"
September 4-7, 2008
US Autism & Asperger Association presents
2008 International Conference in San Antonio, Texas
featuring Paul Shattock and Doris Rapp
Conference Theme: Treating Autism as a Medical Disorder:
Bringing Biomedical Treatments and Behavioral & Developmental Therapies Together
Click for overview and early registration
Dennis Debbaudt’s "Autism Risk & Safety Management" Workshop
Autism Ontario is very pleased to be able to provide the Ottawa and Upper Canada (Cornwall) communities a workshop providing valuable information on Autism Risk & Safety Management by Dennis Debbaudt.
For more information regarding Dennis Debbaudt, visit his website www.autismriskmanag
Sessions at each workshop:
The morning session is for Parents and Care Providers.
The afternoon session dedicated to Law Enforcement, Fire and Rescue, First Response Teams and Criminal Justice Professionals.
For more information regarding the
For more information regarding the
October 3-5, 2008, in Ottawa
Family Alliance Ontario Annual Conference
Engaging Families and Building Bridges
Visit the Family Alliance Ontario website at this link for full information, including an important note about booking hotel rooms. http://family-alliance.com/conference.html
Message from the organizers:
We are a group rich in knowledge, empathy and inspiration and have much to offer each other in the way of support. This year, as an added bonus for those attending, there will be a Sunday morning workshop with Michael Kendrick. Many of you know Michael through his workshops and articles as a person who practices his belief that "people with disabilities can guide us as to how we must change but we must first be willing to be led." Michael will facilitate this opportunity for us to collaborate with friends and allies on how to impact and influence policies for people with developmental disabilities and their families. You are aware of the troubling direction many of the new policies and legislation is taking. We are inviting our friends, allies and colleagues to work with us to build innovative, impactful approaches to government. It is not enough to open a pathway to direct funding and then not fund it at all as happened with the Passport program this year; we also share with you some grave concerns about directions in Bill 77, the new Developmental Services Act.
As you know, the Family Alliance Ontario continues as a member of the Partnership Table to advice on the "Transformation of Developmental Services." As the only provincial organization at the Table representing families along with only one member representing People First Ontario, it has been a difficult, uphill journey. The support and advice of our many friends, partners and colleagues has been invaluable throughout this process. Since the beginning of FAO's attendance at these meetings, we have pressed continuously for more family and advocate membership to give a more balanced reference to the Ministry. Hopefully, in the fall, this will happen and other provincial family organizations will take their place at the Table. As both a friend and ally who supports and works towards mutual values and goals, we sincerely extend this invitation to attend our conference and this most important and timely workshop.
October 7, 2008: 9am-4pm, at Wellington County Museum
Aging and Developmental Disabilities
Click for flyer
October 22, 23, 24, 2008, in Toronto
Autism 2008 –
The Symposium will provide a cross-section of perspectives on the most recent research and information on evidenced based best practice. All topics of importance to autism intervention will be addressed including bio-medical and neurobiological research,