Participants needed for a research study of adults with autism
Thanks to everyone who has volunteered already--three more participants are needed.
Adults with autism are invited to participate in a study that aims to increase an understanding of factors that can contribute to good life outcomes of individuals with autism. The study explores how individuals with autism make meaning of their life experiences, how they conceive of their future, and how they currently live. The study also aims to understand whether different ways of making sense of life experiences and different ways of orientating towards future relate to the way individuals with autism live their lives.
The study involves an interview that takes about two hours. The interview will be conducted in two sessions, each of about one hour. The participants will receive $50 at the end of the interview. Participation in this study is entirely voluntary.
Eligibility requirements: Individuals with autism 25 years of age and older who have a documented diagnosis of Asperger’s Disorder or high functioning autism.
For more information, please contact Ljiljana Vuletic, Ph.D. Candidate at University of Toronto, at (416) 444-9208 or email@example.com. If you have any concerns regarding this study, you can contact the Office of Research Ethics at firstname.lastname@example.org or 416-946-3273.
Papers: Journal on Developmental Disabilities
Ann Fudge Schormans (JoDD Chief Editorial Board,
We are interested in receiving submissions that address and highlight issues facing those labelled persons who are on the margins of an already marginalized population; people whose identity/identities, circumstances and needs are neither recognized nor adequately understood. For example, people with ID/DD who:
· are involved with the correction and judicial systems
· are homeless, living in shelters, on the street, or in other temporary and unstable (and unsafe) arrangements
· are involved with the mental health system
· experience prejudice and difficulties because of their sexual identity
· have come to attention of child welfare/protection services
· experiencing alcohol or substance abuse
· have recently immigrated
· have been (inappropriately) placed in long-term care health facilities
· are aging and living with aging parents, or those whose caregivers have died
· are multiply labelled
· experience geographic vulnerability (e.g., people with ID/DD living in remote communities)
This list is not exhaustive and we welcome contributions addressing other issues. We are interested in receiving academic papers (theoretical and/or research based), personal narratives, photo-essays, art, poetry, and opinion pieces.
We particularly encourage contributions from labelled persons, from families and carers, service providers and support workers, as well as from academics and researchers.
Deadline for Submissions:
For more information, contact:
Ann Fudge Schormans or Ted Myerscough
The Journal on Developmental Disabilities is published by the
broader social issues that impact on persons with developmental disabilities. The Journal on Developmental Disabilities addresses an international audience and international concerns. The JoDD is on-line at http://www.oadd.org
- Ann Fudge Schormans, M.S.W., R.S.W., Ph.D. Candidate, Faculty of Social Work,
AUTISM NEWS, MAINLY ABOUT ADULT ISSUES
Could the autism epidemic be something to celebrate?
"Although autism is certainly diagnosed more often than it once was, that does not mean that more children are developing it. ...the condition is probably no more prevalent than it has always been. What has changed is that it is being recognised properly for the first time."
An essay inspired by Roy Grinker's book Unstrange Minds, a powerful memoir of his family's experience;of the struggle to obtain a diagnosis for Isabel and to have her needs catered for by the education system. It also describes her difficult but warm and rewarding personality and her family's joy as she learns to make sense of a confusing and often frightening world. Mark Henderson, Science Editor of The Times concludes that "children and adults who for centuries have been given the wrong diagnosis, or been missed altogether, are finally being assessed appropriately. That can only be good for research into the condition's origins and treatment. Most importantly, it will help the rest of us to understand and meet autistic people's needs."
CDC: Vaccine Study Design "Uninformative and Potentially Misleading"
David Kirby, in The Huffington Post, comments on CDC Director Dr. Julie Gerberding's potentially explosive report to the powerful US House Appropriations Committee, in which she admits to a startling string of errors in the design and methods used in the CDC's landmark 2003 study that found no link between mercury in vaccines and autism, ADHD, speech delay or tics.
Diets that eat away at illnesses
An article about the role of diet in treating disorders, notably the 85-year old ketogenic diet, which researchers and physicians are trying to "leverage" to treat various other neurological disorders, including ALS, brain tumors, autism, Parkinson’s disease, Alzheimer’s disease, narcolepsy and migraines.
Moved in The Canada Senate by Senator Jim Munson. Click on title to read his speech on the status of autism research and services in Canada, recorded in Hansard for 17 June 2008. "Bill S-237 would make April 2 world autism awareness day, which would bring the attention of all Canadians to the issue of autism, a problem that affects at least one in 165 families in this country. Autism, a neurological disorder that isolates people from the world around them, is on the rise in Canada and affects more children worldwide than paediatric cancer, diabetes and AIDS combined."
Click here to read "Pay Now or Pay Later: Autism Families in Crisis"
ANNOUNCEMENTS OF EVENTS
send submissions for
this news bulletin or for the OAARSN Calendar and Bulletin Board in
format by email to email@example.com with
"announcement" at the beginning of the subject line.
PLAN Institute offers
Weaving the Ties That Bind
Online Training Course for Facilitating Social Support Networks
"Facilitated social support networks are an effective way to address the isolation and loneliness of many people living on the margins of our society. These networks (also known as “circles of friends”) are proven to contribute to the health, safety and well being of individuals who are vulnerable as a result of age, disability or social circumstance."
Click on title for details of availability and to register--for September, October, or November.
April 11 to July 13, 2008
Royal Ontario Museum (ROM) in Toronto is hosting an exhibit
Out from Under: Disability, History and Things to Remember
organized by the School of Disability Studies at Ryerson University
The 13-panel installation premiered in October 2007 at the ten-day Abilities Arts Festival in Toronto.
Learn more on the ROM website
A 60-page catalogue entitled Out from Under: Disability, History and Things to Remember (2008), accompanies the exhibition. Written by the curatorial team and produced by the School of Disability Studies at Ryerson University it will be available in soft cover for $30 (plus applicable taxes) at the ROM Museum Store and the Ryerson University Bookstore, 17 Gould Street, Toronto.
Summer Institute at University of San Diego
Autism: Work With Me, Not On Me
This unique conference brings state-of-the-art ideas from national and international speakers on how to better understand and support individuals who live with autism. Topics will include:
Toronto Summer Inclusion Institute 2008
Hosted by the
Click to view pamphlet
NB: Early Bird Special expires on May 31
Conference on Autism & Asperger's Syndrome
ISAAC 2008 - The 13th Biennial Conference of the
September 4-7, 2008
US Autism & Asperger Association presents
2008 International Conference in San Antonio, Texas
featuring Paul Shattock and Doris Rapp
Conference Theme: Treating Autism as a Medical Disorder:
Bringing Biomedical Treatments and Behavioral & Developmental Therapies Together
Click for overview and early registration
October 22, 23, 24, 2008, in Toronto
Autism 2008 –
The Symposium will provide a cross-section of perspectives on the most recent research and information on evidenced based best practice. All topics of importance to autism intervention will be addressed including bio-medical and neurobiological research,
Click here for program information Along the right hand side are topics; simply scroll through the schedule, and topics specific to adults indicate ‘adults’ in the right hand column, or click on the ‘adults’ topic at the top of the list.
For registration information, visit www.autism.net or contact Eva Finna at firstname.lastname@example.org or 416-504-4500 ext. 208.
MORE ABOUT OAARSN
See our archive of past OAARSN news bulletins.
Read about why OAARSN was started and the tasks still ahead
You may be interested in our Creative Supports Bulletins which carry news about disabilities and special abilities and creative strategies more generally. See for example: http://www.ont-autism.uoguelph.ca/CS-20060720.html
announcements and comments to email@example.com We welcome news items,
announcements of autism events, new information,
discussion questions and comments, and accounts of experience.
Visit OAARSN's website and keep in touch through the OAARSN Listserv--send a message requesting to join to firstname.lastname@example.org