World Autism Survey--preliminary results
A compilation, with colourful charts, of responses to the survey launched in September and posted online until June 2006. The World Autism Survey was conducted by the Autistic Citizens Residential and Resources Society of Victoria (ACR and RSV), based in Melbourne, Australia and launched at the NAS International Conference in 2005.
The aim of the World Autism Survey was to obtain information regarding the level of support and available services from Government agencies and community sources for people with an ASD. The online survey delivered over 1,800 responses from 53 countries, many from the UK.
The survey has thrown up some interesting results, many of which confirm the experiences of people with an autism spectrum disorder (ASD) in the UK. Nearly 60 per cent of respondents said that specialised day services for adults with autism in their area were available in limited locations or in a few locations only, with a further 33 per cent saying they were not available at all. That implies over 90 percent of people have limited or no services available to them.
futures for adults with autism
At OAARSN, we are always being asked by adults how to get assessed. It would be wonderful to pool a list of resources in Ontario. We might have something like this as a start, then a list of recommended professionals? Any suggestions?
Screening measure for autism in adults
A tool developed through the Greater Manchester Consortium (UK) to develop local services for people with autism and intended for use in any setting or service for adults. The sole purpose of this measure is to screen for the presence of indications of autistic spectrum conditions which may suggest the need for further assessment. It is not a diagnostic tool and The National Autistic Society (and OAARSN) take no responsibility for any misuse of this measure other than its intended purpose.
Summary of Biomedical Treatments for Autism
Autism Research Institute's new website features this summary of nutritional and biomedical treatments tried and evaluated by hundreds and thousands of families.
US scientists created mice that showed symptoms of Fragile X Syndrome - a leading cause of mental retardation and autism in humans. They then reversed symptoms of the condition by inhibiting the action of an enzyme in the brain. The study, by Massachusetts Institute of Technology, appears in Proceedings of the National Academy of Sciences.
Autism, other illnesses may be linked by genes
Autism, schizophrenia and manic-depressive disorder may be linked to several of the same genes, scientists said in a study that may spark a search to identity such genes as a prelude to seeking new treatments. About 20 percent to 60 percent of gene variants that raise people's risk of autism, a mysterious brain disorder, also increase vulnerability to manic-depressive illness, according to the study, led by Andrey Rzhestky, a University of Chicago computational biologist. The findings, to be published this week in the Proceedings of the National Academy of Sciences, come from a statistical analysis of the symptoms and characteristics of 1.5 million patients with 161 diseases. The study may also guide researchers who are trying to find the underpinnings of conditions such as diabetes, heart disease and Alzheimer's disease.
send submissions for
this news bulletin or for the OAARSN Calendar and Bulletin Board in
format by email to email@example.com with
"announcement" at the beginning of the subject line.
The Guelph Enabling Garden (GEG) is a multi-use garden designed for children, the elderly, families, but especially for those community members with varying degrees of physical and cognitive abilities. Its key features are:
· Sensory Interest (sight, sound, smell, touch)
· Reflective areas as with any garden
· Active programming so the experience of gardening is made available to all segments of the population
Visit the website and note the various teaching sessions and workshops.
To register, please contact: Lea Tran 519-993-5323 or firstname.lastname@example.org
11 July 2007, at 6:30pm in Toronto
RAUN KAUFMAN, of The Autism Treatment Center of America
in the Parents Listen Speaker Series
Ryerson Business Building
55 Dundas St W, Toronto
15 July, all day, in Kitchener
"Caring for the Caregiver" Day--FREE!
Organized by a Shiatsu therapist who is also the father of a child with special needs. Participants will be able to experience a variety of self-care activities such as yoga, t'ai chi, laughter yoga, shiatsu therapy etc.
For more information, see www.bubblingsprings.org.
To register, contact Robin Grant (519)569-7474 or email email@example.com.
AND OTHER RESOURCES
An interview with autistic FC pioneer, Richard Attfield by the famous autist Donna Williams
Richard, who lives in
"I am passionate advocate of fc because I have lived the experience of being denied equality, an equal education, and being labelled retarded, and learning disabled and also being unable to communicate via speech to hold a conversation."
Interview with Ralph James Savarese, author of Reasonable People: A Memoir of Autism & Adoption
Savarese tells the remarkable story of his adoptive son. Judged profoundly retarded, abandoned by his parents and abused in foster care, DJ could not communicate when Ralph and his wife, Emily, found him at the age of six. Today, at 14, he expresses himself through a computer, has been successfully mainstreamed in public school, and appears with his father and mother at autism conferences nationwide. Savarese, a literature professor at
ARI Packs New Web Site with Help for Families
A powerful new website addressing the challenges of autism is now available at www.autism.com, developed by the Autism Research Institute (ARI) with the goal of convincing parents and caregivers that autism is a treatable condition.
"Not only does extensive research and our experience show that autism is treatable," said ARI director Dr. Steve Edelson, "but we believe recovery from autism is possible - and drugs are not our only option."
See, for example, this summary of nutritional and biomedical treatments tried and evaluated by hundreds and thousands of families: http://www.autism.com/treatable/adams_biomed_summary.pdf
A GP's guide to adults with Asperger syndrome
Another review of
Unstrange Minds: Remapping the World of Autism
by Roy Richard Grinker; New York, Basic Books, 2006, 340 pages, $26.95
Read Book Review by Yael Dvir, M.D.
"Unstrange Minds is a well-written, carefully presented work of scientific research, looking at the cultural implications of autism. It manages to address key points about autism today, both internationally and very personally. I believe that anyone touched by autism, whether physician, psychologist, teacher, or parent, should read this book."
adults with autism is usually negative. We receive many appeals for
where to turn for help--with diagnosis and assessment, advocacy,
the future, alternatives to approaches that are not working. There are
virtually no obvious sources of help for isolated adults with autism
Brian's blog is titled Autistic Input, explained as follows:
"An outline of the need for those around autistics to have more than just awareness and acceptance, but also input--from autistics themselves, leading to further integration, with the balance of privacy, solitude, protection, and diversity. Input, itself, is but one step in the progress (or phase in the process) with success not being measured or counted but felt in the soul of the autistic individual and those providing affection, affirmation, and assistance for that individual."
We know that some adults and their families and caregivers are heroically using what resources they have to achieve some successes with their challenges. Some can report remarkable progress. We invite you, as an adult or caregiver living with autism, to share your perceptions, problems and success stories, if you think others might help or benefit
MORE ABOUT OAARSN
See our archive of past OAARSN news bulletins.
Read about why OAARSN was started and the tasks still ahead
You may be interested in our Creative Supports Bulletins which carry news about disabilities and special abilities and creative strategies more generally. See for example: http://www.ont-autism.uoguelph.ca/CS-20060720.html
announcements and comments to firstname.lastname@example.org We welcome news items,
announcements of autism events, new information,
discussion questions and comments, and accounts of experience.
Visit OAARSN's website and keep in touch through the OAARSN Listserv--send a message requesting to join to email@example.com