YOUNG ADULT SIBLINGS INVITED FOR NEW RESEARCH STUDY
Males and females who have autistic siblings are needed for a research study. Requirements are that they are between the ages 18-37 and have no known diagnoses of autism spectrum disorders or mental illness or developmental delay. Diagnosis of the sibling may be Autism or PDD NOS, not Aspergers. Participation requires filling out a questionnaire and then mailing it back to me. It can even be done via email. It will take approximately 40 min. Please contact me at firstname.lastname@example.org with the subject line Autism Research, Canada.
Thanks in advance
Carrie Landa, M.A., PhD Candidate
41 Temple St.
Boston, MA 02114
World Autism Survey--preliminary results
A compilation, with colourful charts, of responses to the survey launched in September and posted online until June 2006. The World Autism Survey was conducted by the Autistic Citizens Residential and Resources Society of Victoria (ACR and RSV), based in Melbourne, Australia and launched at the NAS International Conference in 2005.
The aim of the World Autism Survey was to obtain information regarding the level of support and available services from Government agencies and community sources for people with an ASD. The online survey delivered over 1,800 responses from 53 countries, many from the UK.
The survey has thrown up some interesting results, many of which confirm the experiences of people with an autism spectrum disorder (ASD) in the UK. Nearly 60 per cent of respondents said that specialised day services for adults with autism in their area were available in limited locations or in a few locations only, with a further 33 per cent saying they were not available at all. That implies over 90 percent of people have limited or no services available to them.
Screening measure for autism in adults
A tool developed through the Greater Manchester Consortium (UK) to develop local services for people with autism and intended for use in any setting or service for adults. The sole purpose of this measure is to screen for the presence of indications of autistic spectrum conditions which may suggest the need for further assessment. It is not a diagnostic tool and The National Autistic Society (and OAARSN) take no responsibility for any misuse of this measure other than its intended purpose.
The Age of Autism: Quite the coincidence
Another column in the series of over 100 by Dam Olmsted, this one exploring the coincidence of the first diagnoses of autism by Kanne in the United States in 1943 and by Asperger in Austria in 1944, and relating the recognition of the disorder to the first uses of ethyl mercury in horticulture and later as a preservative in drugs. For a list of previous Age of Autism columns
As a result of mapping the structure of the protein complex implicated in autism spectrum disorders, a research team led by scientists at the University of California, San Diego (UCSD) Skaggs School of Pharmacy and Pharmaceutical Sciences has discovered how particular genetic mutations affect this complex and contribute to the developmental abnormalities found in children with autism.
Their work, published as the cover article in the June issue of the journal Structure, should help scientists pinpoint the consequences of other genetic abnormalities associated with the disorder. "By understanding the three-dimensional structure of the normal protein, researchers can now make predictions about how mutations in the gene affect the structure of the gene product," said first author Davide Comoletti, Ph.D., UCSD research associate at the Skaggs School of Pharmacy.
Autism-related Proteins Control Nerve Excitability, Researchers Find
Two proteins that are implicated in autism have been found to control the strength and balance of nerve-cell connections, researchers at UT Southwestern Medical Center have found. The proteins, which serve to physically link nerve cells together, were discovered more than a decade ago by UT Southwestern scientists, but their function has been unclear. In the new study the researchers found that one protein increases the excitability of nerve cells, while the other inhibits cell activity. Most importantly, these effects depended on how often the cells fired. Autism is believed to involve an imbalance of excitatory and inhibitory nerve connections, a theory supported by this study...
Canadian actor and director Eugene Levy has signed on as a spokesman for autism and is calling for a national strategy to help those affected by the disorder, especially the need for affordable and accessible autism treatment. "I feel extremely passionate about the need for a national autism strategy," Levy said in a release. "Canada is blessed in so many ways but somehow some of our most vulnerable citizens are being wrongfully neglected. It is time to address this wrong and provide these individuals with the same access to medically necessary treatment that the rest of us enjoy throughout our lifetimes under our country's alleged universal health-care system."
send submissions for
this news bulletin or for the OAARSN Calendar and Bulletin Board in
format by email to email@example.com with
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11 July 2007, at 6:30pm in Toronto
RAUN KAUFMAN, of The Autism Treatment Center of America
in the Parents Listen Speaker Series
Ryerson Business Building
55 Dundas St W, Toronto
AND OTHER RESOURCES
to the doctor: a guide for parents and carers
The Autism Perspective - TAP magazine
2007 Issue 2 Released
Bellini's book Building Social Relationships named
2007 Literary Work of the Year by Autism Society of America
New system allows autistic children to communicate with their environment
Communication ability of children who are intellectually disabled or have communication limitations (such as autism, down syndrome, or cerebral palsy) may soon be improved thanks to a research group of the University of Granada. SC@UT, which stands for Augmentative and Adaptive Communication System, has been created by the following researchers: 13 professors of the ETSI, ASPROGRADES association and a team of psychologists, psycho-pedagogues, and speech therapists. All are directed by José Juan Cañas Delgado, professor of Ergonomics of the Department of Experimental Psychology and Behavioural Physiology of the UGR and María José Rodríguez Fortiz, professor of the Department of System Informatics. SC@UT, software for augmenting communication by computer devices (PC’s, laptops, PDA’s, etc.), is for children with special communication and educational needs, such as those who suffer from autism.
“This is a project promoted by the Regional Government of Andalusia which attempts to reduce differences between disabled and non-disabled people”, states Cañas Delgado. ”We have created a configurable parameter tool that allows disabled people to interact with their environment. In this way, their adaptation to a world full of barriers is much easier. In this world, social and labour integration is impossible without communication and access to education."
The functioning of SC@UT is easy: through a PC (or even better, a PDA) parents or tutors can download the specific software from http://www.ugr.es/~scaut/. Later, the display is ready to be used as a way of communicating between the child and the society. Through the SC@UT project, the child can express such needs as going to the toilet or hunger, as well as such states as being happy, sad, or tired. SC@UT includes a speaker which transmits the “user’s comments” to the listener. -Universidad de Granada
Reading on Autism: Tales of The "Fastest Evolving Disorder In Medical
adults with autism is usually negative. We receive many appeals for
where to turn for help--with diagnosis and assessment, advocacy,
the future, alternatives to approaches that are not working. There are
virtually no obvious sources of help for isolated adults with autism
We know that some adults and their families and caregivers are heroically using what resources they have to achieve some successes with their challenges. Some can report remarkable progress. We invite you, as an adult or caregiver living with autism, to share your perceptions, problems and success stories, if you think others might help or benefit.