11 September 2008
An electronic bulletin for adults who are vulnerable because of disability
and for their families, friends and supporters who care about them
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Please note that we (or OAARSN or the University of Guelph) do not necessarily endorse announcements or opinions that may be posted in this bulletin. We will make reasonable efforts to check sources.

More about this series of bulletins may be found at the end, including links to past bulletins.


Telethons' cost is in dignity
Helen Henderson writes for The Star on the life and enduring message of Harriet McBryde Johnson of South Carolina who protested from 1971 against telethons  which presented disabled children as objects of pity.  Johnson who died this summer at age 50 became widely known through the  2003 cover story in The New York Times Magazine. and her book Too Late to Die Young: Nearly True Tales from a Life (2007).
Her message:
"People with disabilities don't want pity. We want what all people want. Equal rights and equal access. A bed to sleep in, a place to call home. A way to get out of bed, go out into the world and live a life. Freedom from prejudice and poverty and confinement in institutions. Access to medical care and the tools to stay healthy. Integration and inclusion in the fabric of a democratic community. The help we need to give our gifts to others."

Doing the work of the heart
Ian Brown of The Globe presents the first instalment of a conversation with Jean Vanier who will soon be 80. The article begins:
"Everybody with a seriously handicapped person in their life knows this fantasy. The fantasy is a place, somewhere the handicapped person will be able to live and be cared for, not as someone handicapped but as a participating member of the world, for as long as they survive....The strangest thing is, the fantasy almost exists."
Forty-four years ago, in a village northeast of Paris, Vanier co-founded the first household in what became known as the L'Arche movement that now includes 130 communities in 34 countries on six continents.



Please send submissions for this news bulletin or for the OAARSN Calendar and Bulletin Board in plain text format by email to with "announcement" at the beginning of the subject line.
Please provide details of the following as BRIEFLY as possible: 
Name of Event
 Main Speakers and Topics of Event 
 Date of Event 
 City and Location of Event
 Contact information to learn more about event
 URL Link for more information/registration 

 Please Do Not Send Files Or Brochure Attachments


Announcing Series of Events

Fall 2008, between October 18 and November 29, in Oshawa
Compassion in Action: Open Mind, Open Heart, Skilful Means
an 8-part introductory seminar series in compassionate practices with Felicia Jervis.
THE HEART OF THE MATTER: Some children and adults express themselves through actions that are at times difficult to understand and support safely. These actions may include: occasional withdrawal or aggressive acts towards self, others and property. These actions must be understood not as challenging behaviors that need to be controlled or eliminated, but rather as communicative acts that often speak of the pain of humiliation and rejection, and a yearning to belong....
Click for full brochure and how to register in the workshop series

Click to read "When children hurt themselves"
by Felicia Jervis in BLOOM magazine on the Bloorview website

Planned Lifetime Advocacy Network (PLAN) Workshops & Seminars

Within BC or online.
To help you in planning a safe and secure future for your relative with a disability, PLAN offers a variety of seminars and workshops on topics of interest to families. For a list of upcoming events, go to PLAN's website:


Announcing Individual Events

September 13, 2008

Walk a Mile in my Shoe

Location: Victoria Park, London, Ontario

This is a Community Outreach Event to celebrate diversity in our community. This event is specifically intended to help people understand difficulties faced by those with differing abilities. Click for poster

For more information and to register, please go to or contact Joyce 519-659-3003
This event is inspired and hosted by Bill Hiltz and supporters and friends. Click here to read Bill's powerful testimony, including a poem, that Bill presented last month to the Ontario Legislature's Standing Committee on Social Policy.

Wednesday, September 17, 2008, 11-3, in Toronto
"Ending Poverty Workshop”  
Place: 188 Lowther Avenue – Walmer Centre – “Lower Hall”
(attached to Walmer Road Baptist Church)
Intersection: Spadina Avenue & Bloor Street West
Subway: Spadina Station on Bloor-Danforth
Subway line is wheelchair accessible

Enrolment is limited. To register please call Theresa at 416-482-8255 ext 229 before Friday September 12, 2008.
Please indicate any disability accommodations you may need and whether you need childcare when you call.
Your ideas for ending poverty will become part of a report to government and the community to help build an effective poverty reduction strategy in Ontario.
This workshop is 1 of 10 organized by CAMPAIGN 2000 and the Income Security Advocacy Centre across Ontario, with funding from Metcalf Foundation. Organized by:  ARCH Disability Law Centre

Wednesday, September 17, 2008, 4:30-6pm, in Kitchener
Social Innovation Generation, at the University of Waterloo (SiG@Waterloo,, invites you to
Social Innovation Dialogues: Fall 2008
Al Etmanski of the "PLAN Institute for Caring Citizenship"
"Engaging Vulnerable Populations to Strengthen our Communities"
Venue: Kitchener Public Library, Main Library, 85 Queen Street North, , ON

Tuesday, September 23, 2008, 730-9pm, in Kitchener
Social Innovation Generation, at the University of Waterloo (SiG@Waterloo,, invites you to
Social Innovation Dialogues: Fall 2008 (
Senator Michael Kirby, Chair, Mental Health Commission of Canada
"Social Innovation and the Mental Health Commission of Canada"
Venue: Kitchener Public Library, Main Library, 85 Queen Street North, , ON
Senator Kirby will be speaking about the need for social innovation when striving to change perceptions and attitudes about mental health and mental illness amongst the general public, in policy circles, as well as within the Canadian health care system itself. 

October 3-5, 2008, in Ottawa

Family Alliance Ontario Annual Conference
Engaging Families and Building Bridges
Visit the Family Alliance Ontario website at this link for full information, including an important note about booking hotel rooms.

October 7, 2008: 9am-4pm, at Wellington County Museum, Fergus/Elora
Aging and Developmental Disabilities
Click for flyer

Tuesday, October 7, 2008, 4:30-6pm, in Kitchener
Social Innovation Generation, at the University of Waterloo (SiG@Waterloo,, invites you to
Social Innovation Dialogues: Fall 2008
Michael Quinn Patton, DEvelopmental Evaluation
"Measuring the Impact of Social Change"
Venue: Kitchener Public Library, Main Library, 85 Queen Street North, , ON

Tuesday, 7 October 2008, 7–9pm, in Guelph
First of a series of information forums for families living in Guelph-Wellington, who are interested in learning about services and increasing life options for adults with Autism. Supported by Kerry’s Place Autism Services. At Kortright Presbyterian Church, 55 Devere Drive in Guelph (registration begins at 6:30 pm)
Guest speakers include: Andrea Robinson from Access, Information & Referral, Developmental Services; Elizabeth Bloomfield of Guelph Services for the Autistic; Gail Jones from Kerry’s Place Autism Services; and Dwight Syms, Service Resolution Facilitator for Wellington. Service information booths with staff representatives will also be available throughout the evening.
Child-minding services will be provided on site and light refreshments will be served.
Click for more details and to register
**For more information and registration, call Wendy Perry at 905-867-6152**

18 October 2008, 8:30-5pm, in Guelph
Hiring Support Workers: First Steps
an all-day workshop presented by Judith McGill
for Families for a Secure Future
Click for full details and how to register

October 22, 23, 24, 2008, in Toronto

Autism 2008 – Geneva Centre for Autism International Symposium
The Symposium will provide a cross-section of perspectives on the most recent research and information on evidenced based best  practice.  All topics of importance to autism intervention will be addressed including bio-medical and neurobiological research, ABA, intervention, social skills, behaviour, communication, first-hand accounts, Asperger’s Disorder, and more.  Featuring speakers from Canada, U.S., Great Britain, and Australia.  For registration information, visit or contact Eva Finna at or 416-504-4500 ext. 208.

25 October 2008, 8:30-5pm, in Pickering
Hiring Support Workers: First Steps
an all-day workshop presented by Judith McGill
for Families for a Secure Future
Click for full details and how to register

November 10, 2008, in Toronto

Ontario Ministry of Community and Social Services,
Employer Outreach Secretariat:
Symposium on Disability and Employment

Contact: Tim Hilliard


3rd Floor, Hepburn Block

80 Grosvenor Street

Toronto, Ontario M7A 1E9

Tel: (416) 325-5352

FAX: (416) 212-4704


Employer Outreach Secretariat contacts:

Wednesday, November 12, 2008, 4:30-6pm, in Kitchener
Social Innovation Generation, at the University of Waterloo (SiG@Waterloo,, invites you to
Social Innovation Dialogues: Fall 2008
Frances Westley & Paul Born (SiG@Waterlloo and Tamarack)
"Systems Change: Thinking like a Movement"
Venue: Kitchener Public Library, Main Library, 85 Queen Street North, , ON

November 12-14, 2008 in Niagara Falls ON
National Association for the Dually Diagnosed (NADD) 25th Annual Conference: 
"A Quarter Century of Awareness: Assessment, Treatment & Policy Advances (ID/MH)"

At the Sheraton Fallsview Hotel,
Niagara Falls, ON, Canada.
At the end of the conference, participants will be able to:
• Cite advances in the field of co-occurring MH/ID;
• Recognize the genetic underpinning of several MH/ID disorders;
• Identify to relevance of the DM-ID to the diagnosis and treatment of persons with MH/ID;
• Name several integrated system responses that have developed in Canada and the US;
• Interpret relevant integrated research that can be generalized to other individuals with MH/ID issues.
To learn more information about this event, please visit: 



Link Up Employment Services for Persons with Disabilities
LinkUp is a charitable, not-for-profit employment services agency that started in 2002. It has a head office in the heart of Toronto, Ontario, and branch offices in Winnipeg, Manitoba and Vancouver, British Columbia.
From Disabilities to Possibilities is a practical guide to hiring and retaining people with disabilities, aimed at front-line managers at Ontario companies and organizations. Training based on this comprehensive publication will be offered starting in September, 2008.
Click here to learn more.

Consider a Henson Trust: What you can do to enhance the quality of life for a family member with a disability
Written by Harry Beatty, Mary Louise Dickson and John Stapleton and sponsored by the Reena Foundation and the Law Foundation of Ontario.

Special Services At Home Provincial Coalition

Check out all this website's resources, including the March 2008 First Choice Newsletter.

Visit the new MukiBaum Treatment Centres website

"MukiBaum Treatment Centres is a treatment organization devoted to providing compassionate services for children, adolescents and adults, who have dual diagnosis, to allow them to lead a life filled with dignity and integrity.
We use in-depth individualized humanistic treatment modalities, which focus on the person as a whole and his/her strengths, abilities and needs." Note the many features of this organization.
Please also note the feature "Match Muki: if Muki can do it, so can you! Mukii  is the epitome of ability beyond disability. Born with Cerebral Palsy and deafness, Muki has single-handily raised more than $450,000, dollar by dollar, over the last 20 years for people with complex disabilities."

We are often asked for help in finding professionals who can assess disabilities, and thus are glad to know of this professional organization, whose members are distributed around Ontario.
of Psychologists in Disability Assessment

The website description is as follows:

CAPDA is an organization of senior psychologists who practise primarily in the areas of psychological or neuropsychological assessment of disability and impairment.

There are strict requirements for membership and all members are bound by comprehensive standards which guide their practice and outline their obligations to the individual assessed and to the referral source.
The intent of the website is to promote the great resources within Waterloo Region and to make the information concerning those resources within the Community Connections booklet more accessible. This website is the first step in creating a unique resource for the Region of Waterloo for those living, working or supporting someone with a disability. It offers an easy way to search for options and make decisions about programs that may meet needs and interests.

The new website was released in May 2008. What is it?
A bilingual online directory with authoritative information about more than 56,000 community, social, health and related government services and programs in Ontario
    • Location, keyword, subject and advanced searching available

    • Sophisticated mapping interface
    • Proximity searching finds the service closest to the user
    • French language interface for Francophones in Ontario  
A regularly verified and updated database of information collected by local community agencies
Access to accurate and timely information can empower people to successfully cope with life’s challenges and be productive, active and engaged.
Contact: Kathy Kelly | Project Manager | 416-392-4658 is funded through a strategic investment of $3M from Strengthening Our Partnerships, a program of the Ministry of Finance, with support from the Ministry of Community and Social Services. The 211 Ontario newcomer services partnership is funded by Citizenship and Immigration Canada, Ontario Region

Guide to Personal Care and Property for Adults with a Developmental Disability

Published by The Ontario Partnership on Aging and Developmental Disabilities, the guide provides information about: Substitute decision-makers, power of attorney for personal care, power of attorney for property, Guardianship, and Income and Taxation issues. The Guide can be accessed and downloaded at or ordered at a cost of $5.00 from: Ontario Partnership on Aging and Developmental Disabilities, C/O Toby and Henry Battle Developmental Centre, 927 Clark Ave, Thornhill, On L4J 8G6

A Place Called Home--second edition now available

Alison C. Ouellette is happy to announce the newly updated and revised second edition of “A Place Called Home”.  It describes the journey of the Ouellette family and their son David’s quest for an everyday life, and contains new stories of a life unfolding, photos and contributions by friends and family.
If you are interested in this new release, you can order copies through Alison’s or David’s web site. There is an order form there for you to download. or

Thinking creatively about new opportunities
for person-centred and self-directed lives..........

Strategies and formal agreements developed by
Services for the Autistic in its role as housing trust
GSA has functioned as a housing trust since 1997, its mission to help adults with "Autistic Disorder" to live in their own homes with dignity and safety, supported by family and friends--and with self-directed planning, individualized funding, and infrastructure services as needed. Other families and organizations, concerned with persons who have other special needs, are interested in following the paths pioneered by GSA, so we have compiled this 120-page guide to the various agreements and procedures, with some explanatory text.
A new resource that is valuable for anyone who is trying to direct their own person-centred life, and for their families and friends.  Please click on this link for the flyer




We know that some vulnerable adults and their families and caregivers are heroically using what resources they have to achieve some successes with their challenges. Some can report remarkable progress. We invite you to share your challenges, dreams and success stories, if you think others might help or benefit. If you wish, we will not publish your name or email address. You may send a message to


This bulletin is for everyone who is vulnerable because of any kind of disability, and for their families, friends and supporters. We can share dilemmas and difficulties as well as bright ideas and successes. There are announcements of events and special projects, discussions of issues and concerns, and links to useful books, websites and other resources. Our focus is mainly on Ontario, but we have wider contacts as well.

Previous Creative Supports bulletins may be found on the OAARSN website, by clicking on the following links:

You are receiving this bulletin because you attended the Guelph Spring Conference on Creative Supports in April 2005 or expressed interest in resources coming out of that conference. Or you may have been a member of our PLN Listserv, for people concerned with Personal Support Networks. Or someone on the List has suggested that you could be interested. We hope you will continue on the Aroha Listserv, recommend it to others, and contribute news and ideas that we may share. Please click for a technical note on how to maintain your membership of the Aroha Listserv and how to unsubscribe if you wish.

Please send news, announcements and comments to We welcome news items, announcements of events, new information, discussion questions and comments, and accounts of experience.

The Aroha Listserv and Creative Supports Bulletin are linked to the OAARSN website (Ontario Adult Autism Research & Support Network) which is hosted at the University of Guelph. Click to reach OAARSN's main page

Gerald & Elizabeth Bloomfield
Guelph, Ontario, Canada
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