5 February 2008
An electronic bulletin for adults who are vulnerable because of disability
and for their families, friends and supporters who care about them
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More about this series of bulletins may be found at the end, including links to past bulletins.


An electronic bulletin for adults who are vulnerable because of disability and for their families, friends and supporters who care about them.


Autism Sunday and International Day of Prayer for Autism and Asperger's Syndrome on 10 February
Ivan Corea, head of Autism Awareness Campaign UK, urges churches to speak out on the needs of people with Asperger's Syndrome and autism. There are around 60 million people with autism around the world and over 500,000 people affected in the United Kingdom, say health campaigners.

Adults with Autism: I exist!

Thinking Differently, the current effort in the UK to draw attention to adults with autism, launches a new phase today. Click on the link above to explore what it means...
Autism also affects adults.
Most are isolated and ignored.
Think. Act. Transform lives

  • I Exist is the message from adults with autism, who have been isolated and ignored for too long.
  • A study for the National Autistic Society (NAS) has found 63% of adults with autism in England feel isolated and lack help.
  • The I Exist report also found 61% of adults with autism rely on their family financially while 40% live with their parents.
  • A total of 60% think the lack of proper services has led to them needing higher levels of support later on.
  • At least one in three adults with autism is also experiencing severe mental health difficulties due to poor care, the study found.
  • Overall, 67% of local authorities do not keep a record of how many adults with autism there are in their area and 65% do not know how many they support.
  • Amanda Batten, NAS head of policy and campaigns, said: "For too long adults with autism have found themselves isolated and ignored.
  • "They struggle to access support and are often dependent on their families.
  • "It does not have to be like this - I Exist is the message from adults with autism who want their needs understood and the barriers to support removed.
  • "The right help at the right time can have a profound effect - we are calling on the Government to think, act, and transform lives."

"Can anyone suggest a family doctor or a psychiatrist in the Greater Toronto area?  We are looking for someone who is respectful to clients and families,  knowledgeable about autism, considers the whole person, and does not prescribe needless drugs."



Regional Support Associates (mainly in SW Ontario)
continues to offer a broad range of educational programs for front-line staff and managers.

Winter workshops in 2008 are about:
Fostering healthy relationships
Moving towards increased independence
Preventing sexual offending behaviours
Good Grief
Advanced topics in behaviour analysis
Click for full details

February 19, 2008,  7- 8:30pm, in Ottawa
Lifetime Networks Ottawa sponsors mini-workshop
on the new Registered Disability Savings Plan
at 406-1390 Prince of Wales Drive
Click for full information: free but you must pre-register
Visit the Lifetime Networks Ottawa website

Monday, March 10, 7pm, at Kitchener Public Library
John Lord and Peggy Hutchison talk about their book
Pathways to Inclusion:
Building a New Story with People and Communities
in the KPL’s Learning for Wellness series
The authors look at how our communities accommodate people with disabilities and discuss how society needs to change so our more vulnerable citizens move towards social inclusion.

Read Ted McCartney's review of this book for OAARSN
Copies of the book will be on sale.

March 10-12, 2008, in Delta BC
Changing the World One Person at a Time: The Canadian Experience

  • Share what’s been learned in Canada regarding the provision of
  • person-centred options that have been sustained over time
  • Provide inspiration, valuable start up knowledge and guidance to
  • individuals, agencies and systems beginning such work
  • Help organizations change from "fixed" service models to entirely
  • individualized supports
  • Explore the elements necessary for high quality personalized supports,
  • and the safeguards to ensure this occurs
Please click on title to reach website
Sponsored by Community Living
British Columbia, BC Association for Community
Living, Canadian Association for Community Living

April 25-27, 2008
Family Alliance Ontario is planning its 2008 Conference in Eastern Ontario
More information will be forthcoming at once the location has been established and the program completed.

May 27-29, 2008, in Detroit
“Everyday Freedoms”
International Conference of Center for Self-Determination

”Cutting Edge in a City with an Edge”
Detroit Marriott, Renaissance Center, Detroit, USA
Conference Highlights:
§                            Discussions about meaningful lives, real freedom
§                            Community membership, income asset & development
§                            Aging with dignity & freedom
§                            Recovery in the context of self-determination
§                            Families truly supported to best assist in developing self-determined lives
§                            International perspectives on these issues as well as discussions of what system change requirements are needed: what works and what interferes
Click for more information

June 9-11, 2008, in Honolulu, Hawaii
International Conference on Diverse Abilities & Innovative Supports 2008
Life, Liberty, & the Pursuit of Community
Join us as we explore topics such as:
Dual Diagnosis * Direct Support Worker Issues & Solutions
Supervision & Management * Clinical Issues
International Best Practices * Self-Advocacy/Independent Living
Autism/Aspergers * Employment * Caregiving
Find out more from
1-888-542-8555 CRA, 373 JaMax Dr., Hillsborough, NC 27278


Thinking creatively about new opportunities
for person-centred and self-directed lives.......... just published

Strategies and formal agreements developed by
Services for the Autistic in its role as housing trust

GSA has functioned as a housing trust since 1997, its mission to help adults with "Autistic Disorder" to live in their own homes with dignity and safety, supported by family and friends--and with self-directed planning, individualized funding, and infrastructure services as needed.

Other families and organizations, concerned with persons who have other special needs, are interested in following the paths pioneered by GSA, so we have compiled this 120-page guide to the various agreements and procedures, with some explanatory text.

A new resource that is valuable for anyone who is trying to direct their own person-centred life, and for their families and friends.
Contents: (click the links to reach an excerpt)

Please click on this link for the flyer



We know that some vulnerable adults and their families and caregivers are heroically using what resources they have to achieve some successes with their challenges. Some can report remarkable progress. We invite you to share your challenges, dreams and success stories, if you think others might help or benefit. If you wish, we will not publish your name or email address. You may send a message to

We welcome news, announcements, ideas and comments related to creative supports. Please send material to

For a note about technical aspects of the Aroha Listserv, please click on

Gerald & Elizabeth Bloomfield


This bulletin is for everyone who is vulnerable because of any kind of disability, and for their families, friends and supporters. We can share dilemmas and difficulties as well as bright ideas and successes. There are announcements of events and special projects, discussions of issues and concerns, and links to useful books, websites and other resources. Our focus is mainly on Ontario, but we have wider contacts as well.

Previous Creative Supports bulletins may be found on the OAARSN website, by clicking on the following links:

October 18, 2007
October 5, 2007
September 19, 2007
August 30, 2007
August 20, 2007
August 9, 2007
July 14, 2007
June 26, 2007
May 10, 2007
April 18, 2007
April 12, 2007
March 22, 2007
March 3, 2007
February 20, 2007
January 30, 2007
January 18, 2007
December 26, 2006
November 20, 2006
November 7, 2006
November 1, 2006
October 7, 2006
July 2, 2006
June 28, 2006
May 20, 2006
May 14, 2006
April 2, 2006
March 20, 2006
February 16, 2006
February 10, 2006
February 4, 2006
January 18, 2006
November 12, 2005
October 10, 2005
September 18, 2005
August 15, 2005
August 1, 2005
July 6, 2005

You are receiving this bulletin because you attended the Guelph Spring Conference on Creative Supports in April 2005 or expressed interest in resources coming out of that conference. Or you may have been a member of our PLN Listserv, for people concerned with Personal Support Networks. Or someone on the List has suggested that you could be interested. We hope you will continue on the Aroha Listserv, recommend it to others, and contribute news and ideas that we may share. Please click for a technical note on how to maintain your membership of the Aroha Listserv and how to unsubscribe if you wish.

Please send news, announcements and comments to We welcome news items, announcements of events, new information, discussion questions and comments, and accounts of experience.

The Aroha Listserv and Creative Supports Bulletin are linked to the OAARSN website (Ontario Adult Autism Research & Support Network) which is hosted at the University of Guelph. Click to reach OAARSN's main page

Gerald & Elizabeth Bloomfield
Guelph, Ontario, Canada
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