CREATIVE SUPPORTS FOR VULNERABLE CITIZENS
 
20 November 2006
An electronic bulletin for adults who are vulnerable because of disability
and for their families, friends and supporters who care about them

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This bulletin is one outcome of the Guelph Spring Conference on Creative Supports held 29 April 2005, in Guelph, Ontario, Canada. It is for everyone who is vulnerable because of any kind of disability, and for their families, friends and supporters. We can share dilemmas and difficulties as well as bright ideas and successes. There are announcements of events and special projects, discussions of issues and concerns, and links to useful books, websites and other resources. Our focus is mainly on Ontario, but we have wider contacts as well.

In organizing the Guelph Spring conference, we were moved by a desire to be positive and resourceful amid challenges--by the idea expressed in a Chinese proverb:  It is better to light a candle than to curse the darkness.

The bulletin is being sent first to email addresses on our Aroha Listserv. Why Aroha? Practically, it's good for a Listserv or website to have a short, distinctive codeword unlikely to be confused with any other. More importantly, Aroha, a Polynesian Maori word from Aotearoa/New Zealand, means the various qualities and values that are needed in a caring circle of friends. It can mean affection, respect, love, charity, compassion, empathy, concern, trust, pity, understanding and true friendship—all in active ways, not just ideas or feelings. 

You are receiving this bulletin because you attended the Guelph conference in April 2005 or expressed interest in resources coming out of that conference. Or you may have been a member of our PLN Listserv, for people concerned with Personal Support Networks. Or someone on the List has suggested that you could be interested. We hope you will continue on the Aroha Listserv, recommend it to others, and contribute news and ideas that we may share. Please click for a technical note on how to maintain your membership of the Aroha Listserv and how to unsubscribe if you wish.

Please send news, announcements and comments to gbloomfi@uoguelph.ca We welcome news items, announcements of events, new information, discussion questions and comments, and accounts of experience.

The Aroha Listserv and Creative Supports Bulletin are linked to the OAARSN website (Ontario Adult Autism Research & Support Network) which is hosted at the University of Guelph. Click to reach OAARSN's main page 

Please note that we (or OAARSN or the University of Guelph) do not necessarily endorse announcements or opinions that may be posted in this bulletin.. We will make reasonable efforts to check sources.

Gerald & Elizabeth Bloomfield
Guelph, Ontario, Canada

Previous Creative Supports bulletins may be found by clicking on the following links:

November 7, 2006
November 1, 2006
October 7, 2006
July 2, 2006
June 28, 2006
May 20, 2006
May 14, 2006
April 2, 2006
March 20, 2006
February 16, 2006
February 10, 2006
February 4, 2006
January 18, 2006
November 12, 2005
October 10, 2005
September 18, 2005
August 15, 2005
August 1, 2005
July 6, 2005

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ONTARIO NEWS

Important New Releases from the Individualized Funding Coalition for Ontario
IFCO is pressing purposefully to persuade the Ontario Government to move ahead in implementing
the new directions announced in Opportunities and Action – Transforming Supports In Ontario for People who have a Developmental Disability  IFCO members are meeting with Ontario Ministers, members of Treasury Board and MPPs this month.

Rationale for Independent Planning and Facilitation: Why MCSS Should Move Quickly
This document presents nine rationales for independent planning and facilitation which will help build a sustainable, innovative, cost effective direct individualized funding program.  With this document, IFCO calls on MCSS to move ahead with independent planning and facilitation as a vital infrastructure to ensure the success of direct funding.

EXTRA!!! Common Vision EXTRA!!!
A news summary including excerpts from interviews with leaders in the social change movement.

IFCO issues are vital for Ontario. Look up the many current resources on the IFCO website.


LONG-TERM CARE HOME ACCESS PROTOCOL
FOR ADULTS WITH A DEVELOPMENTAL DISABILITY

Disability advocates have been upset to learn that the Ontario Government (through the Ministries of Community and Social Services and Health and Long-Term Care) has made plans for adults with a developmental disability and relatively high needs to be admitted to long-term care facilities instead of opening community living opportunities for them. Advovates of inclusion and community living see a discrepancy between this new "access protocol" and the values and strategies discussed in the MCSS "transformation process" for developmental services since mid-2004.
Read the Ministries' Access Protocol (July 2006)
Read a letter of serious concerns by Shelley Martel MPP
Read Doublespeak, a critique by Dr Patricia Spindel
(we have permission to share this).

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ANNOUNCEMENTS OF EVENTS
One purpose in posting these announcements is to publicize events being offered by organizations who have similar values to ours. As many of us are limited in our ability to travel, another purpose is to share creative ideas that might be taken up by people in other cities and regions.

Please send submissions for this news bulletin in plain text format by email to ebloomfi@uoguelph.ca with "announcement" at the beginning of the subject line.
Please provide details of the following as BRIEFLY as possible: 
 Name of Event
 Main Speakers and Topics of Event 
 Date of Event 
 City and Location of Event
 Contact information to learn more about event 
 Please Do Not Send Files Or Brochure Attachments, but URL links to more detailed information on other websites are welcome.


Advance announcements

January 25 - 27, 2007,  in San Diego
Learning to Listen: Personalizing Supports Across the Life-Span
Conference topics include

  • The role of movement differences/disturbances in communication and behavior challenges
  • Pitfalls of literal interpretation of behavior: Successful interactions with individuals whose unconventional ways of communicating make you think they are not listening and wouldn’t understand
  • Sensory-movement issues and stress
  • Personalizing accommodations and life options for meaningful inclusion.
  • Panels of parents and of self-advocates who address the processes and supports that make a real difference in their lives
Conference presenters
Anne M. Donnellan, Ph.D.
Martha R. Leary, M.A., CCC-SLP
Jeff Strully, Ph.D.
Jodi A. Robledo, Ph.D.
Panel of Parents and Self-Advocates
Click for Winter Autism Conference details



May 23 – 27, 2007, Sheraton Centre Toronto

2nd International Come To Your Senses Conference

Opening the Sensory World to Children & Adults with Complex Disabilities

By MukiBaum Treatment Centres

Call for Papers NOW OPEN! If you are interested in presenting at our conference, visit the website at www.mukibaum.com and click on the link for Submit Paper. The complete details and rules for submission are outlined on the website.

We invite professionals, parents, caregivers, persons with disabilities, researchers and consumers to present on a wide array of topics within the realm of Sensory-Motor Therapy and people with disabilities. The goal is to share and disseminate knowledge and experience from around the world so that we can better understand the Sensory Reality of people with disabilities and the many forms of treatment that exist. 

Registration is now open at http://www.sensoryconference.ca/ and you can take advantage of Early Bird rates. There will be opportunities for you and your organization to exhibit, become a sponsor of the event and participate in a number of activities throughout the conference.


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RESOURCES--BOOKS, FILMS, WEBSITES, COURSES AND MORE


PLAN Institute for Caring Citizenship offers
"Weaving the Ties That Bind"

an online course on facilitating social support networks--in January 2007.
Click for full information on the current course
To ensure registration for the January 2007 course,
please contact inquiries@planinstitute.ca before November 24th, 2006 or call 604.439.9566.


Philia: a dialogue on caring citizenship
A few years ago, a small group of thinkers, doers and innovators from across Canada began meeting to consider the question: "What would it take to create a genuine welcome of marginalized people, an appreciation of the gifts of diversity, and a greater capacity to care?" The outcome of these consultations was the Philia Dialogue on Caring Citizenship – a cross-sectoral endeavour whose aim is to nurture inclusive communities that welcome the participation and contribution of all citizens.
Our inspiration for Philia came out of our roots in the disability community. People with disabilities can and want to contribute to the betterment of our society – to fulfill their duties as citizens. By welcoming the participation of people with disabilities – and others who have been marginalized or isolated – everyone benefits. Individuals benefit from being valued as full and contributing citizens, and society benefits from their knowledge and gifts. Indeed, we believe that the health, well-being and strength of our society depends on the presence and participation of all citizens.
To realize our vision of a fully inclusive society, however, we need to move beyond the disability community as well as within it. Philia brings the wisdom and experience of PLAN Institute to the larger conversation. By engaging in dialogue with caring citizens in all sectors, we hope ultimately to transform how people think about disability and citizenship, and to embed these new ideas in society's structures and institutions.


NEW RESOURCE FROM YORK SUPPORT SERVICES NETWORK
Connections: A guide to transition planning for parents of children with a developmental disability
Toronto and York Regions (August 2006)
g yr tray
Connections is a guide to transition planning that has been developed to assist parents and individuals as they transition from school to life in the community. The guide is intended to provide readers with information on transition planning and the issues that need to be addressed, starting at a very young age, in order to develop a successful transition plan. Readers will learn about tools and community resources that can assist them through these life transitions as they work to make their dreams become realities.
Download this 125 page document at
http://yssn.ca/images/clientupload/Connections.pdf

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FROM THE FRONT LINES: 

CALLING FOR HELP AND SHARING EXPERIENCES


We know that some vulnerable adults and their families and caregivers are heroically using what resources they have to achieve some successes with their challenges. Some can report remarkable progress. We invite you to share your challenges, dreams and success stories, if you think others might help or benefit.


CALL FOR HELP

Seeking Neurologists Sensitive to Autism and Epilepsy
Families and caregivers of several adults who live with autism and occasional grand mal seizures are looking for neurologists willing to see adults with autism and, if at all possible, to consider strategies other than medication. Some adults react to drugs and some are highly sensitive to medical procedures. Please let us OAARSN know of anyone you could recommend.


If you wish, we will not publish your name or email address. You may send a message to gbloomfi@uoguelph.ca



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